Literature DB >> 17968035

Living with epilepsy: ordinary people coping with extraordinary situations.

Hanna Admi1, Beatrice Shaham.   

Abstract

This replicated study explores the ordinary people theory generated in the original research among American youth with cystic fibrosis through the experience of Israeli youth with epilepsy. The authors used the qualitative life history method in a sample of 14 adolescents and young adults with epilepsy. They employed the constant comparative method of analysis to analyze the data collected from the in-depth interviews. The results show that epilepsy was not central to the participants' everyday lives. Their perceptions of the disease followed developmental stages. The authors found that coping methods were adaptive and took into account social stigma and practical outcomes. This study provides a positive and normalcy perspective of exploring the lifestyle of people with chronic diseases and disabilities as opposed to deficit models. It adds to the trustworthiness of the model's cross-cultural applicability through its use in a different context among a population with a different diagnosis.

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Year:  2007        PMID: 17968035     DOI: 10.1177/1049732307307548

Source DB:  PubMed          Journal:  Qual Health Res        ISSN: 1049-7323


  8 in total

1.  Development and initial validation of the barriers to diabetes adherence measure for adolescents.

Authors:  Shelagh A Mulvaney; Korey K Hood; David G Schlundt; Chandra Y Osborn; Kevin B Johnson; Russell L Rothman; Kenneth A Wallston
Journal:  Diabetes Res Clin Pract       Date:  2011-07-07       Impact factor: 5.602

2.  'Whom will I give him to? The difficulty is mine' : Psychosocial difficulties experienced by care givers of patients with epilepsy in Cape Town, South Africa.

Authors:  Mpoe Johannah Keikelame; Leslie Swartz
Journal:  J Health Psychol       Date:  2016-07-10

Review 3.  Knowledge and information needs of young people with epilepsy and their parents: Mixed-method systematic review.

Authors:  Sheila A Lewis; Jane Noyes; Stephen Mackereth
Journal:  BMC Pediatr       Date:  2010-12-31       Impact factor: 2.125

4.  Effect of education based on "PRECEDE" model on self-care behavior in hemodialysis patients.

Authors:  Fariba Mosavi; Fatemeh Aliakbari; Leili Rabiei
Journal:  J Educ Health Promot       Date:  2020-03-31

5.  The centrality of disclosure decisions to the illness experience for youth with chronic conditions: A qualitative study.

Authors:  Roberta Lynn Woodgate; Pauline Tennent; Sarah Barriage; Nicole Legras
Journal:  J Health Psychol       Date:  2020-09-28

6.  The everyday experience of living with and managing a neurological condition (the LINC study): study design.

Authors:  Joan Versnel; Tanya Packer; Lori E Weeks; Jocelyn Brown; Marshall Godwin; Susan Hutchinson; George Kephart; Diane MacKenzie; Kerstin Roger; Robin Stadnyk; Michelle Villeneuve; Grace Warner
Journal:  BMC Neurol       Date:  2013-03-21       Impact factor: 2.474

7.  Persons with Epilepsy: Between Social Inclusion and Marginalisation.

Authors:  Simona Mlinar; Davorina Petek; Živa Cotič; Metka Mencin Čeplak; Marjan Zaletel
Journal:  Behav Neurol       Date:  2016-04-26       Impact factor: 3.342

8.  Psychosocial Factors in the Experience of Epilepsy: A Qualitative Analysis of Narratives.

Authors:  Simona Mlinar; Zvonka Rener Primec; Davorina Petek
Journal:  Behav Neurol       Date:  2021-07-26       Impact factor: 3.342

  8 in total

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