Literature DB >> 12160360

A generic measure of Quality of Life for children aged 3-8 years: results of two preliminary studies.

J Lawford1, N Volavka, C Eiser.   

Abstract

Preliminary findings from the development of a new quality of life (QoL) measure for children aged 3-8 years are presented in two studies. Thirty-six children (5-6 years) completed a 10-item measure in Study 1, which included ratings of their abilities and 'happiness'. The children also completed an established QoL measure and 24 parents completed a proxy QoL measure. Preliminary support for the face and construct validity of the new measure is reported. There were correlations between the children's scores on the two measures (p < 0.05). However, child and parent scores were not correlated (p = 0.65). Twenty-four children (3-4 years) completed a modified version of the new QoL measure in Study 2, which consisted of 23 items. The internal reliability of the measure and the speed of children's responses allowed comparison of the efficacy of two response formats. Significant differences in speed were found in children's responses using different response formats, and differences in the internal consistency of the measure. Eighteen parents completed a proxy QoL measure, as in Study 1. Child and parent scores on the two measures were not correlated (p = 0.23). These studies highlight the difficulties in obtaining self-report QoL data from children below 5 years.

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Year:  2001        PMID: 12160360     DOI: 10.1080/13638490210124033

Source DB:  PubMed          Journal:  Pediatr Rehabil        ISSN: 1363-8491


  6 in total

Review 1.  Characteristics of health-related self-report measures for children aged three to eight years: a review of the literature.

Authors:  Joanne Cremeens; Christine Eiser; Mark Blades
Journal:  Qual Life Res       Date:  2006-05       Impact factor: 4.147

2.  Enhancing validity, reliability and participation in self-reported health outcome measurement for children and young people: a systematic review of recall period, response scale format, and administration modality.

Authors:  L Coombes; K Bristowe; C Ellis-Smith; J Aworinde; L K Fraser; J Downing; M Bluebond-Langner; L Chambers; F E M Murtagh; R Harding
Journal:  Qual Life Res       Date:  2021-03-18       Impact factor: 4.147

3.  Evaluation of Quality of Life and Psychiatric Aspects of Children with Epilepsy and Their Families Using Self-assessment Questionnaires.

Authors:  Aycan Ünalp; Ayşe Kutlu; Pakize Karaoğlu; Ünsal Yılmaz; Burcu Çakaloz
Journal:  Turk Arch Pediatr       Date:  2022-05

Review 4.  Parent-child agreement across child health-related quality of life instruments: a review of the literature.

Authors:  Penney Upton; Joanne Lawford; Christine Eiser
Journal:  Qual Life Res       Date:  2008-06-03       Impact factor: 4.147

5.  Systematic Review of Conceptual, Age, Measurement and Valuation Considerations for Generic Multidimensional Childhood Patient-Reported Outcome Measures.

Authors:  Joseph Kwon; Louise Freijser; Julie Ratcliffe; Stavros Petrou; Elisabeth Huynh; Martin Howell; Gang Chen; Kamran Khan; Shahd Daher; Nia Roberts; Conrad Harrison; Sarah Smith; Nancy Devlin; Kirsten Howard; Emily Lancsar; Cate Bailey; Jonathan Craig; Kim Dalziel; Alison Hayes; Brendan Mulhern; Germaine Wong
Journal:  Pharmacoeconomics       Date:  2022-01-24       Impact factor: 4.558

6.  Measuring adolescents' HRQoL via self reports and parent proxy reports: an evaluation of the psychometric properties of both versions of the KINDL-R instrument.

Authors:  Michael Erhart; Ute Ellert; Bärbel-Maria Kurth; Ulrike Ravens-Sieberer
Journal:  Health Qual Life Outcomes       Date:  2009-08-26       Impact factor: 3.186

  6 in total

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