Literature DB >> 19378637

Exploring the "legacy" of the Tuskegee Syphilis Study: a follow-up study from the Tuskegee Legacy Project.

Ralph V Katz1, B Lee Green, Nancy R Kressin, Sherman A James, Min Qi Wang, Cristina Claudio, Stephanie Luise Russell.   

Abstract

The purpose of this follow-up 2003 3-City Tuskegee Legacy Project (TLP) Study was to validate or refute our prior findings from the 1999-2000 4 City TLP Study, which found no evidence to support the widely acknowledged "legacy" of the Tuskegee Syphilis Study (TSS), ie, that blacks are reluctant to participate in biomedical studies due to their knowledge of the TSS. The TLP Questionnaire was administered in this random-digit-dial telephone survey to a stratified random sample of 1162 black, white, and Puerto Rican Hispanic adults in 3 different US cities. The findings from this current 3-City TLP Study fail to support the widely acknowledged "legacy" of the TSS, as awareness of the TSS was not statistically associated with the willingness to participate in biomedical studies. These findings, being in complete agreement with our previous findings from our 1999-2000 4-City TLP, validate those prior findings.

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Year:  2009        PMID: 19378637      PMCID: PMC2745634          DOI: 10.1016/s0027-9684(15)30833-6

Source DB:  PubMed          Journal:  J Natl Med Assoc        ISSN: 0027-9684            Impact factor:   1.798


  26 in total

1.  Twenty years after. The legacy of the Tuskegee Syphilis Study. When evil intrudes.

Authors:  A L Caplan
Journal:  Hastings Cent Rep       Date:  1992 Nov-Dec       Impact factor: 2.683

2.  The Tuskegee Study of Untreated Syphilis and public perceptions of biomedical research: a focus group study.

Authors:  Benjamin R Bates; Tina M Harris
Journal:  J Natl Med Assoc       Date:  2004-08       Impact factor: 1.798

3.  The legacy of Tuskegee and trust in medical care: is Tuskegee responsible for race differences in mistrust of medical care?

Authors:  Dwayne T Brandon; Lydia A Isaac; Thomas A LaVeist
Journal:  J Natl Med Assoc       Date:  2005-07       Impact factor: 1.798

4.  The Tuskegee Legacy Project: willingness of minorities to participate in biomedical research.

Authors:  Ralph V Katz; S Steven Kegeles; Nancy R Kressin; B Lee Green; Min Qi Wang; Sherman A James; Stefanie Luise Russell; Cristina Claudio
Journal:  J Health Care Poor Underserved       Date:  2006-11

5.  Community research: partnership in black communities.

Authors:  J Hatch; N Moss; A Saran; L Presley-Cantrell; C Mallory
Journal:  Am J Prev Med       Date:  1993 Nov-Dec       Impact factor: 5.043

6.  Misinformation and misbeliefs in the Tuskegee Study of Untreated Syphilis fuel mistrust in the healthcare system.

Authors:  Robert M White
Journal:  J Natl Med Assoc       Date:  2005-11       Impact factor: 1.798

7.  African-American attitudes regarding cancer clinical trials and research studies: results from focus group methodology.

Authors:  B L Green; E E Partridge; M N Fouad; C Kohler; E F Crayton; L Alexander
Journal:  Ethn Dis       Date:  2000       Impact factor: 1.847

8.  The Tuskegee Syphilis Study, 1932 to 1972: implications for HIV education and AIDS risk education programs in the black community.

Authors:  S B Thomas; S C Quinn
Journal:  Am J Public Health       Date:  1991-11       Impact factor: 9.308

9.  Nuremberg and Tuskegee: lessons for contemporary American medicine.

Authors:  David M Pressel
Journal:  J Natl Med Assoc       Date:  2003-12       Impact factor: 1.798

Review 10.  Are racial and ethnic minorities less willing to participate in health research?

Authors:  David Wendler; Raynard Kington; Jennifer Madans; Gretchen Van Wye; Heidi Christ-Schmidt; Laura A Pratt; Otis W Brawley; Cary P Gross; Ezekiel Emanuel
Journal:  PLoS Med       Date:  2005-12-06       Impact factor: 11.069

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  17 in total

1.  Challenging assumptions about minority participation in US clinical research.

Authors:  Jill A Fisher; Corey A Kalbaugh
Journal:  Am J Public Health       Date:  2011-10-20       Impact factor: 9.308

2.  Redressing past wrongs: changing the common rule to increase minority voices in research.

Authors:  William C Rencher; Leslie E Wolf
Journal:  Am J Public Health       Date:  2013-10-17       Impact factor: 9.308

3.  Randomization is not associated with socio-economic and demographic factors in a multi-center clinical trial of children with sickle cell anemia.

Authors:  Dionna O Roberts; Brittany Covert; Mark J Rodeghier; Nagina Parmar; Michael R DeBaun; Alexis A Thompson; Robert I Liem
Journal:  Pediatr Blood Cancer       Date:  2014-04-22       Impact factor: 3.167

4.  Detailed knowledge of the Tuskegee syphilis study: who knows what? A framework for health promotion strategies.

Authors:  B Lee Green; Lin Li; J Fontain Morris; Rima Gluzman; Jenna L Davis; Min Qi Wang; Ralph V Katz
Journal:  Health Educ Behav       Date:  2011-04-11

5.  Consent for autopsy research for unexpected death in early life.

Authors:  Hein J Odendaal; Amy Elliott; Hannah C Kinney; Melanie Human; Donna Gaspar; Derek Petersen; Brad Randall; Johan Dempers
Journal:  Obstet Gynecol       Date:  2011-01       Impact factor: 7.661

6.  Impact of Race Versus Education and Race Versus Income on Patients' Motivation to Participate in Clinical Trials.

Authors:  Anita Kurt; Hope Kincaid; Lauren Semler; Jeanne L Jacoby; Melanie B Johnson; Beth A Careyva; Brian Stello; Timothy Friel; John C Smulian; Mark C Knouse
Journal:  J Racial Ethn Health Disparities       Date:  2017-12-26

7.  Clinical trial awareness among racial/ethnic minorities in HINTS 2007: sociodemographic, attitudinal, and knowledge correlates.

Authors:  Aisha Langford; Ken Resnicow; Lawrence An
Journal:  J Health Commun       Date:  2010

8.  Identifying the "vulnerables" in biomedical research: the vox populis from the Tuskegee Legacy Project.

Authors:  Christopher T Chiu; Ralph V Katz
Journal:  J Public Health Dent       Date:  2011       Impact factor: 1.821

9.  Influence of scary beliefs about the Tuskegee Syphilis Study on willingness to participate in research.

Authors:  Jenna L Davis; B Lee Green; Ralph V Katz
Journal:  ABNF J       Date:  2012

10.  Identifying the Tuskegee Syphilis Study: implications of results from recall and recognition questions.

Authors:  Ralph V Katz; Germain Jean-Charles; B Lee Green; Nancy R Kressin; Cristina Claudio; Minqi Wang; Stefanie L Russell; Jason Outlaw
Journal:  BMC Public Health       Date:  2009-12-16       Impact factor: 3.295

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