Literature DB >> 18549425

Against the inalienable right to withdraw from research.

Eric Chwang1.   

Abstract

In this paper I argue, against the current consensus, that the right to withdraw from research is sometimes alienable. In other words, research subjects are sometimes morally permitted to waive their right to withdraw. The argument proceeds in three major steps. In the first step, I argue that rights typically should be presumed alienable, both because that is not illegitimately coercive and because the general paternalistic motivation for keeping them inalienable is untenable. In the second step of the argument, I consider three special characteristics of the right to withdraw, first that its waiver might be exploitative, second that research involves intimate bodily access, and third that it is irreversible. I argue that none of these characteristics justify an inalienable right to withdraw. In the third step, I examine four considerations often taken to justify various other allegedly inalienable rights: concerns about treating yourself merely as a means as might be the case in suicide, concerns about revoking all your future freedoms in slavery contracts, the resolution of coordination problems, and public interest. I argue that the motivations involved in these four types of situations do not apply to the right to withdraw from research.

Mesh:

Year:  2008        PMID: 18549425     DOI: 10.1111/j.1467-8519.2008.00666.x

Source DB:  PubMed          Journal:  Bioethics        ISSN: 0269-9702            Impact factor:   1.898


  3 in total

1.  Withdrawing from research: a rethink in the context of research biobanks.

Authors:  Søren Holm
Journal:  Health Care Anal       Date:  2011-09

2.  Participants' responsibilities in clinical research.

Authors:  David B Resnik; Elizabeth Ness
Journal:  J Med Ethics       Date:  2012-07-19       Impact factor: 2.903

3.  The evolution of withdrawal: negotiating research relationships in biobanking.

Authors:  Karen Melham; Linda Briceno Moraia; Colin Mitchell; Michael Morrison; Harriet Teare; Jane Kaye
Journal:  Life Sci Soc Policy       Date:  2014-10-05
  3 in total

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