Literature DB >> 17400617

Benefit sharing: it's time for a definition.

D Schroeder1.   

Abstract

Benefit sharing has been a recurrent theme in international debates for the past two decades. However, despite its prominence in law, medical ethics and political philosophy, the concept has never been satisfactorily defined. In this conceptual paper, a definition that combines current legal guidelines with input from ethics debates is developed. Philosophers like boxes; protective casings into which they can put concisely-defined concepts. Autonomy is the human capacity for self-determination; beneficence denotes the virtue of good deeds, coercion is the intentional threat of harm and so on. What about benefit sharing? Does the concept have a box and are the contents clearly defined? The answer to this question has to be no. The concept of benefit sharing is almost unique in that various disciplines use it regularly without precise definitions. In this article, a definition for benefit sharing is provided, to eliminate unnecessary ambiguity.

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Year:  2007        PMID: 17400617      PMCID: PMC2652775          DOI: 10.1136/jme.2006.016790

Source DB:  PubMed          Journal:  J Med Ethics        ISSN: 0306-6800            Impact factor:   2.903


  8 in total

Review 1.  The ethics of benefit sharing.

Authors:  K Berg
Journal:  Clin Genet       Date:  2001-04       Impact factor: 4.438

2.  Hugo ethics committee statement on benefit sharing: April 9, 2000.

Authors: 
Journal:  Clin Genet       Date:  2000-11       Impact factor: 4.438

3.  Human genetic banking: altruism, benefit and consent.

Authors:  Garrath Williams; Doris Schroeder
Journal:  New Genet Soc       Date:  2004-04

4.  Sharing the benefits of genetic research.

Authors:  Doris Schroeder; Miltos Ladikas; Udo Schuklenk; Carolina Lasén Lasén Diáz; Anita Kleinsmidt; Fatima Alvarez-Castillo; Dafna Feinholz
Journal:  BMJ       Date:  2005-12-10

5.  Out of the armchair: a bioethics student's search for practical knowledge in Kenya.

Authors:  Nicole Li
Journal:  J Bioeth Inq       Date:  2004       Impact factor: 1.352

6.  Vicissitudes of benefit sharing of crop genetic resources: downstream and upstream.

Authors:  Bram De Jonge; Michiel Korthals
Journal:  Dev World Bioeth       Date:  2006-12       Impact factor: 2.294

7.  Sharing the benefits of genetic resources: from biodiversity to human genetics.

Authors:  Doris Schroeder; Carolina Lasén-Díaz
Journal:  Dev World Bioeth       Date:  2006-12       Impact factor: 2.294

8.  Consent, commodification and benefit-sharing in genetic research.

Authors:  Donna Dickenson
Journal:  Dev World Bioeth       Date:  2004-12       Impact factor: 2.294

  8 in total
  13 in total

Review 1.  What Do the Various Principles of Justice Mean Within the Concept of Benefit Sharing?

Authors:  Bege Dauda; Yvonne Denier; Kris Dierickx
Journal:  J Bioeth Inq       Date:  2016-01-29       Impact factor: 1.352

2.  Will developing countries benefit from their participation in genetics research?

Authors:  Paul Ndebele; Rosemary Musesengwa
Journal:  Malawi Med J       Date:  2008-06       Impact factor: 0.875

Review 3.  Addressing underrepresentation in genomics research through community engagement.

Authors:  Amy A Lemke; Edward D Esplin; Aaron J Goldenberg; Claudia Gonzaga-Jauregui; Neil A Hanchard; Julie Harris-Wai; Justin E Ideozu; Rosario Isasi; Andrew P Landstrom; Anya E R Prince; Erin Turbitt; Maya Sabatello; Samantha A Schrier Vergano; Matthew R G Taylor; Joon-Ho Yu; Kyle B Brothers; Nanibaa' A Garrison
Journal:  Am J Hum Genet       Date:  2022-09-01       Impact factor: 11.043

4.  Challenges to biobanking in LMICs during COVID-19: time to reconceptualise research ethics guidance for pandemics and public health emergencies?

Authors:  Shenuka Singh; Rosemary Jean Cadigan; Keymanthri Moodley
Journal:  J Med Ethics       Date:  2021-05-12       Impact factor: 5.926

5.  Benefit sharing: an exploration on the contextual discourse of a changing concept.

Authors:  Bege Dauda; Kris Dierickx
Journal:  BMC Med Ethics       Date:  2013-09-12       Impact factor: 2.652

6.  The Need for an Interdisciplinary Approach to Norm Diffusion: The Case of Fair and Equitable Benefit-sharing.

Authors:  Louisa Parks; Elisa Morgera
Journal:  Rev Eur Comp Int Environ Law       Date:  2015-11-16

7.  The Rooibos Benefit Sharing Agreement-Breaking New Ground with Respect, Honesty, Fairness, and Care.

Authors:  Doris Schroeder; Roger Chennells; Collin Louw; Leana Snyders; Timothy Hodges
Journal:  Camb Q Healthc Ethics       Date:  2019-11-05       Impact factor: 1.284

8.  Planning for translational research in genomics.

Authors:  Naomi Hawkins; Jantina de Vries; Paula Boddington; Jane Kaye; Catherine Heeney
Journal:  Genome Med       Date:  2009-09-29       Impact factor: 11.117

9.  Stakeholder perspectives on the ethico-legal dimensions of biobanking in South Africa.

Authors:  Shenuka Singh; Keymanthri Moodley
Journal:  BMC Med Ethics       Date:  2021-07-01       Impact factor: 2.652

10.  Ethics of genomic research.

Authors:  Jayanthi Mathaiyan; Adithan Chandrasekaran; Sanish Davis
Journal:  Perspect Clin Res       Date:  2013-01
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