Literature DB >> 19023186

Developing stakeholder involvement for introducing public health genomics into public policy.

H Burton1, M Adams, R Bunton, P Schröder-Bäck.   

Abstract

Public health genomics (PHG) relies on developing knowledge from a variety of natural and social science research disciplines to shape public policies, health policy, education and training, and direct outreach to organisations and the population at large. All of these components rely on the involvement of stakeholders who, because of the diverse groups involved, will have a wide range of backgrounds. The significant challenges associated with the engagement of such a diverse range of stakeholders are compounded by the wide knowledge gaps that exist between scientists, the public, and different professional groups. In this paper we discuss some of the areas of public policy that might involve PHG, set out principles on the need for stakeholder involvement, and describe the range of potential stakeholders that need to be considered when working to incorporate PHG into new and existing policies. For specific projects in PHG, however, the question of who to involve and how must be addressed according to the work in question.
Copyright © 2008 S. Karger AG, Basel.

Entities:  

Mesh:

Year:  2008        PMID: 19023186     DOI: 10.1159/000153426

Source DB:  PubMed          Journal:  Public Health Genomics        ISSN: 1662-4246            Impact factor:   2.000


  16 in total

1.  Stakeholder participation in comparative effectiveness research: defining a framework for effective engagement.

Authors:  Patricia A Deverka; Danielle C Lavallee; Priyanka J Desai; Laura C Esmail; Scott D Ramsey; David L Veenstra; Sean R Tunis
Journal:  J Comp Eff Res       Date:  2012-03       Impact factor: 1.744

2.  Development and Evaluation of an Approach to Using Value of Information Analyses for Real-Time Prioritization Decisions Within SWOG, a Large Cancer Clinical Trials Cooperative Group.

Authors:  Caroline S Bennette; David L Veenstra; Anirban Basu; Laurence H Baker; Scott D Ramsey; Josh J Carlson
Journal:  Med Decis Making       Date:  2016-03-24       Impact factor: 2.583

3.  Consulting the community: public expectations and attitudes about genetics research.

Authors:  Holly Etchegary; Jane Green; Elizabeth Dicks; Daryl Pullman; Catherine Street; Patrick Parfrey
Journal:  Eur J Hum Genet       Date:  2013-04-17       Impact factor: 4.246

4.  A model for incorporating patient and stakeholder voices in a learning health care network: Washington State's Comparative Effectiveness Research Translation Network.

Authors:  Emily Beth Devine; Rafael Alfonso-Cristancho; Allison Devlin; Todd C Edwards; Ellen T Farrokhi; Larry Kessler; Danielle C Lavallee; Donald L Patrick; Sean D Sullivan; Peter Tarczy-Hornoch; N David Yanez; David R Flum
Journal:  J Clin Epidemiol       Date:  2013-08       Impact factor: 6.437

5.  The AutGO Initiative: A Conceptual Framework for Developing Genetics-Outcomes Research Hypotheses.

Authors:  Zohreh Talebizadeh; Ayten Shah
Journal:  Autism Res       Date:  2020-07-03       Impact factor: 5.216

Review 6.  The Evolution of Public Health Genomics: Exploring Its Past, Present, and Future.

Authors:  Caron M Molster; Faye L Bowman; Gemma A Bilkey; Angela S Cho; Belinda L Burns; Kristen J Nowak; Hugh J S Dawkins
Journal:  Front Public Health       Date:  2018-09-04

7.  Framework for developing a national surgical, obstetric and anaesthesia plan.

Authors:  K A Sonderman; I Citron; S Mukhopadhyay; K Albutt; K Taylor; D Jumbam; K R Iverson; M Nthele; A Bekele; E Rwamasirabo; S Maongezi; M L Steer; R Riviello; W Johnson; J G Meara
Journal:  BJS Open       Date:  2019-07-24

8.  Embedding implementation research to enhance health policy and systems: a multi-country analysis from ten settings in Latin America and the Caribbean.

Authors:  Etienne V Langlois; Arielle Mancuso; Vanessa Elias; Ludovic Reveiz
Journal:  Health Res Policy Syst       Date:  2019-10-15

9.  Stakeholder engagement in policy development: challenges and opportunities for human genomics.

Authors:  Amy A Lemke; Julie N Harris-Wai
Journal:  Genet Med       Date:  2015-03-12       Impact factor: 8.822

Review 10.  Stakeholder engagement: a key component of integrating genomic information into electronic health records.

Authors:  Andrea Hartzler; Catherine A McCarty; Luke V Rasmussen; Marc S Williams; Murray Brilliant; Erica A Bowton; Ellen Wright Clayton; William A Faucett; Kadija Ferryman; Julie R Field; Stephanie M Fullerton; Carol R Horowitz; Barbara A Koenig; Jennifer B McCormick; James D Ralston; Saskia C Sanderson; Maureen E Smith; Susan Brown Trinidad
Journal:  Genet Med       Date:  2013-09-12       Impact factor: 8.822

View more

北京卡尤迪生物科技股份有限公司 © 2022-2023.