Literature DB >> 19008431

Research ethics. Certificates of confidentiality and compelled disclosure of data.

Laura M Beskow1, Lauren Dame, E Jane Costello.   

Abstract

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Year:  2008        PMID： 19008431      PMCID： PMC2694567          DOI： 10.1126/science.1164100

Source DB:  PubMed          Journal:  Science        ISSN： 0036-8075            Impact factor:   47.728


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  6 in total

1.  Balancing privacy protections with efficient research: institutional review boards and the use of certificates of confidentiality.

Authors:  Peter M Currie
Journal:  IRB       Date:  2005 Sep-Oct

2.  Confidential review--or not?

Authors:  Donald Kennedy
Journal:  Science       Date:  2008-02-22       Impact factor: 47.728

3.  Peer review in the balance.

Authors:  Gregory D Curfman; Stephen Morrissey; George J Annas; Jeffrey M Drazen
Journal:  N Engl J Med       Date:  2008-05-22       Impact factor: 91.245

4.  Sleeping better at night: investigators' experiences with certificates of confidentiality.

Authors:  Leslie E Wolf; Jolanta Zandecki
Journal:  IRB       Date:  2006 Nov-Dec

5.  The Belmont Report. Ethical principles and guidelines for the protection of human subjects of research.

Authors: 
Journal:  J Am Coll Dent       Date:  2014

6.  Resolving individuals contributing trace amounts of DNA to highly complex mixtures using high-density SNP genotyping microarrays.

Authors:  Nils Homer; Szabolcs Szelinger; Margot Redman; David Duggan; Waibhav Tembe; Jill Muehling; John V Pearson; Dietrich A Stephan; Stanley F Nelson; David W Craig
Journal:  PLoS Genet       Date:  2008-08-29       Impact factor: 5.917
  6 in total
  19 in total

1.  Certificates of Confidentiality: Protecting Human Subject Research Data in Law and Practice.

Authors:  Leslie E Wolf; Mayank J Patel; Brett A Williams Tarver; Jeffrey L Austin; Lauren A Dame; Laura M Beskow
Journal:  J Law Med Ethics       Date:  2015       Impact factor: 1.718

Review 2.  Informed consent in genomics and genetic research.

Authors:  Amy L McGuire; Laura M Beskow
Journal:  Annu Rev Genomics Hum Genet       Date:  2010       Impact factor: 8.929

3.  Research Participants' Understanding of and Reactions to Certificates of Confidentiality.

Authors:  Laura M Beskow; Devon K Check; Natalie Ammarell
Journal:  AJOB Prim Res       Date:  2014-01-01

4.  Biobanking, consent, and certificates of confidentiality: does the ANPRM muddy the water?

Authors:  Brett A Williams; Leslie E Wolf
Journal:  J Law Med Ethics       Date:  2013       Impact factor: 1.718

5.  Ethnographic research in immigrant-specific drug abuse recovery houses.

Authors:  Anna Pagano; Juliet P Lee; Victor García; Carlos Recarte
Journal:  J Ethn Subst Abuse       Date:  2017-10-16       Impact factor: 1.507

6.  Institutional ethical review and ethnographic research involving injection drug users: a case study.

Authors:  Will Small; Lisa Maher; Thomas Kerr
Journal:  Soc Sci Med       Date:  2013-12-18       Impact factor: 4.634

7.  Assessing the privacy risks of data sharing in genomics.

Authors:  C Heeney; N Hawkins; J de Vries; P Boddington; J Kaye
Journal:  Public Health Genomics       Date:  2010-03-29       Impact factor: 2.000

Review 8.  Genome privacy: challenges, technical approaches to mitigate risk, and ethical considerations in the United States.

Authors:  Shuang Wang; Xiaoqian Jiang; Siddharth Singh; Rebecca Marmor; Luca Bonomi; Dov Fox; Michelle Dow; Lucila Ohno-Machado
Journal:  Ann N Y Acad Sci       Date:  2016-09-28       Impact factor: 5.691

9.  Planning for Long-Term Follow-Up: Strategies Learned from Longitudinal Studies.

Authors:  Karl G Hill; Danielle Woodward; Tiffany Woelfel; J David Hawkins; Sara Green
Journal:  Prev Sci       Date:  2016-10

10.  Certificates of confidentiality: legal counsels' experiences with and perspectives on legal demands for research data.

Authors:  Leslie E Wolf; Lauren A Dame; Mayank J Patel; Brett A Williams; Jefferey A Austin; Laura M Beskow
Journal:  J Empir Res Hum Res Ethics       Date:  2012-10       Impact factor: 1.742
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