Literature DB >> 18590619

Epilepsy and stigma: an update and critical review.

Ann Jacoby1.   

Abstract

This article discusses the concept of illness-related stigma and its relevance to consideration of the psychosocial impact of epilepsy. It provides an overview of the recent literature on epilepsy-related stigma as it relates to the stigma experience of people with epilepsy themselves and to the beliefs and attitudes held by other key target groups. The limitations of these and previous studies are considered, and some advances in knowledge arising from them are highlighted. Finally, some suggestions are made about possible areas for further investigation.

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Year:  2008        PMID: 18590619     DOI: 10.1007/s11910-008-0052-8

Source DB:  PubMed          Journal:  Curr Neurol Neurosci Rep        ISSN: 1528-4042            Impact factor:   5.081


  43 in total

Review 1.  Design and use of questionnaires: a review of best practice applicable to surveys of health service staff and patients.

Authors:  E McColl; A Jacoby; L Thomas; J Soutter; C Bamford; N Steen; R Thomas; E Harvey; A Garratt; J Bond
Journal:  Health Technol Assess       Date:  2001       Impact factor: 4.014

2.  Zambian teachers: what do they know about epilepsy and how can we work with them to decrease stigma?

Authors:  Gretchen L Birbeck; Elwyn Chomba; Masharip Atadzhanov; Edaward Mbewe; Alan Haworth
Journal:  Epilepsy Behav       Date:  2006-07-31       Impact factor: 2.937

3.  The stigma of epilepsy: a European perspective.

Authors:  G A Baker; J Brooks; D Buck; A Jacoby
Journal:  Epilepsia       Date:  2000-01       Impact factor: 5.864

4.  Racial discrimination and blood pressure: the CARDIA Study of young black and white adults.

Authors:  N Krieger; S Sidney
Journal:  Am J Public Health       Date:  1996-10       Impact factor: 9.308

5.  Social prejudice and the adjustment of people with epilepsy.

Authors:  C Bagley
Journal:  Epilepsia       Date:  1972-01       Impact factor: 5.864

6.  Public knowledge, private grief: a study of public attitudes to epilepsy in the United Kingdom and implications for stigma.

Authors:  Ann Jacoby; Joanne Gorry; Carrol Gamble; Gus A Baker
Journal:  Epilepsia       Date:  2004-11       Impact factor: 5.864

7.  The social and economic impact of epilepsy in Zambia: a cross-sectional study.

Authors:  Gretchen Birbeck; Elwyn Chomba; Masharip Atadzhanov; Edward Mbewe; Alan Haworth
Journal:  Lancet Neurol       Date:  2007-01       Impact factor: 44.182

8.  Generating a model of epileptic stigma: the role of qualitative analysis.

Authors:  G Scambler; A Hopkins
Journal:  Soc Sci Med       Date:  1990       Impact factor: 4.634

9.  Epilepsy-related knowledge, attitudes, and practices among Zambian police officers.

Authors:  Edward Mbewe; Alan Haworth; Masharip Atadzhanov; Elwyn Chomba; Gretchen L Birbeck
Journal:  Epilepsy Behav       Date:  2007-03-23       Impact factor: 2.937

Review 10.  Social stigma for adults and children with epilepsy.

Authors:  Ann Jacoby; Joan K Austin
Journal:  Epilepsia       Date:  2007       Impact factor: 5.864

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  18 in total

1.  Stigma of people with epilepsy in China: views of health professionals, teachers, employers, and community leaders.

Authors:  Rong-Rong Yang; Wen-Zhi Wang; Dee Snape; Gong Chen; Lei Zhang; Jian-Zhong Wu; Gus A Baker; Xiao-Ying Zheng; Ann Jacoby
Journal:  Epilepsy Behav       Date:  2011-05-24       Impact factor: 2.937

2.  Epilepsy-associated stigma in Zambia: what factors predict greater felt stigma in a highly stigmatized population?

Authors:  Masharip Atadzhanov; Alan Haworth; Elwyn N Chomba; Edward K Mbewe; Gretchen Lano Birbeck
Journal:  Epilepsy Behav       Date:  2010-09-17       Impact factor: 2.937

3.  Reexamining epilepsy-associated stigma: validation of the Stigma Scale of Epilepsy in Zambia.

Authors:  Melissa A Elafros; Ryan P Bowles; Masharip Atadzhanov; Edward Mbewe; Alan Haworth; Elwyn Chomba; Gretchen L Birbeck
Journal:  Qual Life Res       Date:  2014-11-22       Impact factor: 4.147

4.  Stigma and psychiatric morbidity among mothers of children with epilepsy in Zambia.

Authors:  Melissa A Elafros; Claire Sakubita-Simasiku; Masharip Atadzhanov; Alan Haworth; Elwyn Chomba; Gretchen L Birbeck
Journal:  Int Health       Date:  2013-11-08       Impact factor: 2.473

5.  Peer support groups as an intervention to decrease epilepsy-associated stigma.

Authors:  Melissa A Elafros; Julius Mulenga; Edward Mbewe; Alan Haworth; Elwyn Chomba; Masharip Atadzhanov; Gretchen L Birbeck
Journal:  Epilepsy Behav       Date:  2013-03-01       Impact factor: 2.937

6.  Validity of the Neurology Quality-of-Life (Neuro-QoL) measurement system in adult epilepsy.

Authors:  David Victorson; Jose E Cavazos; Gregory L Holmes; Anthony T Reder; Valerie Wojna; Cindy Nowinski; Deborah Miller; Sarah Buono; Allison Mueller; Claudia Moy; David Cella
Journal:  Epilepsy Behav       Date:  2013-12-20       Impact factor: 2.937

Review 7.  Genetic testing in the epilepsies-developments and dilemmas.

Authors:  Annapurna Poduri; Beth Rosen Sheidley; Sara Shostak; Ruth Ottman
Journal:  Nat Rev Neurol       Date:  2014-04-15       Impact factor: 42.937

8.  The psychosocial impact of COVID-19 within the first six months of the pandemic on youth with epilepsy and their caregivers.

Authors:  Avani C Modi; Anup D Patel; Jack Stevens; Gigi Smith; Heather Huszti; Shanna M Guilfoyle; Constance A Mara; Matthew Schmidt; Janelle L Wagner
Journal:  Epilepsy Behav       Date:  2021-02-12       Impact factor: 2.937

9.  Coping style and quality of life in patients with epilepsy: a cross-sectional study.

Authors:  Willemien Westerhuis; Maeike Zijlmans; Kathelijn Fischer; Judith van Andel; Frans S S Leijten
Journal:  J Neurol       Date:  2010-07-24       Impact factor: 4.849

10.  The stigma of migraine.

Authors:  William B Young; Jung E Park; Iris X Tian; Joanna Kempner
Journal:  PLoS One       Date:  2013-01-16       Impact factor: 3.240

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