Literature DB >> 19409153

A second national survey of health-related quality of life questionnaires in head and neck oncology.

Anastasios N Kanatas1, Hisham M Mehanna, Derek Lowe, Simon N Rogers.   

Abstract

INTRODUCTION: With an increasing number of publications on health-related quality of life (HRQOL) following head and neck cancer, the recognition of a number of well-validated questionnaires and a growing awareness of the potential role of HRQOL in practice, it was our aim to repeat the survey of 2002 reported in the Annals to see how practice changed.
MATERIALS AND METHODS: A postal survey of members of the British Association of Head and Neck Oncologists was undertaken in January 2006 with reminders sent in February, March and April.
RESULTS: The response was 50% (106 of 210) of which 53% were using or had used HRQOL questionnaires. The main reasons for not using HRQOL questionnaires were that they were too time-consuming or intrusive in a clinic setting and that there was a lack of resources.
CONCLUSIONS: Clinicians still see the use of questionnaires as a research-tool only, rather than an adjunct to giving patient information, promoting choice, and identifying patients with problems. The burden on HRQOL evaluation in routine clinical practice remains a substantial barrier. Advances with IT support in clinic should make it easier to collect and use these data in the future. As surgeons, we still need to be persuaded of the benefits of HRQOL outcomes in our practice.

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Mesh:

Year:  2009        PMID: 19409153      PMCID: PMC2758445          DOI: 10.1308/003588409X428306

Source DB:  PubMed          Journal:  Ann R Coll Surg Engl        ISSN: 0035-8843            Impact factor:   1.891


  15 in total

1.  A feasibility study of computer-assisted health-related quality of life data collection in patients with oral and oropharyngeal cancer.

Authors:  L Millsopp; S Frackleton; D Lowe; S N Rogers
Journal:  Int J Oral Maxillofac Surg       Date:  2006-05-11       Impact factor: 2.789

2.  The further development and validation of the Liverpool Oral Rehabilitation Questionnaire: a cross-sectional survey of patients attending for oral rehabilitation and general dental practice.

Authors:  A Pace-Balzan; J I Cawood; R Howell; C J Butterworth; D Lowe; S N Rogers
Journal:  Int J Oral Maxillofac Surg       Date:  2005-09-26       Impact factor: 2.789

Review 3.  The effectiveness of the use of patient-based measures of health in routine practice in improving the process and outcomes of patient care: a literature review.

Authors:  J Greenhalgh; K Meadows
Journal:  J Eval Clin Pract       Date:  1999-11       Impact factor: 2.431

4.  Automated collection of quality-of-life data: a comparison of paper and computer touch-screen questionnaires.

Authors:  G Velikova; E P Wright; A B Smith; A Cull; A Gould; D Forman; T Perren; M Stead; J Brown; P J Selby
Journal:  J Clin Oncol       Date:  1999-03       Impact factor: 44.544

5.  Reflections on findings of the Cancer Outcomes Measurement Working Group: moving to the next phase.

Authors:  Carolyn C Gotay; Joseph Lipscomb; Claire F Snyder
Journal:  J Natl Cancer Inst       Date:  2005-11-02       Impact factor: 13.506

Review 6.  The use of patient reported outcome measures in routine clinical practice: lack of impact or lack of theory?

Authors:  Joanne Greenhalgh; Andrew F Long; Rob Flynn
Journal:  Soc Sci Med       Date:  2005-02       Impact factor: 4.634

7.  Quality of life assessment in daily clinical oncology practice: a feasibility study.

Authors:  S B Detmar; N K Aaronson
Journal:  Eur J Cancer       Date:  1998-07       Impact factor: 9.162

8.  A national survey of health-related quality of life questionnaires in head and neck oncology.

Authors:  A N Kanatas; S N Rogers
Journal:  Ann R Coll Surg Engl       Date:  2004-01       Impact factor: 1.891

Review 9.  Health-related quality of life in oral cancer: a review.

Authors:  Arun Chandu; Andrew C H Smith; Simon N Rogers
Journal:  J Oral Maxillofac Surg       Date:  2006-03       Impact factor: 1.895

Review 10.  A structured review and theme analysis of papers published on 'quality of life' in head and neck cancer: 2000-2005.

Authors:  S N Rogers; S A Ahad; A P Murphy
Journal:  Oral Oncol       Date:  2007-06-27       Impact factor: 5.337

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  7 in total

1.  Taste changes in amyotrophic lateral sclerosis and effects on quality of life.

Authors:  Claudia Tarlarini; Lucia Catherine Greco; Andrea Lizio; Francesca Gerardi; Valeria Ada Sansone; Christian Lunetta
Journal:  Neurol Sci       Date:  2018-12-04       Impact factor: 3.307

2.  'What will I be like' after my diagnosis of head and neck cancer?

Authors:  S N Rogers; E S Hogg; W K A Cheung; L K L Lai; P Jassal; D Lowe; A Kanatas
Journal:  Eur Arch Otorhinolaryngol       Date:  2014-07-22       Impact factor: 2.503

3.  Patient satisfaction following endoscopic endonasal dacryocystorhinostomy: a quality of life study.

Authors:  G Jutley; R Karim; N Joharatnam; S Latif; T Lynch; J M Olver
Journal:  Eye (Lond)       Date:  2013-07-12       Impact factor: 3.775

4.  Quality of life considerations in head and neck cancer: United Kingdom National Multidisciplinary Guidelines.

Authors:  S N Rogers; C Semple; M Babb; G Humphris
Journal:  J Laryngol Otol       Date:  2016-05       Impact factor: 1.469

Review 5.  Using PROMs to guide patients and practitioners through the head and neck cancer journey.

Authors:  Simon N Rogers; Brittany Barber
Journal:  Patient Relat Outcome Meas       Date:  2017-11-08

6.  Improving quality of life through the routine use of the patient concerns inventory for head and neck cancer patients: a cluster preference randomized controlled trial.

Authors:  Simon N Rogers; Derek Lowe; Cher Lowies; Seow Tien Yeo; Christine Allmark; Dominic Mcavery; Gerald M Humphris; Robert Flavel; Cherith Semple; Steven J Thomas; Anastasios Kanatas
Journal:  BMC Cancer       Date:  2018-04-18       Impact factor: 4.430

7.  Preservation of organ function in head and neck cancer.

Authors:  Uta Tschiesner
Journal:  GMS Curr Top Otorhinolaryngol Head Neck Surg       Date:  2012-12-20
  7 in total

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