Literature DB >> 19559513

"You don't need a prescription to go gluten-free": the scientific self-diagnosis of celiac disease.

Denise A Copelton1, Giuseppina Valle.   

Abstract

We explore the social process of celiac disease diagnosis using fieldwork in the United States with two celiac support groups, interviews, and a virtual ethnography of an online discussion board. Distinguishing between medical diagnosis, self-diagnosis, and scientific self-diagnosis, we examine patients' varied paths to diagnosis and their attempts to legitimize symptoms as celiac disease. Web-based direct-access testing (DAT) permits patients to bypass physician requisition for testing in their diagnostic quest. While such laboratories do not diagnose disease per se, they provide the consumer with the scientific information necessary to self-diagnose. This scientific self-diagnosis grants individuals greater legitimacy for their claims of an illness identity than self-diagnosis alone, but less legitimacy than medical diagnosis. We examine the implications of scientific self-diagnosis for the social construction of diagnosis and professional and lay ways of knowing.

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Year:  2009        PMID: 19559513     DOI: 10.1016/j.socscimed.2009.05.012

Source DB:  PubMed          Journal:  Soc Sci Med        ISSN: 0277-9536            Impact factor:   4.634


  6 in total

1.  Identifying potential adverse effects using the web: a new approach to medical hypothesis generation.

Authors:  Adrian Benton; Lyle Ungar; Shawndra Hill; Sean Hennessy; Jun Mao; Annie Chung; Charles E Leonard; John H Holmes
Journal:  J Biomed Inform       Date:  2011-07-26       Impact factor: 6.317

2.  Can consumers trust web-based information about celiac disease? Accuracy, comprehensiveness, transparency, and readability of information on the internet.

Authors:  Shawna L McNally; Michael C Donohue; Kimberly P Newton; Sandra P Ogletree; Kristen K Conner; Sarah E Ingegneri; Martin F Kagnoff
Journal:  Interact J Med Res       Date:  2012-04-04

3.  Prior Misdiagnosis of Celiac Disease Is Common Among Patients Referred to a Tertiary Care Center: A Prospective Cohort Study.

Authors:  Gianluca Ianiro; Stefano Bibbò; Giovanni Bruno; Riccardo Ricci; Vincenzo Arena; Antonio Gasbarrini; Giovanni Cammarota
Journal:  Clin Transl Gastroenterol       Date:  2016-01-28       Impact factor: 4.488

4.  How patients navigate the diagnostic ecosystem in a fragmented health system: a qualitative study from India.

Authors:  Vijayashree Yellapa; Narayanan Devadasan; Anja Krumeich; Nitika Pant Pai; Caroline Vadnais; Madhukar Pai; Nora Engel
Journal:  Glob Health Action       Date:  2017       Impact factor: 2.640

5.  Understanding the Role of the Diagnostic 'Reflex' in the Elimination of Human African Trypanosomiasis.

Authors:  Jennifer J Palmer; Caroline Jones; Elizeous I Surur; Ann H Kelly
Journal:  Trop Med Infect Dis       Date:  2020-04-01

Review 6.  A Review on the Gluten-Free Diet: Technological and Nutritional Challenges.

Authors:  Dalia El Khoury; Skye Balfour-Ducharme; Iris J Joye
Journal:  Nutrients       Date:  2018-10-02       Impact factor: 5.717

  6 in total

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