Literature DB >> 1897258

Legal aspects of genetic information.

L B Andrews1.   

Abstract

The federally funded Human Genome Initiative will lead to the development of new capabilities to learn about an individual's genetic status. Legal issues are raised concerning patients' and other parties' access to that information. This article discusses the effect of existing statutes and case law on three pivotal questions: To what sort of information are people entitled? What control should people have over their genetic information? Do people have a right to refuse genetic information? The article emphasizes that the law protects a patient's right to obtain or refuse genetic information about oneself, as well as the right to control the dissemination of that information to others.

Entities:  

Keywords:  Genetics and Reproduction; Legal Approach

Mesh：

Year:  1991        PMID： 1897258      PMCID： PMC2589440     

Source DB:  PubMed          Journal:  Yale J Biol Med        ISSN： 0044-0086


  13 in total

1.  Death with dignity.

Authors: 
Journal:  Rec Assoc Bar City New York       Date:  1977-03

2.  Where in the world are we going with the new genetics?

Authors:  John C Fletcher
Journal:  J Contemp Health Law Policy       Date:  1989

3.  MATERNAL PHENYLKETONURIA. A CAUSE OF MENTAL RETARDATION IN CHILDREN WITHOUT THE METABOLIC DEFECT.

Authors:  C C MABRY; J C DENNISTON; T L NELSON; C D SON
Journal:  N Engl J Med       Date:  1963-12-26       Impact factor: 91.245

4.  To test or not to test?

Authors:  L Roberts
Journal:  Science       Date:  1990-01-05       Impact factor: 47.728

Review 5.  Genetic jeopardy and the new clairvoyance.

Authors:  N S Wexler
Journal:  Prog Med Genet       Date:  1985

6.  Ecogenetics: historical foundation and current status.

Authors:  E J Calabrese
Journal:  J Occup Med       Date:  1986-10

7.  A polymorphic DNA marker genetically linked to Huntington's disease.

Authors:  J F Gusella; N S Wexler; P M Conneally; S L Naylor; M A Anderson; R E Tanzi; P C Watkins; K Ottina; M R Wallace; A Y Sakaguchi
Journal:  Nature       Date:  1983 Nov 17-23       Impact factor: 49.962

Review 8.  Genetics of HLA disease association.

Authors:  L P Ryder; A Svejgaard; J Dausset
Journal:  Annu Rev Genet       Date:  1981       Impact factor: 16.830

9.  Duty to recall.

Authors:  D Berg; H L Hirsh
Journal:  South Med J       Date:  1980-08       Impact factor: 0.954

10.  The ovrselling of genetic anxiety.

Authors:  M J Goodman; L E Goodman
Journal:  Hastings Cent Rep       Date:  1982-10       Impact factor: 2.683
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  9 in total

1.  Direct to consumer genetic testing-law and policy concerns in Ireland.

Authors:  Aisling de Paor
Journal:  Ir J Med Sci       Date:  2017-11-25       Impact factor: 1.568

2.  Genetic testing and insurance. The Ad Hoc Committee on Genetic Testing/Insurance Issues.

Authors: 
Journal:  Am J Hum Genet       Date:  1995-01       Impact factor: 11.025

3.  Genetic discrimination and the public entities and public accommodations Titles of the Americans with Disabilities Act.

Authors:  J S Alper; M R Natowicz
Journal:  Am J Hum Genet       Date:  1993-07       Impact factor: 11.025

4.  Certificates of confidentiality: a valuable tool for protecting genetic data.

Authors:  C L Earley; L C Strong
Journal:  Am J Hum Genet       Date:  1995-09       Impact factor: 11.025

5.  Racial differences in beliefs about genetic screening among patients at inner-city neighborhood health centers.

Authors:  Richard K Zimmerman; Melissa Tabbarah; Mary Patricia Nowalk; Mahlon Raymund; Ilene K Jewell; Stephen A Wilson; Edmund M Ricci
Journal:  J Natl Med Assoc       Date:  2006-03       Impact factor: 1.798

6.  The duty to recontact: attitudes of genetics service providers.

Authors:  J L Fitzpatrick; C Hahn; T Costa; M J Huggins
Journal:  Am J Hum Genet       Date:  1999-03       Impact factor: 11.025

Review 7.  Apolipoprotein E and Alzheimer's disease: the implications of progress in molecular medicine.

Authors:  R Mayeux; N Schupf
Journal:  Am J Public Health       Date:  1995-09       Impact factor: 9.308

8.  Recontacting in clinical practice: an investigation of the views of healthcare professionals and clinical scientists in the United Kingdom.

Authors:  Daniele Carrieri; Sandi Dheensa; Shane Doheny; Angus J Clarke; Peter D Turnpenny; Anneke M Lucassen; Susan E Kelly
Journal:  Eur J Hum Genet       Date:  2017-01-04       Impact factor: 4.246

Review 9.  Is there a duty to recontact in light of new genetic technologies? A systematic review of the literature.

Authors:  Ellen Otten; Mirjam Plantinga; Erwin Birnie; Marian A Verkerk; Anneke M Lucassen; Adelita V Ranchor; Irene M Van Langen
Journal:  Genet Med       Date:  2014-12-11       Impact factor: 8.822
  9 in total

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