OBJECTIVE: To identify decisional needs of women, their partners and health professionals regarding prenatal testing for Down syndrome through a systematic review. METHODS: Articles reporting original data from real clinical situations on sources of difficulty and/or ease in making decisions regarding prenatal testing for Down syndrome were selected. Data were extracted using a taxonomy adapted from the Ottawa Decision-Support Framework and the quality of the studies was assessed using Qualsyst validated tools. RESULTS: In all 40 publications covering 32 unique studies were included. The majority concerned women. The most often reported sources of difficulty for decision-making in women were pressure from others, emotions and lack of information; in partners, emotion; in health professionals, lack of information, length of consultation, and personal values. The most important sources of ease were, in women, personal values, understanding and confidence in the medical system; in partners, personal values, information from external sources, and income; in health professionals, peer support and scientific meetings. CONCLUSION: Interventions regarding a decision about prenatal testing for Down syndrome should address many decisional needs, which may indeed vary among the parties involved, whether women, their partners or health professionals. Very little is known about the decisional needs of partners and health professionals.
OBJECTIVE: To identify decisional needs of women, their partners and health professionals regarding prenatal testing for Down syndrome through a systematic review. METHODS: Articles reporting original data from real clinical situations on sources of difficulty and/or ease in making decisions regarding prenatal testing for Down syndrome were selected. Data were extracted using a taxonomy adapted from the Ottawa Decision-Support Framework and the quality of the studies was assessed using Qualsyst validated tools. RESULTS: In all 40 publications covering 32 unique studies were included. The majority concerned women. The most often reported sources of difficulty for decision-making in women were pressure from others, emotions and lack of information; in partners, emotion; in health professionals, lack of information, length of consultation, and personal values. The most important sources of ease were, in women, personal values, understanding and confidence in the medical system; in partners, personal values, information from external sources, and income; in health professionals, peer support and scientific meetings. CONCLUSION: Interventions regarding a decision about prenatal testing for Down syndrome should address many decisional needs, which may indeed vary among the parties involved, whether women, their partners or health professionals. Very little is known about the decisional needs of partners and health professionals.
Authors: Regina Nuccio; S Shahrukh Hashmi; Joan Mastrobattista; Sarah Jane Noblin; Jerrie Refuerzo; Janice L Smith; Claire N Singletary Journal: J Genet Couns Date: 2014-09-17 Impact factor: 2.537
Authors: Agathe Delanoë; Johanie Lépine; Maria Esther Leiva Portocarrero; Hubert Robitaille; Stéphane Turcotte; Isabelle Lévesque; Brenda J Wilson; Anik M C Giguère; France Légaré Journal: BMC Res Notes Date: 2016-07-11
Authors: Agathe Delanoë; Johanie Lépine; Stéphane Turcotte; Maria Esther Leiva Portocarrero; Hubert Robitaille; Anik Mc Giguère; Brenda J Wilson; Holly O Witteman; Isabelle Lévesque; Laurence Guillaumie; France Légaré Journal: J Med Internet Res Date: 2016-10-28 Impact factor: 5.428