Literature DB >> 19407036

Is there a duty to share genetic information?

S M Liao1.   

Abstract

A number of prominent bioethicists, such as Parker, Lucassen and Knoppers, have called for the adoption of a system in which by default genetic information is shared among family members. This paper suggests that a main reason given in support of this call to share genetic information among family members is the idea that genetic information is essentially familial in nature. On examining this "familial nature of genetics" argument, the paper shows that most genetic information is only shared in a weaker way among family members and does not necessarily lead to the actual manifestation of particular diseases. The upshot is that the idea that genetic information is familial in nature does not provide sufficient ground for moving towards a system in which by default genetic information is shared among family members.

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Year:  2009        PMID: 19407036     DOI: 10.1136/jme.2008.027029

Source DB:  PubMed          Journal:  J Med Ethics        ISSN: 0306-6800            Impact factor:   2.903


  9 in total

1.  Five skills psychiatrists should have in order to provide patients with optimal ethical care.

Authors:  Edmund Howe
Journal:  Innov Clin Neurosci       Date:  2011-03

2.  Different concepts and models of information for family-relevant genetic findings: comparison and ethical analysis.

Authors:  Christian Lenk; Debora Frommeld
Journal:  Med Health Care Philos       Date:  2015-08

3.  Supporting disclosure of genetic information to family members: professional practice and timelines in cancer genetics.

Authors:  Benjamin Derbez; Antoine de Pauw; Dominique Stoppa-Lyonnet; Sandrine de Montgolfier
Journal:  Fam Cancer       Date:  2017-07       Impact factor: 2.375

4.  Genetic Privacy, Disease Prevention, and the Principle of Rescue.

Authors:  Madison K Kilbride
Journal:  Hastings Cent Rep       Date:  2018-05       Impact factor: 2.683

5.  Canadian Research Ethics Board Leadership Attitudes to the Return of Genetic Research Results to Individuals and Their Families.

Authors:  Conrad V Fernandez; P Pearl O'Rourke; Laura M Beskow
Journal:  J Law Med Ethics       Date:  2015       Impact factor: 1.718

6.  Can dynamic consent facilitate the protection of biomedical big data in biobanking in Malaysia?

Authors:  Mohammad Firdaus Abdul Aziz; Aimi Nadia Mohd Yusof
Journal:  Asian Bioeth Rev       Date:  2019-05-25

7.  Australian human research ethics committee members' confidence in reviewing genomic research applications.

Authors:  Ryan Pysar; Courtney K Wallingford; Jackie Boyle; Scott B Campbell; Lisa Eckstein; Rebekah McWhirter; Bronwyn Terrill; Chris Jacobs; Aideen M McInerney-Leo
Journal:  Eur J Hum Genet       Date:  2021-08-26       Impact factor: 4.246

Review 8.  Family tree and ancestry inference: is there a need for a 'generational' consent?

Authors:  Susan E Wallace; Elli G Gourna; Viktoriya Nikolova; Nuala A Sheehan
Journal:  BMC Med Ethics       Date:  2015-12-09       Impact factor: 2.652

9.  The right not to know and the obligation to know.

Authors:  Ben Davies
Journal:  J Med Ethics       Date:  2020-04-29       Impact factor: 5.926

  9 in total

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