Literature DB >> 19092438

Legal update: living with the Genetic Information Nondiscrimination Act.

Cheryl Erwin1.   

Abstract

The Genetic Information Nondiscrimination Act of 2008 promises to make genetic discrimination illegal in the contexts of employment and health insurance. The promises of the law may be difficult to fully deliver. This article will examine some of the more important provisions that offer protection against genetic discrimination and the major shortcomings of the legislation. It concludes that the Genetic Information Nondiscrimination Act is an important piece of civil rights legislation, but it is not fully protective of individuals who are worried about genetic discrimination in employment or insurance.

Entities:  

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Year:  2008        PMID： 19092438      PMCID： PMC3627538          DOI： 10.1097/GIM.0b013e31818ca4e7

Source DB:  PubMed          Journal:  Genet Med        ISSN： 1098-3600            Impact factor:   8.822


  12 in total

1.  The (un)reasonableness of reporting: antecedents and consequences of reporting sexual harassment.

Authors:  Mindy E Bergman; Regina Day Langhout; Patrick A Palmieri; Lilia M Cortina; Louise F Fitzgerald
Journal:  J Appl Psychol       Date:  2002-04

2.  Discrimination as a consequence of genetic testing.

Authors:  P R Billings; M A Kohn; M de Cuevas; J Beckwith; J S Alper; M R Natowicz
Journal:  Am J Hum Genet       Date:  1992-03       Impact factor: 11.025

3.  Genotype discrimination: the complex case for some legislative protection.

Authors:  H T Greely
Journal:  Univ PA Law Rev       Date:  2001-05

4.  Experiences of discrimination: validity and reliability of a self-report measure for population health research on racism and health.

Authors:  Nancy Krieger; Kevin Smith; Deepa Naishadham; Cathy Hartman; Elizabeth M Barbeau
Journal:  Soc Sci Med       Date:  2005-04-21       Impact factor: 4.634

Review 5.  Identifying genetic risk factors for serious adverse drug reactions: current progress and challenges.

Authors:  Russell A Wilke; Debbie W Lin; Dan M Roden; Paul B Watkins; David Flockhart; Issam Zineh; Kathleen M Giacomini; Ronald M Krauss
Journal:  Nat Rev Drug Discov       Date:  2007-11       Impact factor: 84.694

6.  Keeping pace with the times--the Genetic Information Nondiscrimination Act of 2008.

Authors:  Kathy L Hudson; M K Holohan; Francis S Collins
Journal:  N Engl J Med       Date:  2008-06-19       Impact factor: 91.245

7.  Access to health insurance: experiences and attitudes of those with genetic versus non-genetic medical conditions.

Authors:  Nancy E Kass; Amy M Medley; Marvin R Natowicz; Sara Chandros Hull; Ruth R Faden; Laura Plantinga; Lawrence O Gostin
Journal:  Am J Med Genet A       Date:  2007-04-01       Impact factor: 2.802

Review 8.  Pharmacogenetics and the practice of medicine.

Authors:  A D Roses
Journal:  Nature       Date:  2000-06-15       Impact factor: 49.962

9.  Perceptions of discrimination among persons who have undergone predictive testing for Huntington's disease.

Authors:  Elizabeth Penziner; Janet K Williams; Cheryl Erwin; Yvonne Bombard; Anne Wallis; Leigh J Beglinger; Michael R Hayden; Jane S Paulsen
Journal:  Am J Med Genet B Neuropsychiatr Genet       Date:  2008-04-05       Impact factor: 3.568

10.  Genetic determinants of response to warfarin during initial anticoagulation.

Authors:  Ute I Schwarz; Marylyn D Ritchie; Yuki Bradford; Chun Li; Scott M Dudek; Amy Frye-Anderson; Richard B Kim; Dan M Roden; C Michael Stein
Journal:  N Engl J Med       Date:  2008-03-06       Impact factor: 91.245
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  8 in total

1.  Huntington disease: families' experiences of healthcare services.

Authors:  Heather Skirton; Janet K Williams; J Jackson Barnette; Jane S Paulsen
Journal:  J Adv Nurs       Date:  2010-03       Impact factor: 3.187

2.  Personal genomes, participatory genomics and the anonymity-privacy conundrum.

Authors:  Vinod Scaria
Journal:  J Genet       Date:  2014-12       Impact factor: 1.166

3.  Health Information Privacy Laws in the Digital Age: HIPAA Doesn't Apply.

Authors:  Kim Theodos; Scott Sittig
Journal:  Perspect Health Inf Manag       Date:  2020-12-07

4.  Ethics in prion disease.

Authors:  Kendra Bechtel; Michael D Geschwind
Journal:  Prog Neurobiol       Date:  2013-07-29       Impact factor: 11.685

5.  Perception, experience, and response to genetic discrimination in Huntington disease: the international RESPOND-HD study.

Authors:  Cheryl Erwin; Janet K Williams; Andrew R Juhl; Michelle Mengeling; James A Mills; Yvonne Bombard; Michael R Hayden; Kimberly Quaid; Ira Shoulson; Sandra Taylor; Jane S Paulsen
Journal:  Am J Med Genet B Neuropsychiatr Genet       Date:  2010-07       Impact factor: 3.568

6.  Personalized medicine and genomics: challenges and opportunities in assessing effectiveness, cost-effectiveness, and future research priorities.

Authors:  Rena Conti; David L Veenstra; Katrina Armstrong; Lawrence J Lesko; Scott D Grosse
Journal:  Med Decis Making       Date:  2010-01-04       Impact factor: 2.583

Review 7.  A review of quality of life after predictive testing for and earlier identification of neurodegenerative diseases.

Authors:  Jane S Paulsen; Martha Nance; Ji-In Kim; Noelle E Carlozzi; Peter K Panegyres; Cheryl Erwin; Anita Goh; Elizabeth McCusker; Janet K Williams
Journal:  Prog Neurobiol       Date:  2013-09-11       Impact factor: 11.685

8.  Keeping the GINA in the bottle: assessing the current need for genetic non-discrimination legislation in Canada.

Authors:  Daryl Pullman; Trudo Lemmens
Journal:  Open Med       Date:  2010-04-13
  8 in total

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