Literature DB >> 18184893

The ePedsQL in type 1 and type 2 diabetes: feasibility, reliability, and validity of the Pediatric Quality of Life Inventory Internet administration.

James W Varni1, Christine A Limbers, Tasha M Burwinkle, William P Bryant, Don P Wilson.   

Abstract

OBJECTIVE: The Pediatric Quality of Life Inventory (PedsQL) is a modular instrument designed to measure health-related quality of life (HRQOL) in children and adolescents aged 2-18 years. The PedsQL 4.0 Generic Core Scales are child self-report and parent proxy-report scales developed as the generic core measure to be integrated with the PedsQL disease-specific modules. The electronic version of the PedsQL 4.0 (ePedsQL) was designed for Internet administration. RESEARCH DESIGN AND METHODS: Utilizing a randomized crossover design, the PedsQL scales were administered to 92 pediatric patients with type 1 or type 2 diabetes and 93 parents in electronic and paper formats.
RESULTS: Missing values (0.76% child report, 0.37% parent report), internal consistency reliability (total scale score alpha = 0.90 child report, 0.92 parent report), and mean scores (total scale score M = 78.41 child report, 76.19 parent report) were equivalent between the electronic and paper-and-pencil modes of administration. The ePedsQL distinguished between healthy children and children with diabetes.
CONCLUSIONS: The ePedsQL Internet mode of administration demonstrated equivalent measurement properties to the well-established PedsQL paper-and-pencil mode of administration.

Entities:  

Mesh:

Year:  2008        PMID: 18184893     DOI: 10.2337/dc07-2021

Source DB:  PubMed          Journal:  Diabetes Care        ISSN: 0149-5992            Impact factor:   19.112


  21 in total

1.  Quality of life in paediatric eosinophilic oesophagitis: what is important to patients?

Authors:  J P Franciosi; K A Hommel; C W DeBrosse; A B Greenberg; A J Greenler; J P Abonia; M E Rothenberg; J W Varni
Journal:  Child Care Health Dev       Date:  2011-06-15       Impact factor: 2.508

2.  Evaluation of a family systems intervention for managing pediatric chronic illness: Mastering Each New Direction (MEND).

Authors:  Brian Distelberg; Jackie Williams-Reade; Daniel Tapanes; Susanne Montgomery; Mayuri Pandit
Journal:  Fam Process       Date:  2014-03-17

3.  Impact of monitoring health-related quality of life in clinical practice in children with type 1 diabetes mellitus.

Authors:  Marta Murillo; Joan Bel; Jacobo Pérez; Raquel Corripio; Gemma Carreras; Xavier Herrero; Josep-Maria Mengibar; Dolors Rodriguez-Arjona; Ulrike Ravens-Sieberer; Hein Raat; Luis Rajmil
Journal:  Qual Life Res       Date:  2017-08-12       Impact factor: 4.147

4.  Diabetes symptoms predictors of health-related quality of life in adolescents and young adults with type 1 or type 2 diabetes.

Authors:  James W Varni; Alan M Delamater; Korey K Hood; Jennifer K Raymond; Kimberly A Driscoll; Jenise C Wong; Saleh Adi; Joyce P Yi-Frazier; Ellen K Grishman; Melissa A Faith; Sarah D Corathers; Jessica C Kichler; Jennifer L Miller; Elena M Doskey; Vincent P Aguirre; Robert W Heffer; Don P Wilson
Journal:  Qual Life Res       Date:  2018-05-21       Impact factor: 4.147

Review 5.  Equivalence of electronic and paper-based patient-reported outcome measures.

Authors:  Niloufar Campbell; Faraz Ali; Andrew Y Finlay; Sam S Salek
Journal:  Qual Life Res       Date:  2015-02-22       Impact factor: 4.147

6.  Reliability and validity of the Iranian version of the Pediatric Quality of Life Inventory™ 4.0 Generic Core Scales in adolescents.

Authors:  Parisa Amiri; Emad M Ardekani; Sara Jalali-Farahani; Farhad Hosseinpanah; James W Varni; Fazlollah Ghofranipour; Ali Montazeri; Fereidoun Azizi
Journal:  Qual Life Res       Date:  2010-07-28       Impact factor: 4.147

7.  Health-related quality of life over time in children with eosinophilic esophagitis and their families.

Authors:  Mary D Klinnert; Lori Silveira; Rachel Harris; Wendy Moore; Dan Atkins; David M Fleischer; Calies Menard-Katcher; Seema Aceves; Jonathan M Spergel; James P Franciosi; Glenn T Furuta
Journal:  J Pediatr Gastroenterol Nutr       Date:  2014-09       Impact factor: 2.839

8.  Psychometric properties of the PROMIS ® pediatric scales: precision, stability, and comparison of different scoring and administration options.

Authors:  James W Varni; Brooke Magnus; Brian D Stucky; Yang Liu; Hally Quinn; David Thissen; Heather E Gross; I-Chan Huang; Darren A DeWalt
Journal:  Qual Life Res       Date:  2013-10-02       Impact factor: 4.147

Review 9.  Depression and quality of life in youth-onset type 2 diabetes mellitus.

Authors:  Natalie Walders-Abramson
Journal:  Curr Diab Rep       Date:  2014-01       Impact factor: 4.810

10.  Health related quality of life of Dutch children: psychometric properties of the PedsQL in the Netherlands.

Authors:  Vivian Engelen; Marleen M Haentjens; Symone B Detmar; Hendrik M Koopman; Martha A Grootenhuis
Journal:  BMC Pediatr       Date:  2009-11-03       Impact factor: 2.125

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