Literature DB >> 19353910

Semantic, pedantic or paradigm shift? Recruitment, retention and property in modern population biobanking.

Shawn H E Harmon1.   

Abstract

Evolving uses of human biological material, including their collection and retention in biobanks and their distribution to diverse projects, are sites of great tension from the human rights perspective. In the medical-legal setting, these rights are often protected and realised through consent practices. In the biobank setting, there endures a widely shared concern over consent, and the many divergent ways it is fashioned and deployed. This article reconsiders consent in the biobank setting, first, addressing the theoretical foundation of consent and its deployment in the broader medical context, second, examining the nature of biobanks and the uncomfortable position of consent therein, and finally, offering a means of approaching recruitment and retention in the biobank setting which is sensitive to originator interests, including human dignity, doing so within the rubric of a property model.

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Year:  2009        PMID: 19353910     DOI: 10.1163/157180909x400213

Source DB:  PubMed          Journal:  Eur J Health Law        ISSN: 0929-0273


  5 in total

Review 1.  Development and progress of Ireland's biobank network: Ethical, legal, and social implications (ELSI), standardized documentation, sample and data release, and international perspective.

Authors:  Blanaid Mee; Eoin Gaffney; Sharon A Glynn; Simona Donatello; Paul Carroll; Elizabeth Connolly; Sarah Mc Garrigle; Terry Boyle; Delia Flannery; Francis J Sullivan; Paul McCormick; Mairead Griffin; Cian Muldoon; Joanna Fay; Tony O'Grady; Elaine Kay; Joe Eustace; Louise Burke; Asim A Sheikh; Stephen Finn; Richard Flavin; Francis J Giles
Journal:  Biopreserv Biobank       Date:  2013-02       Impact factor: 2.300

2.  Scientists' perspectives on consent in the context of biobanking research.

Authors:  Zubin Master; Lisa Campo-Engelstein; Timothy Caulfield
Journal:  Eur J Hum Genet       Date:  2014-07-30       Impact factor: 4.246

3.  Incorporating exclusion clauses into informed consent for biobanking.

Authors:  Zubin Master; David B Resnik
Journal:  Camb Q Healthc Ethics       Date:  2013-04       Impact factor: 1.284

Review 4.  Stem cell preservation for regenerative therapies: ethical and governance considerations for the health care sector.

Authors:  Zubin Master; Aidan P Crowley; Cambray Smith; Dennis Wigle; Andre Terzic; Richard R Sharp
Journal:  NPJ Regen Med       Date:  2020-12-01

Review 5.  Biobanking and risk assessment: a comprehensive typology of risks for an adaptive risk governance.

Authors:  Kaya Akyüz; Gauthier Chassang; Melanie Goisauf; Łukasz Kozera; Signe Mezinska; Olga Tzortzatou; Michaela Th Mayrhofer
Journal:  Life Sci Soc Policy       Date:  2021-12-13
  5 in total

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