Literature DB >> 19424803

Interpreting advance directives: ethical considerations of the interplay between personal and cultural identity.

Silke Schicktanz1.   

Abstract

In many industrialized countries ethicists and lawyers favour advance directives as a tool to guarantee patient autonomy in end-of-life-decisions. However, most citizens seem reluctant to adopt the practice; the number of patients who have an advance directive is low across most countries. The article discusses the key argument for seeing such documents as an instrument of self-interpretation and life-planning, which ultimately have to be interpreted by third parties as well. Interpretation by third parties and the process of self-reflection are conceptually linked by a qualitative concept of identity. Identity is conceived here as constructed in a processual dialogue between a personal and a cultural perspective. How the cultural dimension comes into play in understanding the motivation, rejection or content of wished for end-of-life-decisions, is shown by a brief review of empirical and cultural studies. Understanding advance directives as a culturally embedded tool of self-interpretation should help to overcome urgent moral problems in clinical settings: how to interpret such documents, how to deliberate on the content and on the best form.

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Year:  2009        PMID: 19424803     DOI: 10.1007/s10728-009-0118-z

Source DB:  PubMed          Journal:  Health Care Anal        ISSN: 1065-3058


  17 in total

1.  Enough. The failure of the living will.

Authors:  Angela Fagerlin; Carl E Schneider
Journal:  Hastings Cent Rep       Date:  2004 Mar-Apr       Impact factor: 2.683

2.  End-of-life decisions and advance directives in palliative care: a cross-cultural survey of patients and health-care professionals.

Authors:  R Voltz; A Akabayashi; C Reese; G Ohi; H M Sass
Journal:  J Pain Symptom Manage       Date:  1998-09       Impact factor: 3.612

3.  Meanings and attitudes toward end-of-life preferences in Israel.

Authors:  R D Leichtentritt; K D Rettig
Journal:  Death Stud       Date:  1999-06

4.  Bridging cultural differences in medical practice. The case of discussing negative information with Navajo patients.

Authors:  J A Carrese; L A Rhodes
Journal:  J Gen Intern Med       Date:  2000-02       Impact factor: 5.128

5.  Frequency and determinants of advance directives concerning end-of-life care in The Netherlands.

Authors:  Mette L Rurup; Bregje D Onwuteaka-Philipsen; Agnes van der Heide; Gerrit van der Wal; Dorly J H Deeg
Journal:  Soc Sci Med       Date:  2005-09-12       Impact factor: 4.634

Review 6.  Multi-cultural and multi-ethnic considerations and advanced directives: developing cultural competency.

Authors:  Joyce Newman Giger; Ruth E Davidhizar; Pamela Fordham
Journal:  J Cult Divers       Date:  2006

7.  Cross-cultural similarities and differences in attitudes about advance care planning.

Authors:  Henry S Perkins; Cynthia M A Geppert; Adelita Gonzales; Josie D Cortez; Helen P Hazuda
Journal:  J Gen Intern Med       Date:  2002-01       Impact factor: 5.128

8.  Importance of the advance directive and the beginning of the dying process from the point of view of German doctors and judges dealing with guardianship matters: results of an empirical survey.

Authors:  B van Oorschot; A Simon
Journal:  J Med Ethics       Date:  2006-11       Impact factor: 2.903

9.  Attitudes towards and barriers to writing advance directives amongst cancer patients, healthy controls, and medical staff.

Authors:  S Sahm; R Will; G Hommel
Journal:  J Med Ethics       Date:  2005-08       Impact factor: 2.903

10.  Planning for end of life care within lay-led chronic illness self-management training: the significance of 'death awareness' and biographical context in participant accounts.

Authors:  Caroline Sanders; Anne Rogers; Claire Gately; Anne Kennedy
Journal:  Soc Sci Med       Date:  2007-12-26       Impact factor: 4.634

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  3 in total

1.  Enhancing competency in professionalism: targeting resident advance directive education.

Authors:  Colleen Y Colbert; Curtis Mirkes; Paul E Ogden; Mary Elizabeth Herring; Christian Cable; John D Myers; Allison R Ownby; Eugene Boisaubin; Ida Murguia; Mark A Farnie; Mark Sadoski
Journal:  J Grad Med Educ       Date:  2010-06

2.  Practical and Ethical Aspects of Advance Research Directives for Research on Healthy Aging: German and Israeli Professionals' Perspectives.

Authors:  Perla Werner; Silke Schicktanz
Journal:  Front Med (Lausanne)       Date:  2018-04-05

3.  Underlying goals of advance care planning (ACP): a qualitative analysis of the literature.

Authors:  Nienke Fleuren; Marja F I A Depla; Daisy J A Janssen; Martijn Huisman; Cees M P M Hertogh
Journal:  BMC Palliat Care       Date:  2020-03-06       Impact factor: 3.234

  3 in total

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