Literature DB >> 18363270

Group risks, risks to groups, and group engagement in genetics research.

Daniel M Hausman1.   

Abstract

This essay distinguishes between two kinds of group harms: harms to individuals in virtue of their membership in groups and harms to "structured" groups that have a continuing existence, an organization, and interests of their own. Genetic research creates risks of causing both kinds of group harms, and engagement with the groups at risk can help to mitigate those harms. The two kinds of group harms call for different kinds of group engagement.

Mesh：

Year:  2007        PMID： 18363270     DOI： 10.1353/ken.2008.0009

Source DB:  PubMed          Journal:  Kennedy Inst Ethics J        ISSN： 1054-6863


  10 in total

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Authors:  Deven McGraw; Sarah M Greene; Caroline S Miner; Karen L Staman; Mary Jane Welch; Alan Rubel
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5.  Human subjects protections in community-engaged research: a research ethics framework.

Authors:  Lainie Friedman Ross; Allan Loup; Robert M Nelson; Jeffrey R Botkin; Rhonda Kost; George R Smith; Sarah Gehlert
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6.  Community-Engaged Research Ethics Review: Exploring Flexibility in Federal Regulations.

Authors:  Stephanie Solomon Cargill; Debra DeBruin; Milton Eder; Elizabeth Heitman; Julie M Kaberry; Jennifer B McCormick; Jennifer Opp; Richard Sharp; A Hal Strelnick; Sabune J Winkler; Mark Yarborough; Emily E Anderson
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7.  Pediatric biobanks: approaching informed consent for continuing research after children grow up.

Authors:  Aaron J Goldenberg; Sara Chandros Hull; Jeffrey R Botkin; Benjamin S Wilfond
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Review 8.  Addressing underrepresentation in genomics research through community engagement.

Authors:  Amy A Lemke; Edward D Esplin; Aaron J Goldenberg; Claudia Gonzaga-Jauregui; Neil A Hanchard; Julie Harris-Wai; Justin E Ideozu; Rosario Isasi; Andrew P Landstrom; Anya E R Prince; Erin Turbitt; Maya Sabatello; Samantha A Schrier Vergano; Matthew R G Taylor; Joon-Ho Yu; Kyle B Brothers; Nanibaa' A Garrison
Journal:  Am J Hum Genet       Date:  2022-09-01       Impact factor: 11.043

9.  Obligations of the "Gift": Reciprocity and Responsibility in Precision Medicine.

Authors:  Sandra Soo-Jin Lee
Journal:  Am J Bioeth       Date:  2020-12-16       Impact factor: 11.229

10.  Ethics in practice: the state of the debate on promoting the social value of global health research in resource poor settings particularly Africa.

Authors:  Geoffrey M Lairumbi; Parker Michael; Raymond Fitzpatrick; Michael C English
Journal:  BMC Med Ethics       Date:  2011-11-15       Impact factor: 2.652
  10 in total

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