Literature DB >> 24635346

Evaluation of a family systems intervention for managing pediatric chronic illness: Mastering Each New Direction (MEND).

Brian Distelberg1, Jackie Williams-Reade, Daniel Tapanes, Susanne Montgomery, Mayuri Pandit.   

Abstract

Family systems play a crucial, albeit complex, role in pediatric chronic illness. Unfortunately, very few psychosocial interventions are available to help these stressed families navigate the developmental steps of chronic illness. A new intervention (MEND) addresses the needs of these families and applies to a broad range of chronic illnesses. This article presents this family systems intervention as well as includes preliminary program evaluation data on 22 families that graduated from the program. Results show consistently strong effects across an array of psychosocial measures. Conclusions from this preliminary study suggest that families entering MEND present with high levels of stress due to the child's chronic illness, but after MEND, the level of stress and other functioning measures are comparable to those seen in healthy families, suggesting that the program offers a significant benefit to families with pediatric chronic illness.
© 2014 FPI, Inc.

Entities:  

Keywords:  Chronic illness; Diabetes; Kidney Disease; Pediatric; Psychosocial Intervention; Rheumatology; diabetes; enfermedad crónica; enfermedad renal; intervención psicosocial; pediátrica; reumatología; 小儿科; 心理干预; 慢性疾病; 糖尿病; 肾病; 风湿病学

Mesh:

Year:  2014        PMID: 24635346      PMCID: PMC4486080          DOI: 10.1111/famp.12066

Source DB:  PubMed          Journal:  Fam Process        ISSN: 0014-7370


  29 in total

1.  Common factors and our sacred models.

Authors:  Douglas H Sprenkle; Adrian J Blow
Journal:  J Marital Fam Ther       Date:  2004-04

2.  Multisystemic therapy compared to telephone support for youth with poorly controlled diabetes: findings from a randomized controlled trial.

Authors:  Deborah A Ellis; Sylvie Naar-King; Xinguang Chen; Kathleen Moltz; Phillippe B Cunningham; April Idalski-Carcone
Journal:  Ann Behav Med       Date:  2012-10

3.  PedsQL 4.0: reliability and validity of the Pediatric Quality of Life Inventory version 4.0 generic core scales in healthy and patient populations.

Authors:  J W Varni; M Seid; P S Kurtin
Journal:  Med Care       Date:  2001-08       Impact factor: 2.983

4.  Beyond the "psychosomatic family": a biobehavioral family model of pediatric illness.

Authors:  B L Wood
Journal:  Fam Process       Date:  1993-09

5.  Quality of life and adjustment in youths with asthma: the contributions of family rituals and the family environment.

Authors:  Susana Santos; Carla Crespo; Neuza Silva; Maria Cristina Canavarro
Journal:  Fam Process       Date:  2012-09-20

6.  Use of multisystemic therapy to improve regimen adherence among adolescents with type 1 diabetes in chronic poor metabolic control: a randomized controlled trial.

Authors:  Deborah A Ellis; Maureen A Frey; Sylvie Naar-King; Thomas Templin; Phillippe Cunningham; Nedim Cakan
Journal:  Diabetes Care       Date:  2005-07       Impact factor: 19.112

7.  The PedsQL in type 1 and type 2 diabetes: reliability and validity of the Pediatric Quality of Life Inventory Generic Core Scales and type 1 Diabetes Module.

Authors:  James W Varni; Tasha M Burwinkle; Jenifer R Jacobs; Michael Gottschalk; Francine Kaufman; Kenneth L Jones
Journal:  Diabetes Care       Date:  2003-03       Impact factor: 19.112

8.  Efficacy of psychosocial group intervention for children with chronic illness and their parents.

Authors:  Linde Scholten; Agnes M Willemen; Bob F Last; Heleen Maurice-Stam; Elisabeth M van Dijk; Elske Ensink; Noortje Zandbelt; Aafke van der Hoop-Mooij; Carlo Schuengel; Martha A Grootenhuis
Journal:  Pediatrics       Date:  2013-03-11       Impact factor: 7.124

9.  Prevalence of multiple chronic conditions among US adults: estimates from the National Health Interview Survey, 2010.

Authors:  Brian W Ward; Jeannine S Schiller
Journal:  Prev Chronic Dis       Date:  2013-04-25       Impact factor: 2.830

10.  The PedsQL Family Impact Module: preliminary reliability and validity.

Authors:  James W Varni; Sandra A Sherman; Tasha M Burwinkle; Paige E Dickinson; Pamela Dixon
Journal:  Health Qual Life Outcomes       Date:  2004-09-27       Impact factor: 3.186

View more
  4 in total

1.  Quality of Life and School Absenteeism in Children With Chronic Illness.

Authors:  Natacha D Emerson; Brian Distelberg; Holly E R Morrell; Jackie Williams-Reade; Daniel Tapanes; Susanne Montgomery
Journal:  J Sch Nurs       Date:  2015-11-15       Impact factor: 2.835

2.  A Cost-Benefit Analysis of a Family Systems Intervention for Managing Pediatric Chronic Illness.

Authors:  Brian J Distelberg; Natacha D Emerson; Paul Gavaza; Daniel Tapanes; Whitney N Brown; Huma Shah; Jacqueline Williams-Reade; Susanne Montgomery
Journal:  J Marital Fam Ther       Date:  2016-06-10

3.  An Analysis of a Novel, Short-Term Therapeutic Psychoeducational Program for Children and Adolescents with Chronic Neurological Illness and Their Parents; Feasibility and Efficacy.

Authors:  Bonglim Joo; Young-Mock Lee; Heung Dong Kim; Soyong Eom
Journal:  Front Neurosci       Date:  2017-05-31       Impact factor: 4.677

4.  Caregivers' Sensemaking of Children's Hereditary Angioedema: A Semiotic Narrative Analysis of the Sense of Grip on the Disease.

Authors:  Maria Francesca Freda; Livia Savarese; Pasquale Dolce; Raffaele De Luca Picione
Journal:  Front Psychol       Date:  2019-11-27
  4 in total

北京卡尤迪生物科技股份有限公司 © 2022-2023.