Literature DB >> 18414297

Huntington's disease. Part 3: family aspects of HD.

Aimee Aubeeluck1, Carol Brown Moskowitz.   

Abstract

Research into the experience of the Huntington's disease (HD) family caregiver has established that HD carers experience a number of unique obstacles within their caregiving role. This appears to be due to the chronic nature of the disease, both in terms of genetic inheritance and the prolonged disease process itself. Moreover, due to the complex, physical, neurological, psychiatric and genetic elements of HD, service provision may often be unsuitable leaving family members burdened with the main responsibility of care. The complex nature of HD requires service providers, researchers and policy makers to consider each case on an individual basis, thus tailoring service provision to the user and their family's unique requirements.

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Year:  2008        PMID: 18414297     DOI: 10.12968/bjon.2008.17.5.28830

Source DB:  PubMed          Journal:  Br J Nurs        ISSN: 0966-0461


  6 in total

Review 1.  Therapy in Huntington's disease: where are we?

Authors:  Martha A Nance
Journal:  Curr Neurol Neurosci Rep       Date:  2012-08       Impact factor: 5.081

2.  'All the burden on all the carers': exploring quality of life with family caregivers of Huntington's disease patients.

Authors:  Aimee Victoria Aubeeluck; Heather Buchanan; Edward J N Stupple
Journal:  Qual Life Res       Date:  2011-11-13       Impact factor: 4.147

3.  "Grasping the grey": patient understanding and interpretation of an intermediate allele predictive test result for Huntington disease.

Authors:  A Semaka; L G Balneaves; M R Hayden
Journal:  J Genet Couns       Date:  2012-08-18       Impact factor: 2.537

4.  Utilisation of Healthcare and Associated Services in Huntington's disease: a data mining study.

Authors:  Monica Busse; Dr Hasan Al-Madfai; Joyce Kenkre; G Bernhard Landwehrmeyer; Annarita Bentivoglio; Anne Rosser
Journal:  PLoS Curr       Date:  2011-01-21

5.  Exploring the Reliability and Validity of the Huntington's Disease Quality of Life Battery for Carers (HDQoL-C) within A Polish Population.

Authors:  Agnieszka Bartoszek; Aimee Aubeeluck; Edward Stupple; Adrian Bartoszek; Katarzyna Kocka; Barbara Ślusarska
Journal:  Int J Environ Res Public Health       Date:  2019-06-30       Impact factor: 3.390

6.  Influence of Age of Onset on Huntington's Disease Phenotype.

Authors:  Lauren Kwa; Danielle Larson; Chen Yeh; Danny Bega
Journal:  Tremor Other Hyperkinet Mov (N Y)       Date:  2020-07-09
  6 in total

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