Literature DB >> 18970900

The period of untreated psychosis before treatment initiation: a qualitative study of family members' perspectives.

Erin Bergner1, Amy S Leiner, Tandrea Carter, Lauren Franz, Nancy J Thompson, Michael T Compton.   

Abstract

AIM: This study used a qualitative research methodology to explore common themes pertaining to the period of untreated psychosis before treatment initiation in hospitalized, urban, African American, first-episode psychosis patients.
METHODS: Twelve family members of 10 patients were interviewed at length to gather detailed narrative accounts of factors related to untreated psychosis and treatment delay. Using qualitative analysis, verbatim transcripts were reviewed by 2 researchers to identify prominent themes useful for generating future research hypotheses.
RESULTS: Four themes emerged as informative of the period of untreated psychosis before treatment initiation: (1) misattribution of symptoms or problem behaviors (eg, depression, drug use, and adolescent rebellion), (2) positive symptoms causing unusual or dangerous behaviors that served as a catalyst for initiating treatment, (3) views about personal autonomy of an adult or nearly adult patient, and (4) system-level factors (eg, unaffordability of health care and inefficiency on the part of health care providers).
CONCLUSIONS: Family members encountered numerous barriers when seeking treatment, including their own misattributions, the nature of the patient's symptoms, financial issues, and system-level delays. The themes uncovered in this formative analysis merit further exploration with additional qualitative and quantitative research.

Entities:  

Mesh:

Year:  2008        PMID: 18970900      PMCID: PMC2610676          DOI: 10.1016/j.comppsych.2008.02.010

Source DB:  PubMed          Journal:  Compr Psychiatry        ISSN: 0010-440X            Impact factor:   3.735


  29 in total

Review 1.  Qualitative research in health care. Analysing qualitative data.

Authors:  C Pope; S Ziebland; N Mays
Journal:  BMJ       Date:  2000-01-08

2.  Barriers to effective mental health services for African Americans.

Authors:  L R Snowden
Journal:  Ment Health Serv Res       Date:  2001-12

3.  Negative pathways to psychiatric care and ethnicity: the bridge between social science and psychiatry.

Authors:  Craig Morgan; Rosemarie Mallett; Gerard Hutchinson; Julian Leff
Journal:  Soc Sci Med       Date:  2004-02       Impact factor: 4.634

4.  African-Caribbean interactions with mental health services in the UK: experiences and expectations of exclusion as (re)productive of health inequalities.

Authors:  Carl Mclean; Catherine Campbell; Flora Cornish
Journal:  Soc Sci Med       Date:  2003-02       Impact factor: 4.634

Review 5.  Duration of untreated psychosis: a critical examination of the concept and its importance.

Authors:  R M Norman; A K Malla
Journal:  Psychol Med       Date:  2001-04       Impact factor: 7.723

6.  Help-seeking for parents of individuals experiencing a first episode of schizophrenia.

Authors:  D M Czuchta; E McCay
Journal:  Arch Psychiatr Nurs       Date:  2001-08       Impact factor: 2.218

Review 7.  The factor structure for the Positive and Negative Syndrome Scale (PANSS) in recent-onset psychosis.

Authors:  Robin Emsley; Jonathan Rabinowitz; Martijn Torreman
Journal:  Schizophr Res       Date:  2003-05-01       Impact factor: 4.939

8.  Attitudes of patients toward the first psychotic episode and the start of treatment.

Authors:  Lieuwe de Haan; Bart Peters; Peter Dingemans; Luuk Wouters; Don Linszen
Journal:  Schizophr Bull       Date:  2002       Impact factor: 9.306

9.  Trajectory to a first episode of psychosis: a qualitative research study with families.

Authors:  Cheryl Corcoran; Ruth Gerson; Rachel Sills-Shahar; Connie Nickou; Thomas McGlashan; Dolores Malaspina; Larry Davidson
Journal:  Early Interv Psychiatry       Date:  2007-11       Impact factor: 2.732

Review 10.  Ethnic variations in pathways to and use of specialist mental health services in the UK. Systematic review.

Authors:  Kamaldeep Bhui; Stephen Stansfeld; Sally Hull; Stefan Priebe; Funke Mole; Gene Feder
Journal:  Br J Psychiatry       Date:  2003-02       Impact factor: 9.319

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  25 in total

1.  The Help-Seeking Experiences of Parents of Children with a First-Episode of Psychosis.

Authors:  David Skubby; Natalie Bonfine; Hattie Tracy; Kristen Knepp; Mark R Munetz
Journal:  Community Ment Health J       Date:  2015-04-17

2.  The Duration of Untreated Psychosis: A Phenomenological Study.

Authors:  Sarah Kamens; Larry Davidson; Emily Hyun; Nev Jones; Jill Morawski; Matthew Kurtz; Jessica Pollard; Gerrit Ian van Schalkwyk; Vinod Srihari
Journal:  Psychosis       Date:  2018-10-25

3.  Associations between duration of untreated psychosis and domains of positive and negative symptoms.

Authors:  Michael L Birnbaum; Claire Ramsay Wan; Beth Broussard; Michael T Compton
Journal:  Early Interv Psychiatry       Date:  2015-07-14       Impact factor: 2.732

4.  Correlates in the Endorsement of Psychotic Symptoms and Services Use: Findings from the Collaborative Psychiatric Epidemiology Surveys.

Authors:  Armando Barragán; Ann-Marie Yamada; Karen Kyeunghae Lee; Concepción Barrio
Journal:  Community Ment Health J       Date:  2015-02-19

5.  Taking care of the carers: support for families of persons with early psychosis.

Authors:  Cheryl Corcoran
Journal:  World Psychiatry       Date:  2017-10       Impact factor: 49.548

6.  Constructing illness: how the public in eight Western nations respond to a clinical description of "schizophrenia".

Authors:  Sigrun Olafsdottir; Bernice A Pescosolido
Journal:  Soc Sci Med       Date:  2011-07-13       Impact factor: 4.634

7.  Family processes and duration of untreated psychosis among US Latinos.

Authors:  Mercedes Hernandez; Maria Y Hernandez; Daisy Lopez; Concepción Barrio; Diana Gamez; Steven R López
Journal:  Early Interv Psychiatry       Date:  2019-01-15       Impact factor: 2.732

8.  Factors that hindered care seeking among people with a first diagnosis of psychosis.

Authors:  Bobbi J Yarborough; Micah T Yarborough; Julie C Cavese
Journal:  Early Interv Psychiatry       Date:  2018-11-28       Impact factor: 2.732

9.  Family-level predictors and correlates of the duration of untreated psychosis in African American first-episode patients.

Authors:  Michael T Compton; Sandra M Goulding; Tynessa L Gordon; Paul S Weiss; Nadine J Kaslow
Journal:  Schizophr Res       Date:  2009-10-14       Impact factor: 4.939

10.  First episode psychosis and the trail to secondary care: help-seeking and health-system delays.

Authors:  Eadbhard O'Callaghan; Niall Turner; Laoise Renwick; Deirdre Jackson; Marie Sutton; Sharon D Foley; Stephen McWilliams; Caragh Behan; Alastair Fetherstone; Anthony Kinsella
Journal:  Soc Psychiatry Psychiatr Epidemiol       Date:  2009-07-04       Impact factor: 4.328

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