Literature DB >> 19357952

Odyssey of hope: a physician's guide to communicating with brain tumor patients across the continuum of care.

Mark L Rosenblum1, Steven Kalkanis, Wendy Goldberg, Jack Rock, Tom Mikkelsen, Sandra Remer, Sarah Whitehouse, David Nerenz.   

Abstract

The optimal treatment of a patient with a malignant brain tumor requires attention to the physical and emotional well-being of the affected individual and the family. We review the concept of hope as a critical support modality throughout the continuum of care for brain tumor patients and families. We offer suggestions based on our own observations over 17 years as well as the lessons taught to us by our patients and their families over that time and through a structured interview process.

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Year:  2009        PMID: 19357952     DOI: 10.1007/s11060-009-9828-1

Source DB:  PubMed          Journal:  J Neurooncol        ISSN: 0167-594X            Impact factor:   4.130


  27 in total

Review 1.  Psychosocial and supportive-care needs in high-grade glioma.

Authors:  Susan Catt; Anthony Chalmers; Lesley Fallowfield
Journal:  Lancet Oncol       Date:  2008-09       Impact factor: 41.316

2.  Cancer patients' information needs and information seeking behaviour: in depth interview study.

Authors:  G M Leydon; M Boulton; C Moynihan; A Jones; J Mossman; M Boudioni; K McPherson
Journal:  BMJ       Date:  2000-04-01

3.  On the nature of effective hope.

Authors:  M T Orne
Journal:  Int J Psychiatry       Date:  1968-05

4.  Use of alternative health care by family practice patients.

Authors:  N C Elder; A Gillcrist; R Minz
Journal:  Arch Fam Med       Date:  1997 Mar-Apr

5.  Hope in advanced cancer patients.

Authors:  Susan E McClement; Harvey Max Chochinov
Journal:  Eur J Cancer       Date:  2008-03-21       Impact factor: 9.162

Review 6.  The challenges of long-term treatment outcomes in adults with malignant gliomas.

Authors:  Sandra Remer; Mary E Murphy
Journal:  Clin J Oncol Nurs       Date:  2004-08       Impact factor: 1.027

7.  Communication between physicians and cancer patients about complementary and alternative medicine: exploring patients' perspectives.

Authors:  Katsuya Tasaki; Gertraud Maskarinec; Dianne M Shumay; Yvonne Tatsumura; Hisako Kakai
Journal:  Psychooncology       Date:  2002 May-Jun       Impact factor: 3.894

Review 8.  Ongoing transitions: the impact of a malignant brain tumour on patient and family.

Authors:  Yasmin Khalili
Journal:  Axone       Date:  2007

9.  The creation of protection and hope in patients with malignant brain tumours.

Authors:  P Salander; T Bergenheim; R Henriksson
Journal:  Soc Sci Med       Date:  1996-04       Impact factor: 4.634

10.  Relationship between three palliative care outcome scales.

Authors:  Irene J Higginson; Nora Donaldson
Journal:  Health Qual Life Outcomes       Date:  2004-11-29       Impact factor: 3.186

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  8 in total

1.  A qualitative assessment of the supportive care and resource needs of patients undergoing craniotomy for benign brain tumours.

Authors:  Janice Wong; Daniel Mendelsohn; Joyce Nyhof-Young; Mark Bernstein
Journal:  Support Care Cancer       Date:  2010-10-27       Impact factor: 3.603

2.  Care and support needs of patients and carers early post-discharge following treatment for non-malignant brain tumour: establishing a new reality.

Authors:  Petrea Cornwell; Bronwyn Dicks; Jennifer Fleming; Terry P Haines; Sarah Olson
Journal:  Support Care Cancer       Date:  2012-10       Impact factor: 3.603

Review 3.  Through the patient's eyes: the value of a comprehensive brain tumor center.

Authors:  Adam M Robin; Tobias Walbert; Tom Mikkelsen; Steven N Kalkanis; Jack Rock; Ian Lee; Mark L Rosenblum
Journal:  J Neurooncol       Date:  2014-07-16       Impact factor: 4.130

4.  Prognostic awareness and communication preferences among caregivers of patients with malignant glioma.

Authors:  A J Applebaum; K Buda; M Kryza-Lacombe; J J Buthorn; R Walker; K M Shaffer; T A D'Agostino; E L Diamond
Journal:  Psychooncology       Date:  2017-12-19       Impact factor: 3.894

Review 5.  Prognostic awareness and communication of prognostic information in malignant glioma: a systematic review.

Authors:  Eli L Diamond; Geoffrey W Corner; Antonio De Rosa; William Breitbart; Allison J Applebaum
Journal:  J Neurooncol       Date:  2014-05-30       Impact factor: 4.130

6.  Prognostic awareness, prognostic communication, and cognitive function in patients with malignant glioma.

Authors:  Eli L Diamond; Holly G Prigerson; Denise C Correa; Anne Reiner; Katherine Panageas; Maria Kryza-Lacombe; Justin Buthorn; Elizabeth C Neil; Alex M Miller; Lisa M DeAngelis; Allison J Applebaum
Journal:  Neuro Oncol       Date:  2017-10-19       Impact factor: 12.300

Review 7.  Existential well-being and meaning making in the context of primary brain tumor: conceptualization and implications for intervention.

Authors:  Tamara Ownsworth; Kimberley Nash
Journal:  Front Oncol       Date:  2015-04-27       Impact factor: 6.244

8.  "Do I want to know it all?" A qualitative study of glioma patients' perspectives on receiving information about their diagnosis and prognosis.

Authors:  Annika Malmström; Lisa Åkesson; Peter Milos; Munila Mudaisi; Helena Bruhn; Michael Strandeus; Marit Karlsson
Journal:  Support Care Cancer       Date:  2020-10-30       Impact factor: 3.603

  8 in total

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