Literature DB >> 19122128

Family caregivers and guilt in the context of cancer care.

Rachel L Spillers1, David K Wellisch, Youngmee Kim, B Alex Matthews, Frank Baker.   

Abstract

BACKGROUND: Guilt as a key emotional phenomenon in the cancer-caregiving experience is an understudied issue.
OBJECTIVE: The purpose of this study is to identify demographic characteristics of cancer caregivers and care-related stress factors that are associated with their feelings of caregiver guilt, as well as to explore the effect of caregiver guilt on their adjustment outcomes.
METHOD: A total of 739 caregivers of cancer survivors completed a survey (66.7% response rate), of which 635 provided complete data for the measures in this study.
RESULTS: Hierarchical regression analyses revealed that certain caregiver demographics (i.e., younger age, adult offspring, employed) and care-related stress factors (i.e., greater impact on schedule, less perceived caregiving competence, poorer overall health of the care-recipient) were significantly related to caregiver guilt. Higher levels of psychological distress and poorer mental, social, and physical functioning were significantly associated with caregiver guilt, above and beyond the variance accounted for by the covariates.
CONCLUSION: Results suggest that caregiver guilt compromises the psychosocial and somatic adjustment of cancer caregivers. Guilt may be a cardinal feature of the caregiving experience, and to fully understand the implications of this complex phenomenon, more research is needed.

Entities:  

Mesh:

Year:  2008        PMID: 19122128     DOI: 10.1176/appi.psy.49.6.511

Source DB:  PubMed          Journal:  Psychosomatics        ISSN: 0033-3182            Impact factor:   2.386


  19 in total

Review 1.  The cancer family caregiving experience: an updated and expanded conceptual model.

Authors:  Barbara Swore Fletcher; Christine Miaskowski; Barbara Given; Karen Schumacher
Journal:  Eur J Oncol Nurs       Date:  2011-10-14       Impact factor: 2.398

2.  Differences within Differences: Gender Inequalities in Caregiving Intensity Vary by Race and Ethnicity in Informal Caregivers.

Authors:  Steven A Cohen; Natalie J Sabik; Sarah K Cook; Ariana B Azzoli; Carolyn A Mendez-Luck
Journal:  J Cross Cult Gerontol       Date:  2019-09

3.  Family caregiver burden, skills preparedness, and quality of life in non-small cell lung cancer.

Authors:  Marcia Grant; Virginia Sun; Rebecca Fujinami; Rupinder Sidhu; Shirley Otis-Green; Gloria Juarez; Linda Klein; Betty Ferrell
Journal:  Oncol Nurs Forum       Date:  2013-07       Impact factor: 2.172

4.  Distress among caregivers of phase I trial participants: a cross-sectional study.

Authors:  Elizabeth R Kessler; Angela Moss; S Gail Eckhardt; Mark L Laudenslager; Kristin Kilbourn; Iris B Mauss; Daniel W Bowles; Sharon Hecker; Diane L Fairclough; Jean S Kutner
Journal:  Support Care Cancer       Date:  2014-08-15       Impact factor: 3.603

5.  How Much Care is Enough? Carer's Guilt and Bergsonian Time.

Authors:  Will Johncock
Journal:  Health Care Anal       Date:  2018-03

6.  Caring for the person with cancer and the role of digital technology in supporting carers.

Authors:  Natalie Heynsbergh; Mari Botti; Leila Heckel; Patricia M Livingston
Journal:  Support Care Cancer       Date:  2018-10-11       Impact factor: 3.603

7.  Psychosocial aspects of caregiving: perceptions of cancer patients and family caregivers.

Authors:  Teresa L Deshields; Anne Rihanek; Patricia Potter; Qin Zhang; Marilee Kuhrik; Nancy Kuhrik; Joann O'Neill
Journal:  Support Care Cancer       Date:  2011-02-06       Impact factor: 3.603

Review 8.  Application of psychological theories on the role of gender in caregiving to psycho-oncology research.

Authors:  Youngmee Kim; Hannah-Rose Mitchell; Amanda Ting
Journal:  Psychooncology       Date:  2018-12-27       Impact factor: 3.894

9.  Impact of informal cancer caregiving across the cancer experience: A systematic literature review of quality of life.

Authors:  Carol Y Ochoa; Natasha Buchanan Lunsford; Judith Lee Smith
Journal:  Palliat Support Care       Date:  2020-04

10.  Web-based self-help intervention for partners of cancer patients based on acceptance and commitment therapy and self-compassion training: a randomized controlled trial with automated versus personal feedback.

Authors:  Nadine Köhle; Constance H C Drossaert; Peter M Ten Klooster; Karlein M G Schreurs; Mariët Hagedoorn; Cornelia F Van Uden-Kraan; Irma M Verdonck-de Leeuw; Ernst T Bohlmeijer
Journal:  Support Care Cancer       Date:  2021-02-19       Impact factor: 3.603

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