Literature DB >> 19579037

Social and psychological determinants of participation in internet-based cancer support groups.

Mette Terp Høybye1, Susanne Oksbjerg Dalton, Jane Christensen, Lone Ross, Katrin Gaardbo Kuhn, Christoffer Johansen.   

Abstract

PURPOSE: In this study, we identified the social and psychological characteristics of Danish cancer patients that determine use of the internet for support.
MATERIALS AND METHODS: We invited 230 cancer patients taking part in a public rehabilitation program to participate in an internet module comprising training in the retrieval of cancer-related information from the internet and self-support groups. Persons who were motivated to join the internet groups (N = 100; 47%) were compared with persons who chose not to participate (N = 111) on the basis of self-reported baseline questionnaire data. Nineteen persons either did not return the questionnaire or had missing values in confounding variables.
RESULTS: Cancer patients who were motivated to participate in internet support groups belong to higher socioeconomic groups (based on household income and employment) compared to non-participants. We observed no difference between the two groups in quality of life or psychological well-being, while coping to some extent seemed related to participation in internet support groups.
CONCLUSION: This study adds to the discussion on social inequality in internet use by cancer patients, showing that patients who are not inclined to use internet-based interventions are characterized by social position and employ more passive coping strategies.

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Mesh:

Year:  2009        PMID: 19579037     DOI: 10.1007/s00520-009-0683-6

Source DB:  PubMed          Journal:  Support Care Cancer        ISSN: 0941-4355            Impact factor:   3.603


  27 in total

1.  Health literacy and the World Wide Web: comparing the readability of leading incident cancers on the Internet.

Authors:  D B Friedman; L Hoffman-Goetz; J F Arocha
Journal:  Med Inform Internet Med       Date:  2006-03

2.  Randomized pilot of a self-guided internet coping group for women with early-stage breast cancer.

Authors:  Jason E Owen; Joshua C Klapow; David L Roth; John L Shuster; Jeff Bellis; Ron Meredith; Diane C Tucker
Journal:  Ann Behav Med       Date:  2005-08

3.  Relations between Internet use, socio-economic status (SES), social support and subjective health.

Authors:  Silje C Wangberg; Hege K Andreassen; Hans-Ulrich Prokosch; Silvina Maria Vagos Santana; Tove Sørensen; Catharine E Chronaki
Journal:  Health Promot Int       Date:  2007-12-13       Impact factor: 2.483

4.  Psychoeducational intervention for patients with cutaneous malignant melanoma: a replication study.

Authors:  Ellen H Boesen; Lone Ross; Kirsten Frederiksen; Birthe L Thomsen; Karin Dahlstrøm; Grethe Schmidt; Jesper Naested; Christen Krag; Christoffer Johansen
Journal:  J Clin Oncol       Date:  2005-02-20       Impact factor: 44.544

5.  Gender differences on Internet cancer support groups.

Authors:  P Klemm; M Hurst; S L Dearholt; S R Trone
Journal:  Comput Nurs       Date:  1999 Mar-Apr

6.  Use of the internet for information and support: disclosure among persons with breast and prostate cancer.

Authors:  Jason E Owen; Joshua C Klapow; David L Roth; Diane C Tucker
Journal:  J Behav Med       Date:  2004-10

7.  Cognitive function and quality of life after surgery for early breast cancer in North Jutland, Denmark.

Authors:  Jeanne Debess; Jens Østergaard Riis; Lars Pedersen; Marianne Ewertz
Journal:  Acta Oncol       Date:  2009       Impact factor: 4.089

8.  Electronic support groups for breast carcinoma: a clinical trial of effectiveness.

Authors:  Morton A Lieberman; Mitch Golant; Janine Giese-Davis; Andy Winzlenberg; Harold Benjamin; Keith Humphreys; Carol Kronenwetter; Stefani Russo; David Spiegel
Journal:  Cancer       Date:  2003-02-15       Impact factor: 6.860

9.  Influence of socioeconomic factors on survival after breast cancer--a nationwide cohort study of women diagnosed with breast cancer in Denmark 1983-1999.

Authors:  Susanne Oksbjerg Dalton; Lone Ross; Maria Düring; Kathrine Carlsen; Preben Bo Mortensen; John Lynch; Christoffer Johansen
Journal:  Int J Cancer       Date:  2007-12-01       Impact factor: 7.396

10.  European citizens' use of E-health services: a study of seven countries.

Authors:  Hege K Andreassen; Maria M Bujnowska-Fedak; Catherine E Chronaki; Roxana C Dumitru; Iveta Pudule; Silvina Santana; Henning Voss; Rolf Wynn
Journal:  BMC Public Health       Date:  2007-04-10       Impact factor: 3.295

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  15 in total

1.  Social and psychological determinants of levels of engagement with an online breast cancer support group: posters, lurkers, and nonusers.

Authors:  Jeong Yeob Han; Jung-Hyun Kim; Hye Jin Yoon; Minsun Shim; Fiona M McTavish; David H Gustafson
Journal:  J Health Commun       Date:  2011-11-15

2.  Effect of Internet peer-support groups on psychosocial adjustment to cancer: a randomised study.

Authors:  M T Høybye; S O Dalton; I Deltour; P E Bidstrup; K Frederiksen; C Johansen
Journal:  Br J Cancer       Date:  2010-04-27       Impact factor: 7.640

3.  Talking About Cancer and Meeting Peer Survivors: Social Information Needs of Adolescents and Young Adults Diagnosed with Cancer.

Authors:  Erin E Kent; Ashley Wilder Smith; Theresa H M Keegan; Charles F Lynch; Xiao-Cheng Wu; Ann S Hamilton; Ikuko Kato; Stephen M Schwartz; Linda C Harlan
Journal:  J Adolesc Young Adult Oncol       Date:  2013-06       Impact factor: 2.223

4.  Knowledge translation in men's health research: development and delivery of content for use online.

Authors:  Maria Lohan; Áine Aventin; John L Oliffe; Christina S Han; Joan L Bottorff
Journal:  J Med Internet Res       Date:  2015-01-29       Impact factor: 5.428

5.  Online cancer communities as informatics intervention for social support: conceptualization, characterization, and impact.

Authors:  Shaodian Zhang; Erin O'Carroll Bantum; Jason Owen; Suzanne Bakken; Noémie Elhadad
Journal:  J Am Med Inform Assoc       Date:  2017-03-01       Impact factor: 4.497

6.  Balancing trust and power: a qualitative study of GPs perceptions and strategies for retaining patients in preventive health checks.

Authors:  Marie Broholm-Jørgensen; Ann Dorrit Guassora; Susanne Reventlow; Susanne Oksbjerg Dalton; Tine Tjørnhøj-Thomsen
Journal:  Scand J Prim Health Care       Date:  2017-02-28       Impact factor: 2.581

7.  How user characteristics affect use patterns in web-based illness management support for patients with breast and prostate cancer.

Authors:  Elin Børøsund; Milada Cvancarova; Mirjam Ekstedt; Shirley M Moore; Cornelia M Ruland
Journal:  J Med Internet Res       Date:  2013-03-01       Impact factor: 5.428

Review 8.  The impact of web-based approaches on psychosocial health in chronic physical and mental health conditions.

Authors:  Christine L Paul; Mariko L Carey; Rob W Sanson-Fisher; Louise E Houlcroft; Heidi E Turon
Journal:  Health Educ Res       Date:  2013-06

9.  Rationale of the BREAst cancer e-healTH [BREATH] multicentre randomised controlled trial: an internet-based self-management intervention to foster adjustment after curative breast cancer by decreasing distress and increasing empowerment.

Authors:  Sanne W van den Berg; Marieke F M Gielissen; Petronella B Ottevanger; Judith B Prins
Journal:  BMC Cancer       Date:  2012-09-07       Impact factor: 4.430

10.  Design and process evaluation of an informative website tailored to breast cancer survivors' and intimate partners' post-treatment care needs.

Authors:  Evelyn Pauwels; Elke Van Hoof; Caroline Charlier; Lilian Lechner; Ilse De Bourdeaudhuij
Journal:  BMC Res Notes       Date:  2012-10-03
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