Literature DB >> 18436895

Developing informatics tools and strategies for consumer-centered health communication.

Alla Keselman1, Robert Logan, Catherine Arnott Smith, Gondy Leroy, Qing Zeng-Treitler.   

Abstract

As the emphasis on individuals' active partnership in health care grows, so does the public's need for effective, comprehensible consumer health resources. Consumer health informatics has the potential to provide frameworks and strategies for designing effective health communication tools that empower users and improve their health decisions. This article presents an overview of the consumer health informatics field, discusses promising approaches to supporting health communication, and identifies challenges plus direction for future research and development. The authors' recommendations emphasize the need for drawing upon communication and social science theories of information behavior, reaching out to consumers via a range of traditional and novel formats, gaining better understanding of the public's health information needs, and developing informatics solutions for tailoring resources to users' needs and competencies. This article was written as a scholarly outreach and leadership project by members of the American Medical Informatics Association's Consumer Health Informatics Working Group.

Mesh:

Year:  2008        PMID: 18436895      PMCID: PMC2442255          DOI: 10.1197/jamia.M2744

Source DB:  PubMed          Journal:  J Am Med Inform Assoc        ISSN: 1067-5027            Impact factor:   4.497


  47 in total

Review 1.  Examination of instruments used to rate quality of health information on the internet: chronicle of a voyage with an unclear destination.

Authors:  Anna Gagliardi; Alejandro R Jadad
Journal:  BMJ       Date:  2002-03-09

2.  Supporting families' savvy use of the Internet for health research.

Authors:  E Ahmann
Journal:  Pediatr Nurs       Date:  2000 Jul-Aug

Review 3.  Empirical studies assessing the quality of health information for consumers on the world wide web: a systematic review.

Authors:  Gunther Eysenbach; John Powell; Oliver Kuss; Eun-Ryoung Sa
Journal:  JAMA       Date:  2002 May 22-29       Impact factor: 56.272

4.  Characteristics of consumer terminology for health information retrieval.

Authors:  Q Zeng; S Kogan; N Ash; R A Greenes; A A Boxwala
Journal:  Methods Inf Med       Date:  2002       Impact factor: 2.176

5.  Functional health literacy and the risk of hospital admission among Medicare managed care enrollees.

Authors:  David W Baker; Julie A Gazmararian; Mark V Williams; Tracy Scott; Ruth M Parker; Diane Green; Junling Ren; Jennifer Peel
Journal:  Am J Public Health       Date:  2002-08       Impact factor: 9.308

6.  A multidiscipline conceptual framework for consumer health informatics.

Authors:  Robert A Logan; Tony Tse
Journal:  Stud Health Technol Inform       Date:  2007

7.  Breast cancer on the world wide web: cross sectional survey of quality of information and popularity of websites.

Authors:  Funda Meric; Elmer V Bernstam; Nadeem Q Mirza; Kelly K Hunt; Frederick C Ames; Merrick I Ross; Henry M Kuerer; Raphael E Pollock; Mark A Musen; S Eva Singletary
Journal:  BMJ       Date:  2002-03-09

Review 8.  Information needs and information-seeking behaviors of men with prostate cancer and their partners: a review of the literature.

Authors:  Kezia N Echlin; Charlotte E Rees
Journal:  Cancer Nurs       Date:  2002-02       Impact factor: 2.592

9.  Association of health literacy with diabetes outcomes.

Authors:  Dean Schillinger; Kevin Grumbach; John Piette; Frances Wang; Dennis Osmond; Carolyn Daher; Jorge Palacios; Gabriela Diaz Sullivan; Andrew B Bindman
Journal:  JAMA       Date:  2002 Jul 24-31       Impact factor: 56.272

10.  Evaluation of controlled vocabulary resources for development of a consumer entry vocabulary for diabetes.

Authors:  T B Patrick; H K Monga; M E Sievert; J Houston Hall; D R Longo
Journal:  J Med Internet Res       Date:  2001 Jul-Sep       Impact factor: 5.428

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  46 in total

1.  Facilitating consumer clinical information seeking by maintaining referential context: evaluation of a prototypic approach.

Authors:  David F Lobach; Andrew Waters; Garry M Silvey; Shelly J Clark; Sri Kalyanaraman; Kensaku Kawamoto; Isaac Lipkus
Journal:  AMIA Annu Symp Proc       Date:  2009-11-14

2.  Patient Experiences Using an Inpatient Personal Health Record.

Authors:  Janet Woollen; Jennifer Prey; Lauren Wilcox; Alexander Sackeim; Susan Restaino; Syed T Raza; Suzanne Bakken; Steven Feiner; George Hripcsak; David Vawdrey
Journal:  Appl Clin Inform       Date:  2016-06-01       Impact factor: 2.342

3.  Service Desk Calls in a Home-based Clinical Informatics Study: Supporting End Users in the Field.

Authors:  Rs Valdez; Lj Burke; Gr Casper; Ba Sturgeon; C Rosmait; D Palzkill; D Hamann; J Murphy; Pf Brennan
Journal:  NI 2012 (2012)       Date:  2012-06-23

4.  A semantic and syntactic text simplification tool for health content.

Authors:  Sasikiran Kandula; Dorothy Curtis; Qing Zeng-Treitler
Journal:  AMIA Annu Symp Proc       Date:  2010-11-13

5.  Commercial off-the-shelf consumer health informatics interventions: recommendations for their design, evaluation and redesign.

Authors:  Jenna L Marquard; Teresa Zayas-Cabán
Journal:  J Am Med Inform Assoc       Date:  2011-07-04       Impact factor: 4.497

6.  Predictors of Online Health Information Seeking Among Women with Breast Cancer: The Role of Social Support Perception and Emotional Well-Being.

Authors:  Sojung Claire Kim; Dhavan V Shah; Kang Namkoong; Fiona M McTavish; David H Gustafson
Journal:  J Comput Mediat Commun       Date:  2013-01

7.  The Development of a Communication Tool to Facilitate the Cancer Trial Recruitment Process and Increase Research Literacy among Underrepresented Populations.

Authors:  Samantha Torres; Erika E de la Riva; Laura S Tom; Marla L Clayman; Chirisse Taylor; Xinqi Dong; Melissa A Simon
Journal:  J Cancer Educ       Date:  2015-12       Impact factor: 2.037

8.  Using animation as an information tool to advance health research literacy among minority participants.

Authors:  Sheba George; Erin Moran; Nelida Duran; Robert A Jenders
Journal:  AMIA Annu Symp Proc       Date:  2013-11-16

9.  Current Challenge in Consumer Health Informatics: Bridging the Gap between Access to Information and Information Understanding.

Authors:  Laurence Alpay; John Verhoef; Bo Xie; Dov Te'eni; J H M Zwetsloot-Schonk
Journal:  Biomed Inform Insights       Date:  2009-01-01

10.  Acceptability of a personally controlled health record in a community-based setting: implications for policy and design.

Authors:  Elissa R Weitzman; Liljana Kaci; Kenneth D Mandl
Journal:  J Med Internet Res       Date:  2009-04-29       Impact factor: 5.428

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