Literature DB >> 18706521

Development of the parent response to child illness (PRCI) scale.

Joan K Austin1, Cheryl P Shore, David W Dunn, Cynthia S Johnson, Janice M Buelow, Susan M Perkins.   

Abstract

The aims of this study were to develop an instrument to measure parents' responses and perceptions related to the onset of either seizures or asthma in a child (aged 4-14) and to assess the initial reliability and validity of the instrument. The 35-item scale developed comprised five subscales: Child Support, Family Life/Leisure, Condition Management, Child Autonomy, and Child Discipline. Subjects were parents of 224 children with new-onset seizures and 104 parents of children with new-onset asthma. Internal consistency reliabilities were stronger for Child Support, Family Life/Leisure, and Condition Management than for Child Autonomy and Child Discipline for both samples. Test-retest reliability ranged from good to fair for both samples. The associations between parent positive mood and all of the subscales for both samples in the predicted directions provided key empirical support for validity. The scale has potential for use in research and in the clinical setting. In addition, the scale has potential to be used with other conditions.

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Year:  2008        PMID: 18706521      PMCID: PMC2662721          DOI: 10.1016/j.yebeh.2008.07.017

Source DB:  PubMed          Journal:  Epilepsy Behav        ISSN: 1525-5050            Impact factor:   2.937


  19 in total

1.  Psychopathology in children with epilepsy: a meta-analysis.

Authors:  Roos Rodenburg; Geert Jan Stams; Anne Marie Meijer; Albert P Aldenkamp; Maja Deković
Journal:  J Pediatr Psychol       Date:  2005-03-03

2.  Adaptive functioning in children with seizures: impact of maternal anxiety about epilepsy.

Authors:  Lynn Chapieski; Vicki Brewer; Karen Evankovich; Kathy Culhane-Shelburne; Karen Zelman; Ann Alexander
Journal:  Epilepsy Behav       Date:  2005-09       Impact factor: 2.937

3.  New-onset childhood seizures: parents' concerns and needs.

Authors:  J K Austin; U M Oruche; D W Dunn; D A Levstek
Journal:  Clin Nurs Pract Epilepsy       Date:  1995

4.  Developing criteria for establishing interrater reliability of specific items: applications to assessment of adaptive behavior.

Authors:  D V Cicchetti; S A Sparrow
Journal:  Am J Ment Defic       Date:  1981-09

5.  Psychosocial adjustment of children with chronic epilepsy and their families.

Authors:  P Hoare; S Kerley
Journal:  Dev Med Child Neurol       Date:  1991-03       Impact factor: 5.449

6.  Measuring stigma in children with epilepsy and their parents: instrument development and testing.

Authors:  Joan K Austin; Jessica MacLeod; David W Dunn; Jianzhao Shen; Susan M Perkins
Journal:  Epilepsy Behav       Date:  2004-08       Impact factor: 2.937

7.  A population survey of mental health problems in children with epilepsy.

Authors:  Sharon Davies; Isobel Heyman; Robert Goodman
Journal:  Dev Med Child Neurol       Date:  2003-05       Impact factor: 5.449

8.  Behavioral issues involving children and adolescents with epilepsy and the impact of their families: recent research data.

Authors:  Joan K Austin; David W Dunn; Cynthia S Johnson; Susan M Perkins
Journal:  Epilepsy Behav       Date:  2004-10       Impact factor: 2.937

9.  Development of scales to measure psychosocial care needs of children with seizures and their parents. 1.

Authors:  J Austin; D Dunn; G Huster; D Rose
Journal:  J Neurosci Nurs       Date:  1998-06       Impact factor: 1.230

10.  The effects of perceived stigma and psychological over-control on the behavioural problems of children with epilepsy.

Authors:  S Carlton-Ford; R Miller; N Nealeigh; N Sanchez
Journal:  Seizure       Date:  1997-10       Impact factor: 3.184

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  3 in total

1.  Behavior problems in children at time of first recognized seizure and changes over the following 3 years.

Authors:  J K Austin; S M Perkins; C S Johnson; P S Fastenau; A W Byars; T J deGrauw; D W Dunn
Journal:  Epilepsy Behav       Date:  2011-07-03       Impact factor: 2.937

2.  A pilot randomized controlled clinical trial to improve antiepileptic drug adherence in young children with epilepsy.

Authors:  Avani C Modi; Shanna M Guilfoyle; Krista A Mann; Joseph R Rausch
Journal:  Epilepsia       Date:  2015-12-23       Impact factor: 5.864

3.  Continuing psychosocial care needs in children with new-onset epilepsy and their parents.

Authors:  Cheryl P Shore; Janice M Buelow; Joan K Austin; Cynthia S Johnson
Journal:  J Neurosci Nurs       Date:  2009-10       Impact factor: 1.230

  3 in total

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