Literature DB >> 18757617

The search for clarity in communicating research results to study participants.

D I Shalowitz1, F G Miller.   

Abstract

UNLABELLED: Current guidelines on investigators' responsibilities to communicate research results to study participants may differ on (1) whether investigators should proactively re-contact participants, (2) the type of results to be offered, (3) the need for clinical relevance before disclosure, and (4) the stage of research at which results should be offered. Lack of consistency on these issues, however, does not undermine investigators' obligation to offer to disclose research
RESULTS: an obligation rooted firmly in the principle of respect for research participants.

Entities:  

Mesh:

Year:  2008        PMID: 18757617     DOI: 10.1136/jme.2008.025122

Source DB:  PubMed          Journal:  J Med Ethics        ISSN: 0306-6800            Impact factor:   2.903


  19 in total

1.  Disclosure of individualized research results: a precautionary approach.

Authors:  David B Resnik
Journal:  Account Res       Date:  2011-11       Impact factor: 2.622

2.  Not so simple: a quasi-experimental study of how researchers adjudicate genetic research results.

Authors:  Robin Zoe Hayeems; Fiona Alice Miller; Li Li; Jessica Peace Bytautas
Journal:  Eur J Hum Genet       Date:  2011-03-16       Impact factor: 4.246

3.  Return of Genetic Research Results to Participants and Families: IRB Perspectives and Roles.

Authors:  Laura M Beskow; P Pearl O'Rourke
Journal:  J Law Med Ethics       Date:  2015       Impact factor: 1.718

4.  Return of individual genomic research results: what do consent forms tell participants?

Authors:  Stacey Pereira; Jill Oliver Robinson; Amy L McGuire
Journal:  Eur J Hum Genet       Date:  2016-06-22       Impact factor: 4.246

5.  Researchers' opinions towards the communication of results of biobank research: a survey study.

Authors:  Tineke M Meulenkamp; Sjef J K Gevers; Jasper A Bovenberg; Ellen M A Smets
Journal:  Eur J Hum Genet       Date:  2011-11-30       Impact factor: 4.246

6.  What is a meaningful result? Disclosing the results of genomic research in autism to research participants.

Authors:  Fiona Alice Miller; Robin Zoe Hayeems; Jessica Peace Bytautas
Journal:  Eur J Hum Genet       Date:  2010-03-17       Impact factor: 4.246

7.  Preferences regarding genetic research results: comparing veterans and nonveterans responses.

Authors:  N Arar; J Seo; S Lee; H E Abboud; L A Copeland; P Noel; M Parchman
Journal:  Public Health Genomics       Date:  2010-09-09       Impact factor: 2.000

8.  Health research participants' preferences for receiving research results.

Authors:  Christopher R Long; M Kathryn Stewart; Thomas V Cunningham; T Scott Warmack; Pearl A McElfish
Journal:  Clin Trials       Date:  2016-08-24       Impact factor: 2.486

9.  First Do No Harm: Ethical Concerns of Health Researchers That Discourage the Sharing of Results With Research Participants.

Authors:  Rachel S Purvis; Christopher R Long; Leah R Eisenberg; D Micah Hester; Thomas V Cunningham; Angel Holland; Harish E Chatrathi; Pearl A McElfish
Journal:  AJOB Empir Bioeth       Date:  2020-03-12

10.  Qualitative study of participants' perceptions and preferences regarding research dissemination.

Authors:  Rachel S Purvis; Traci H Abraham; Christopher R Long; M Kathryn Stewart; T Scott Warmack; Pearl Anna McElfish
Journal:  AJOB Empir Bioeth       Date:  2017-03-27
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