Literature DB >> 18174538

Exploring the personal reality of disability and recovery: a tool for empowering the rehabilitation process.

Ashley E Kurz1, Nicole Saint-Louis, Janice P Burke, Margaret G Stineman.   

Abstract

People experiencing disability and chronic disease often feel powerless, relinquishing medical control to "more knowledgeable" professionals. This article presents qualitative and quantitative results from three individual patients experiencing an emerging procedure called Recovery Preference Exploration (RPE). To inspire greater patient involvement, self-direction, and individual choice, we instructed participants to create an imagined recovery path, exposing recovery preferences while learning about clinical rehabilitation concepts. Results uncovered important values and feelings about disability, providing a richer context for patient evaluation and treatment goal modification. Applying mixed methods, RPE is presented as an explanatory process for quantifying recovery preferences in a way that stimulates rich narrative of how people see different types of disabilities. RPE shows promise for increasing depth of discussions among patients, family, and clinicians. RPE may promote greater quality of life through patient empowerment by directed learning, increased communication, and enhanced self-knowledge.

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Mesh:

Year:  2008        PMID: 18174538      PMCID: PMC2879973          DOI: 10.1177/1049732307309006

Source DB:  PubMed          Journal:  Qual Health Res        ISSN: 1049-7323


  24 in total

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  4 in total

Review 1.  The biopsycho-ecological paradigm: a foundational theory for medicine.

Authors:  Margaret Grace Stineman; Joel E Streim
Journal:  PM R       Date:  2010-11       Impact factor: 2.298

2.  Recovery from disablement: what functional abilities do rehabilitation professionals value the most?

Authors:  Pamela M Rist; Damean W Freas; Greg Maislin; Margaret G Stineman
Journal:  Arch Phys Med Rehabil       Date:  2008-07-02       Impact factor: 3.966

3.  Through the clinician's lens: objective and subjective views of disability.

Authors:  Margaret G Stineman; Pamela M Rist; Janice P Burke
Journal:  Qual Health Res       Date:  2008-11-24

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Authors:  Margaret G Stineman; Pamela M Rist; Jibby E Kurichi; Greg Maislin
Journal:  Qual Life Res       Date:  2009-02-04       Impact factor: 4.147

  4 in total

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