Literature DB >> 18096008

Parents' concerns about issues related to their children's genetic conditions.

Agatha M Gallo1, Emily K Hadley, Denise B Angst, Kathleen A Knafl, Carrol A M Smith.   

Abstract

PURPOSE: The purpose of this analysis was to examine parents' (N = 142) concerns about issues (i.e., privacy of information, insurance, healthcare costs, employment, school) related to their children's genetic conditions. DESIGN AND METHODS: Using a series of matrices, thematic analysis was conducted focusing on parents' concerns.
RESULTS: Parents were less concerned with privacy and more concerned with insurance, healthcare costs, employment, and school issues. PRACTICE IMPLICATIONS: Nurses and other healthcare professionals need to give parents the opportunity to discuss their concerns and to assist parents with strategies and resources to meet the needs of their children and families.

Entities:  

Mesh:

Year:  2008        PMID: 18096008     DOI: 10.1111/j.1744-6155.2008.00129.x

Source DB:  PubMed          Journal:  J Spec Pediatr Nurs        ISSN: 1539-0136            Impact factor:   1.260


  8 in total

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Review 2.  The interplay of concepts, data, and methods in the development of the Family Management Style Framework.

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7.  Using information technology and social networking for recruitment of research participants: experience from an exploratory study of pediatric Klinefelter syndrome.

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8.  Difficulties in the diagnosis and treatment of rare diseases according to the perceptions of patients, relatives and health care professionals.

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  8 in total

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