Literature DB >> 18353751

I'll show them: the social construction of (in)competence in survivors of childhood brain tumors.

Katherine M Boydell1, Elaine Stasiulis, Mark Greenberg, Corin Greenberg, Brenda Spiegler.   

Abstract

Multimodal therapy for the treatment of childhood cancer has resulted in increased survival rates, yet as growing cohorts of children mature, late effects are becoming apparent. Specifically, brain tumor survivors tend to have poor social skills, peer relationship problems, academic difficulties, and delayed college entry. This article addresses findings specific to the unique experience of childhood cancer survivors as they transition from adolescence to adulthood. Qualitative methods involving focus groups and in-depth interviews with 14 childhood cancer survivors and 22 family members were used. The dialectic of incompetence/competence pervaded all narratives. Contradictory concepts of integration/ isolation, realistic/unrealistic goals, and the need for special help/no help were underscored by respondents. The struggle to deal with these contradictory factors led to the simultaneous resistance and acceptance of feelings of competence.

Entities:  

Mesh:

Year:  2008        PMID: 18353751     DOI: 10.1177/1043454208315547

Source DB:  PubMed          Journal:  J Pediatr Oncol Nurs        ISSN: 1043-4542            Impact factor:   1.636


  19 in total

Review 1.  Psychosocial distress and its effects on the health-related quality of life of primary brain tumor patients.

Authors:  Dina Randazzo; Katherine B Peters
Journal:  CNS Oncol       Date:  2016-07-11

2.  Life satisfaction in adult survivors of childhood brain tumors.

Authors:  Deborah B Crom; Zhenghong Li; Tara M Brinkman; Melissa M Hudson; Gregory T Armstrong; Joseph Neglia; Kirsten K Ness
Journal:  J Pediatr Oncol Nurs       Date:  2014-07-15       Impact factor: 1.636

3.  Patterns of unmet needs in adolescent and young adult (AYA) cancer survivors: in their own words.

Authors:  Alex W K Wong; Ting-Ting Chang; Katrina Christopher; Stephen C L Lau; Lynda K Beaupin; Brad Love; Kim L Lipsey; Michael Feuerstein
Journal:  J Cancer Surviv       Date:  2017-03-29       Impact factor: 4.442

4.  Executive functions and social skills in survivors of pediatric brain tumor.

Authors:  Kelly R Wolfe; Karin S Walsh; Nina C Reynolds; Frances Mitchell; Alyssa T Reddy; Iris Paltin; Avi Madan-Swain
Journal:  Child Neuropsychol       Date:  2012-03-15       Impact factor: 2.500

5.  Meaning Making and Religious Engagement Among Survivors of Childhood Brain Tumors and Their Caregivers.

Authors:  Em Rabelais; Nora L Jones; Connie M Ulrich; Janet A Deatrick
Journal:  Oncol Nurs Forum       Date:  2019-03-01       Impact factor: 2.172

6.  Health-Related Quality of Life of Young Adult Survivors of Childhood Cancer: A Review of Qualitative Studies.

Authors:  Chandylen L Nightingale; Gwendolyn P Quinn; Elizabeth A Shenkman; Barbara A Curbow; Bradley J Zebrack; Kevin R Krull; I-Chan Huang
Journal:  J Adolesc Young Adult Oncol       Date:  2011-09       Impact factor: 2.223

Review 7.  Social competence in childhood brain tumor survivors: a comprehensive review.

Authors:  Fiona Schulte; Maru Barrera
Journal:  Support Care Cancer       Date:  2010-08-01       Impact factor: 3.603

8.  Using three legacy measures to develop a health-related quality of life tool for young adult survivors of childhood cancer.

Authors:  I-Chan Huang; Gwendolyn P Quinn; Pey-Shan Wen; Elizabeth A Shenkman; Dennis A Revicki; Kevin Krull; Zhushan Li; Patricia D Shearer
Journal:  Qual Life Res       Date:  2011-11-20       Impact factor: 4.147

9.  Restricted access to the environment and quality of life in adult survivors of childhood brain tumors.

Authors:  Tara M Brinkman; Zhenghong Li; Joseph P Neglia; Amar Gajjar; James L Klosky; Rachel Allgood; Marilyn Stovall; Kevin R Krull; Gregory T Armstrong; Kirsten K Ness
Journal:  J Neurooncol       Date:  2012-11-11       Impact factor: 4.130

10.  Competence in caregivers of adolescent and young adult childhood brain tumor survivors.

Authors:  Janet A Deatrick; Wendy Hobbie; Sue Ogle; Michael J Fisher; Lamia Barakat; Thomas Hardie; Maureen Reilly; Yimei Li; Jill P Ginsberg
Journal:  Health Psychol       Date:  2013-08-19       Impact factor: 4.267

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