Literature DB >> 18047591

Social stigma for adults and children with epilepsy.

Ann Jacoby1, Joan K Austin.   

Abstract

For many people with epilepsy, the continuing social reality of their condition is as a stigma. Epilepsy stigma has three different levels; internalized, interpersonal, and institutional. While there have been documented improvements in public attitudes towards epilepsy, the remnants of "old" ideas about epilepsy continue to inform popular concepts resulting in a difficult social environment for those affected. The social and quality of life problems arising from a diagnosis of epilepsy can represent greater challenges than are warranted by its clinical severity. The relationship between stigma and impaired quality of life is well documented. Tackling the problem of stigma effectively requires that all three of different levels at which it operates are systematically addressed.

Entities:  

Mesh:

Year:  2007        PMID: 18047591     DOI: 10.1111/j.1528-1167.2007.01391.x

Source DB:  PubMed          Journal:  Epilepsia        ISSN: 0013-9580            Impact factor:   5.864


  43 in total

1.  Improving understanding, promoting social inclusion, and fostering empowerment related to epilepsy: Epilepsy Foundation public awareness campaigns--2001 through 2013.

Authors:  P Price; R Kobau; J Buelow; J Austin; K Lowenberg
Journal:  Epilepsy Behav       Date:  2015-02-26       Impact factor: 2.937

2.  Stigma of people with epilepsy in China: views of health professionals, teachers, employers, and community leaders.

Authors:  Rong-Rong Yang; Wen-Zhi Wang; Dee Snape; Gong Chen; Lei Zhang; Jian-Zhong Wu; Gus A Baker; Xiao-Ying Zheng; Ann Jacoby
Journal:  Epilepsy Behav       Date:  2011-05-24       Impact factor: 2.937

3.  "A journey around the world": Parent narratives of the journey to pediatric resective epilepsy surgery and beyond.

Authors:  Christine B Baca; Huibrie C Pieters; Tomoko J Iwaki; Gary W Mathern; Barbara G Vickrey
Journal:  Epilepsia       Date:  2015-04-20       Impact factor: 5.864

4.  The stigma of people with epilepsy is demonstrated at the internalized, interpersonal and institutional levels in a specific sociocultural context: findings from an ethnographic study in rural China.

Authors:  Wencui Guo; Jianzhong Wu; Wenzhi Wang; Biyan Guan; Dee Snape; Gus A Baker; Ann Jacoby
Journal:  Epilepsy Behav       Date:  2012-10-09       Impact factor: 2.937

5.  Differences in child versus parent reports of the child's health-related quality of life in children with epilepsy and healthy siblings.

Authors:  Christine Bower Baca; Barbara G Vickrey; Ron D Hays; Stefanie D Vassar; Anne T Berg
Journal:  Value Health       Date:  2010 Sep-Oct       Impact factor: 5.725

6.  Sociodemographic and clinical factors associated with depression in epilepsy.

Authors:  Alexander W Thompson; John W Miller; Wayne Katon; Naomi Chaytor; Paul Ciechanowski
Journal:  Epilepsy Behav       Date:  2009-02-20       Impact factor: 2.937

Review 7.  Stigma in epilepsy.

Authors:  Kirsten M Fiest; Gretchen L Birbeck; Ann Jacoby; Nathalie Jette
Journal:  Curr Neurol Neurosci Rep       Date:  2014-05       Impact factor: 5.081

8.  Examining perceived stigma of children with newly-diagnosed epilepsy and their caregivers over a two-year period.

Authors:  Jennifer E Rood; Janet R Schultz; Joseph R Rausch; Avani C Modi
Journal:  Epilepsy Behav       Date:  2014-08-28       Impact factor: 2.937

Review 9.  Epilepsy misconceptions and stigma reduction: Current status in Western countries.

Authors:  Lynn K Herrmann; Elisabeth Welter; Anne T Berg; Adam T Perzynski; Jamie R Van Doren; Martha Sajatovic
Journal:  Epilepsy Behav       Date:  2016-05-18       Impact factor: 2.937

Review 10.  Epilepsy and stigma: an update and critical review.

Authors:  Ann Jacoby
Journal:  Curr Neurol Neurosci Rep       Date:  2008-07       Impact factor: 5.081

View more

北京卡尤迪生物科技股份有限公司 © 2022-2023.