Literature DB >> 19537436

Will developing countries benefit from their participation in genetics research?

Paul Ndebele1, Rosemary Musesengwa.   

Abstract

There is an increase in the amount of genetics research being conducted in both developed and limited resource countries. Most of this research is sponsored by developed countries. There are concerns in limited resource countries on how the benefits from this research are currently being shared or will be shared in the future. There is need for caution, to ensure that populations from limited resource countries are not exploited by being used as subjects in genetics research which is meant to benefit populations from developed countries. This paper addresses the issue of fairness in benefits sharing and argues for justice in the sharing of both burdens and benefits of genetics research. The paper responds to some of the issues and arguments in recent literature on the meaning and limits of the concept of benefit sharing in human genetics research.

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Year:  2008        PMID: 19537436      PMCID: PMC3345671          DOI: 10.4314/mmj.v20i2.10960

Source DB:  PubMed          Journal:  Malawi Med J        ISSN: 1995-7262            Impact factor:   0.875


  4 in total

1.  North-South benefit sharing arrangements in bioprospecting and genetic research: a critical ethical and legal analysis.

Authors:  Udo Schüklenk; Anita Kleinsmidt
Journal:  Dev World Bioeth       Date:  2006-12       Impact factor: 2.294

2.  Benefit sharing: it's time for a definition.

Authors:  D Schroeder
Journal:  J Med Ethics       Date:  2007-04       Impact factor: 2.903

Review 3.  The Human Genome Project: under an international ethical microscope.

Authors:  B M Knoppers; R Chadwick
Journal:  Science       Date:  1994-09-30       Impact factor: 47.728

4.  Consent, commodification and benefit-sharing in genetic research.

Authors:  Donna Dickenson
Journal:  Dev World Bioeth       Date:  2004-12       Impact factor: 2.294

  4 in total
  5 in total

1.  A call for global governance of biobanks.

Authors:  Haidan Chen; Tikki Pang
Journal:  Bull World Health Organ       Date:  2014-11-24       Impact factor: 9.408

2.  Perceptions of students in health and molecular life sciences regarding pharmacogenomics and personalized medicine.

Authors:  Lejla Mahmutovic; Betul Akcesme; Camil Durakovic; Faruk Berat Akcesme; Aida Maric; Muhamed Adilovic; Nour Hamad; Matthias Wjst; Oliver Feeney; Sabina Semiz
Journal:  Hum Genomics       Date:  2018-11-14       Impact factor: 4.639

3.  Delimiting cryptic species within the brown-banded bamboo shark, Chiloscyllium punctatum in the Indo-Australian region with mitochondrial DNA and genome-wide SNP approaches.

Authors:  Ian R Tibbetts; Michael B Bennett; Christine L Dudgeon
Journal:  BMC Ecol Evol       Date:  2021-06-16

4.  Pharmacogenomic Research in South Africa: Lessons Learned and Future Opportunities in the Rainbow Nation.

Authors:  Louise Warnich; Britt I Drögemöller; Michael S Pepper; Collet Dandara; Galen E B Wright
Journal:  Curr Pharmacogenomics Person Med       Date:  2011-09

Review 5.  A scoping review of considerations and practices for benefit sharing in biobanking.

Authors:  Allan Sudoi; Jantina De Vries; Dorcas Kamuya
Journal:  BMC Med Ethics       Date:  2021-07-27       Impact factor: 2.652

  5 in total

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