Literature DB >> 18222128

Health-related quality of life in adults with cystic fibrosis: the role of coping.

Janice Abbott1, Anna Hart, Alison Morton, Louise Gee, Steven Conway.   

Abstract

OBJECTIVE: This study examined the role of coping in explaining health-related quality of life (HRQoL) in cystic fibrosis (CF).
METHODS: Coping, quality of life, and clinical variables were assessed. The CF Coping Scale measures four ways of coping: optimistic acceptance, hopefulness, distraction, and avoidance. The Cystic Fibrosis Quality of Life Questionnaire (CFQoL) comprises 9 domains: physical, social, treatment, chest symptoms, emotional, body image, relationships, career, and future. Step-wise multiple regression and path analysis were used to model the associations between coping and CFQoL domains, taking into account important demographic and clinical factors.
RESULTS: One hundred and sixteen people with CF were recruited to the study. Their mean FEV(1)% predicted and BMI were 59.3% and 21.2 kg/m(2), respectively. Mean scores were highest for optimism and lowest for distraction coping. Coping had an inequitable influence across the CFQoL domains: it had negligible influence on domains that incorporate symptoms and aspects of physical functioning but considerable influence on psychosocial domains. Optimism and distraction were strongly associated with emotional responses, social functioning, and interpersonal relationships. A high level of optimism was associated with a better HRQoL and high levels of distraction with a poorer HRQoL. For some domains, optimism and distraction had a counterbalancing effect so the difference between them could be an important predictor of HRQoL.
CONCLUSION: Coping has emerged as an important factor in explaining some quality-of-life domains but not others. This has important implications especially when employing HRQoL as an outcome measure in clinical trials.

Entities:  

Mesh:

Year:  2008        PMID: 18222128     DOI: 10.1016/j.jpsychores.2007.08.017

Source DB:  PubMed          Journal:  J Psychosom Res        ISSN: 0022-3999            Impact factor:   3.006


  17 in total

Review 1.  Quality of life in rare genetic conditions: a systematic review of the literature.

Authors:  Julie S Cohen; Barbara B Biesecker
Journal:  Am J Med Genet A       Date:  2010-05       Impact factor: 2.802

Review 2.  Developmental and psychosocial issues in cystic fibrosis.

Authors:  Michelle M Ernst; Mark C Johnson; Lori J Stark
Journal:  Child Adolesc Psychiatr Clin N Am       Date:  2010-04

Review 3.  Lung transplant referral for individuals with cystic fibrosis: Cystic Fibrosis Foundation consensus guidelines.

Authors:  Kathleen J Ramos; Patrick J Smith; Edward F McKone; Joseph M Pilewski; Amy Lucy; Sarah E Hempstead; Erin Tallarico; Albert Faro; Daniel B Rosenbluth; Alice L Gray; Jordan M Dunitz
Journal:  J Cyst Fibros       Date:  2019-03-27       Impact factor: 5.482

4.  Growing up with cystic fibrosis: achievement, life satisfaction, and mental health.

Authors:  Tanja Besier; Lutz Goldbeck
Journal:  Qual Life Res       Date:  2012-01-04       Impact factor: 4.147

5.  Associations between illness perceptions and health-related quality of life in adults with cystic fibrosis.

Authors:  Gregory S Sawicki; Deborah E Sellers; Walter M Robinson
Journal:  J Psychosom Res       Date:  2010-08-10       Impact factor: 3.006

6.  Identifying Factors that Facilitate Treatment Adherence in Cystic Fibrosis: Qualitative Analyses of Interviews with Parents and Adolescents.

Authors:  Christina J Nicolais; Ruth Bernstein; Estefany Saez-Flores; Katherine A McLean; Kristin A Riekert; Alexandra L Quittner
Journal:  J Clin Psychol Med Settings       Date:  2019-12

7.  Depression and anxiety symptoms in bronchiectasis: associations with health-related quality of life.

Authors:  Casilda Olveira; Gabriel Olveira; Inmaculada Gaspar; Antonio Dorado; Ivette Cruz; Federico Soriguer; Alexandra L Quittner; Francisco Espildora
Journal:  Qual Life Res       Date:  2012-04-29       Impact factor: 4.147

Review 8.  Adaptation to living with a genetic condition or risk: a mini-review.

Authors:  B B Biesecker; L Erby
Journal:  Clin Genet       Date:  2008-09-24       Impact factor: 4.438

9.  Longitudinal trends in health-related quality of life in adults with cystic fibrosis.

Authors:  Edward J Dill; Ree Dawson; Deborah E Sellers; Walter M Robinson; Gregory S Sawicki
Journal:  Chest       Date:  2013-09       Impact factor: 9.410

Review 10.  Chronic illness and disordered eating: a discussion of the literature.

Authors:  Virginia M Quick; Carol Byrd-Bredbenner; Dianne Neumark-Sztainer
Journal:  Adv Nutr       Date:  2013-05-01       Impact factor: 8.701

View more

北京卡尤迪生物科技股份有限公司 © 2022-2023.