Literature DB >> 19345916

Participation of adolescent girls in a study of sexual behaviors: balancing autonomy and parental involvement.

Mary B Short1, Constance Wiemann, Susan L Rosenthal.   

Abstract

STUDY
OBJECTIVE: The process of research with adolescents should balance parental involvement and adolescent autonomy. The attendance of parents and peers at research study visits of girls participating in a 6-month study of topical microbicide acceptability is described, as well as the participants' conversations with their parents.
METHODS: Girls, 14 through 21 years, were recruited from previous studies (3%), advertisements (14%), clinics (17%), and recommendations by friends (66%) to participate. Girls under 18 years were required to have parental consent, but parents could provide verbal phone consent as long as a signed consent form was returned before participation.
RESULTS: The 208 participants were 41% African-American, 30% Hispanic, and 29% Caucasian. Girls averaged 18 years of age, and 95 (46%) were under 18. Seventeen percent of parents attended the first visit; only 1 parent attended with a daughter older than 18 years of age. The mothers of older adolescents were less likely to attend the appointment with them. More Caucasian than African-American girls came with a mother. Parental attendance decreased at follow-up visits. Thirty-seven percent of girls brought a peer to the first visit; there were no age or race/ethnic differences. There was no relationship between attending with a parent or peer and talking to a parent about the study. Some adolescents obtained parental consent to participate in the study while keeping their sexual behaviors private.
CONCLUSIONS: Parental attendance at study visits may not be marker of parental involvement with the study. Creative ways for balancing concerns about confidentiality, promotion of autonomy, and adult involvement should be considered.

Entities:  

Mesh:

Year:  2009        PMID: 19345916      PMCID: PMC2710033          DOI: 10.1016/j.jpag.2007.12.005

Source DB:  PubMed          Journal:  J Pediatr Adolesc Gynecol        ISSN: 1083-3188            Impact factor:   1.814


  12 in total

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5.  Comparisons of adolescent and parent willingness to participate in minimal and above-minimal risk pediatric asthma research protocols.

Authors:  Janet L Brody; Robert D Annett; David G Scherer; Mandy L Perryman; Keely M W Cofrin
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6.  STI research: recruiting an unbiased sample.

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7.  Adolescent girls' communication with "mothers" about topical microbicides.

Authors:  Punita K Sunder; Stephanie Ramos; Mary B Short; Susan L Rosenthal
Journal:  J Pediatr Adolesc Gynecol       Date:  2006-12       Impact factor: 1.814

8.  Hepatitis B vaccine acceptance among adolescents and their parents.

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9.  Informed consent for enrolling minors in genetic susceptibility research: a qualitative study of at-risk children's and parents' views about children's role in decision-making.

Authors:  Gail Geller; Ellen S Tambor; Barbara A Bernhardt; Gertrude Fraser; Lawrence S Wissow
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  4 in total

1.  Adolescent and Parent Perceptions about Participation in Biomedical Sexual Health Trials.

Authors:  Sara E Landers; Jenny K R Francis; Marilyn C Morris; Christine Mauro; Susan L Rosenthal
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Review 2.  Research on adolescents and microbicides: a review.

Authors:  Amanda E Tanner; Mary B Short; Gregory D Zimet; Susan L Rosenthal
Journal:  J Pediatr Adolesc Gynecol       Date:  2009-07-17       Impact factor: 1.814

3.  Adolescents and Their Parents Differ on Descriptions of a Reproductive Health Study.

Authors:  Jenny K R Francis; Lily F Hoffman; Mei-Chen Hu; Ariel M de Roche; Marina Catallozzi; Carmen Radecki Breitkopf; Susan L Rosenthal
Journal:  J Pediatr Adolesc Gynecol       Date:  2015-09-25       Impact factor: 1.814

4.  Parents' and Adolescents' Attitudes about Parental Involvement in Clinical Research.

Authors:  Susan L Rosenthal; Ariel M de Roche; Marina Catallozzi; Carmen Radecki Breitkopf; Lisa S Ipp; Jane Chang; Jenny K R Francis; Mei-Chen Hu
Journal:  J Pediatr Adolesc Gynecol       Date:  2016-01-25       Impact factor: 1.814

  4 in total

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