Literature DB >> 19152154

Going home to get on with life: patients and carers experiences of being discharged from hospital following a stroke.

C Ellis-Hill1, J Robison, R Wiles, K McPherson, D Hyndman, A Ashburn.   

Abstract

PURPOSE: In this paper we aim to develop the understanding of what constitutes a 'good' or 'poor' experience in relation to the transition from hospital to home following a stroke.
METHOD: Semi-structured interviews were carried out with 20 people and 13 carers within one month of being discharged from hospital following a stroke. Interviews covered views of mobility recovery and support from therapy and services. Interviews were transcribed verbatim, coded and analysed in depth in order to explore the discharge process.
RESULTS: Participants described models of recovery, which involved a sense of momentum and getting on with their life. Discharge was successful if: (i) This sense of momentum was maintained, (ii) they felt supported, and (iii) they felt informed about what was happening. Discharge was seen as difficult when: (a) Momentum was perceived to be lost, (b) people did not feel supported, or (c) they felt in the dark about the plans or their recovery.
CONCLUSIONS: The discharge experience could be improved by healthcare professionals understanding and exploring patients' individual models of recovery. This would allow professionals to: (a) Access patients concerns, (b) develop programmes addressing these, (c) correct misinterpretations, (d) keep people fully informed, and (e) share and validate the experience, to reduce their sense of isolation.

Entities:  

Mesh:

Year:  2009        PMID: 19152154     DOI: 10.1080/09638280701775289

Source DB:  PubMed          Journal:  Disabil Rehabil        ISSN: 0963-8288            Impact factor:   3.033


  19 in total

Review 1.  Needs of Stroke Survivors as Perceived by Their Caregivers: A Scoping Review.

Authors:  Shilpa Krishnan; Monique R Pappadis; Susan C Weller; Marsja Stearnes; Amit Kumar; Kenneth J Ottenbacher; Timothy A Reistetter
Journal:  Am J Phys Med Rehabil       Date:  2017-07       Impact factor: 2.159

Review 2.  Defining and measuring patient-centred care: an example from a mixed-methods systematic review of the stroke literature.

Authors:  Maggie Lawrence; Sue Kinn
Journal:  Health Expect       Date:  2011-05-30       Impact factor: 3.377

Review 3.  A systematic review of the qualitative literature on older individuals' experiences of care and well-being during physical rehabilitation for acquired brain injury.

Authors:  Panagiota Lafiatoglou; Caroline Ellis-Hill; Mary Gouva; Avraam Ploumis; Stefanos Mantzoukas
Journal:  J Adv Nurs       Date:  2021-08-16       Impact factor: 3.057

4.  Unfulfilled rehabilitation needs and dissatisfaction with care 12 months after a stroke: an explorative observational study.

Authors:  Malin Tistad; Kerstin Tham; Lena von Koch; Charlotte Ytterberg
Journal:  BMC Neurol       Date:  2012-06-18       Impact factor: 2.474

Review 5.  The patient's experience of the psychosocial process that influences identity following stroke rehabilitation: a metaethnography.

Authors:  E Hole; B Stubbs; C Roskell; A Soundy
Journal:  ScientificWorldJournal       Date:  2014-01-28

6.  What aspects of rehabilitation provision contribute to self-reported met needs for rehabilitation one year after stroke--amount, place, operator or timing?

Authors:  Malin Tistad; Lena von Koch; Christina Sjöstrand; Kerstin Tham; Charlotte Ytterberg
Journal:  Health Expect       Date:  2013-06-25       Impact factor: 3.377

7.  Starting early: integration of self-management support into an acute stroke service.

Authors:  Petra Mäkelä; Sara Gawned; Fiona Jones
Journal:  BMJ Qual Improv Rep       Date:  2014-10-01

8.  Implementing a training intervention to support caregivers after stroke: a process evaluation examining the initiation and embedding of programme change.

Authors:  David James Clarke; Mary Godfrey; Rebecca Hawkins; Euan Sadler; Geoffrey Harding; Anne Forster; Christopher McKevitt; Josie Dickerson; Amanda Farrin
Journal:  Implement Sci       Date:  2013-08-23       Impact factor: 7.327

9.  From dictatorship to a reluctant democracy: stroke therapists talking about self-management.

Authors:  Meriel Norris; Cherry Kilbride
Journal:  Disabil Rehabil       Date:  2013-04-17       Impact factor: 3.033

10.  Introducing structured caregiver training in stroke care: findings from the TRACS process evaluation study.

Authors:  David J Clarke; R Hawkins; E Sadler; G Harding; C McKevitt; M Godfrey; J Dickerson; A J Farrin; L Kalra; D Smithard; A Forster
Journal:  BMJ Open       Date:  2014-04-15       Impact factor: 2.692

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