Literature DB >> 19170092

Moving up the slippery slope: mandated genetic screening on Cyprus.

Ruth Schwartz Cowan1.   

Abstract

Many social scientists and bioethicists have argued that genetic screening is a new form of eugenics. Examination of the development of the quasi-mandated screening program for beta-thalassemia in the Republic of Cyprus (1970-1984) demonstrates that there is nothing eugenic about modern genetic screening practices. The Cypriot screening program involves mandated premarital carrier screening, voluntary prenatal diagnosis (originally through fetoscopy, now through CVS), and voluntary termination of afflicted pregnancies-all at public expense. In the Republic of Cyprus, the mandating agency for genetic screening is the established church, so this examination also demonstrates that religious authorities with profound objections to abortion can balance that moral precept against others, such as the imperative to reduce suffering that sometimes conflict with it. (c) 2009 Wiley-Liss, Inc.

Entities:  

Mesh:

Year:  2009        PMID: 19170092     DOI: 10.1002/ajmg.c.30202

Source DB:  PubMed          Journal:  Am J Med Genet C Semin Med Genet        ISSN: 1552-4868            Impact factor:   3.908


  9 in total

1.  Debating clinical utility.

Authors:  Wylie Burke; A-M Laberge; N Press
Journal:  Public Health Genomics       Date:  2010-04-15       Impact factor: 2.000

Review 2.  Carrier screening for beta-thalassaemia: a review of international practice.

Authors:  Nicole E Cousens; Clara L Gaff; Sylvia A Metcalfe; Martin B Delatycki
Journal:  Eur J Hum Genet       Date:  2010-06-23       Impact factor: 4.246

3.  Prevention of sickle cell disease: observations on females with the sickle cell trait from the Manchester project, Jamaica.

Authors:  Karlene Mason; Felicea Gibson; Ruth-Ann Gardner; Beryl Serjeant; Graham R Serjeant
Journal:  J Community Genet       Date:  2015-12-02

4.  At-risk marriages after compulsory premarital testing and counseling for β-thalassemia and sickle cell disease in Saudi Arabia, 2005-2006.

Authors:  Fahad M Alswaidi; Ziad A Memish; Sarah J O'Brien; Nasser A Al-Hamdan; Faisal M Al-Enzy; Osamah A Alhayani; Ali M Al-Wadey
Journal:  J Genet Couns       Date:  2011-08-09       Impact factor: 2.537

5.  From "Personalized" to "Precision" Medicine: The Ethical and Social Implications of Rhetorical Reform in Genomic Medicine.

Authors:  Eric Juengst; Michelle L McGowan; Jennifer R Fishman; Richard A Settersten
Journal:  Hastings Cent Rep       Date:  2016-09       Impact factor: 2.683

Review 6.  Societal implications of expanded universal carrier screening: a scoping review.

Authors:  Lieke M van den Heuvel; Nina van den Berg; A Cecile J W Janssens; Erwin Birnie; Lidewij Henneman; Wybo J Dondorp; Mirjam Plantinga; Irene M van Langen
Journal:  Eur J Hum Genet       Date:  2022-09-12       Impact factor: 5.351

7.  After the revolution? Ethical and social challenges in 'personalized genomic medicine'

Authors:  Eric T Juengst; Richard A Settersten; Jennifer R Fishman; Michelle L McGowan
Journal:  Per Med       Date:  2012-06-01       Impact factor: 2.512

8.  Is there a moral obligation to conceive children under the best possible conditions? A preliminary framework for identifying the preconception responsibilities of potential parents.

Authors:  Pieter Bonte; Guido Pennings; Sigrid Sterckx
Journal:  BMC Med Ethics       Date:  2014-01-22       Impact factor: 2.652

Review 9.  Ethical issues in managing Lysosomal storage disorders in children in low and middle income countries.

Authors:  Bushra Afroze; Nick Brown
Journal:  Pak J Med Sci       Date:  2017 Jul-Aug       Impact factor: 1.088

  9 in total

北京卡尤迪生物科技股份有限公司 © 2022-2023.