Literature DB >> 18667050

Factors influencing independence in adolescents with sickle cell disease.

Jamesetta A Newland1.   

Abstract

PROBLEM: Factors that predict successful transition from pediatric to adult care for adolescents with sickle cell disease are not fully understood, making transfer decisions difficult.
METHODS: Seventy-four adolescents (14-21 years) participated in this descriptive correlational study to investigate the relationships of age, gender, knowledge about sickle cell disease, disease severity, and family relationships to independence.
FINDINGS: Knowledge, severity, and family relationships explained only 25% of the variance for independence in the final model; family relationships were inversely correlated.
CONCLUSIONS: Factors exerting stronger influences on independence remain unknown. Cultural factors may be important among this predominantly African American population.

Mesh:

Year:  2008        PMID: 18667050     DOI: 10.1111/j.1744-6171.2008.00149.x

Source DB:  PubMed          Journal:  J Child Adolesc Psychiatr Nurs        ISSN: 1073-6077


  10 in total

1.  Receipt of transition services within a medical home: do racial and geographic disparities exist?

Authors:  Nicole Richmond; Tri Tran; Susan Berry
Journal:  Matern Child Health J       Date:  2011-08

2.  Can the Medical Home eliminate racial and ethnic disparities for transition services among Youth with Special Health Care Needs?

Authors:  Nicole E Richmond; Tri Tran; Susan Berry
Journal:  Matern Child Health J       Date:  2012-05

3.  A family-based randomized controlled trial of pain intervention for adolescents with sickle cell disease.

Authors:  Lamia P Barakat; Lisa A Schwartz; Katherine S Salamon; Jerilynn Radcliffe
Journal:  J Pediatr Hematol Oncol       Date:  2010-10       Impact factor: 1.289

4.  Quality of Life of Latino and Non-Latino Youth With Sickle Cell Disease as Reported by Parents and Youth.

Authors:  Jennel C Osborne; Nancy S Green; Arlene M Smaldone
Journal:  Hisp Health Care Int       Date:  2020-03-03

5.  Transition from pediatric to adult care in sickle cell disease: establishing evidence-based practice and directions for research.

Authors:  Marsha Treadwell; Joseph Telfair; Robert W Gibson; Shirley Johnson; Ifeyinwa Osunkwo
Journal:  Am J Hematol       Date:  2011-01       Impact factor: 10.047

6.  Improving self-management in adolescents with sickle cell disease.

Authors:  Lori E Crosby; Anna Hood; Katherine Kidwell; Cara Nwankwo; James Peugh; Heather Strong; Charles Quinn; Maria T Britto
Journal:  Pediatr Blood Cancer       Date:  2020-07-22       Impact factor: 3.167

7.  Feasibility of Medical Student Mentors to Improve Transition in Sickle Cell Disease.

Authors:  Adrienne S Viola; Richard Drachtman; Amanda Kaveney; Ashwin Sridharan; Beth Savage; Cristine D Delnevo; Elliot J Coups; Jerlym S Porter; Katie A Devine
Journal:  J Pediatr Psychol       Date:  2021-07-20

8.  Barriers in transition from pediatrics to adult medicine in sickle cell anemia.

Authors:  Jeffrey D Lebensburger; Christina J Bemrich-Stolz; Thomas H Howard
Journal:  J Blood Med       Date:  2012-09-19

9.  The lived experiences of adolescents with sickle cell disease in Kingston, Jamaica.

Authors:  Andrea Brown Forrester; Antoinette Barton-Gooden; Cynthia Pitter; Jascinth L M Lindo
Journal:  Int J Qual Stud Health Well-being       Date:  2015-09-03

10.  Disease Knowledge, Illness Perceptions, and Quality of Life in Adolescents With Sickle Cell Disease: Is There a Link?

Authors:  Monika Rani Asnani; Antoinette Barton-Gooden; Marlyn Grindley; Jennifer Knight-Madden
Journal:  Glob Pediatr Health       Date:  2017-11-07
  10 in total

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