Literature DB >> 17942272

An advance directive redesigned to meet the literacy level of most adults: a randomized trial.

Rebecca L Sudore1, C Seth Landefeld, Deborah E Barnes, Karla Lindquist, Brie A Williams, Robert Brody, Dean Schillinger.   

Abstract

OBJECTIVE: To determine whether an advance directive redesigned to meet most adults' literacy needs (fifth grade reading level with graphics) was more useful for advance care planning than a standard form (>12th grade level).
METHODS: We enrolled 205 English and Spanish-speaking patients, aged >/=50 years from an urban, general medicine clinic. We randomized participants to review either form. Main outcomes included acceptability and usefulness in advance care planning. Participants then reviewed the alternate form; we assessed form preference and six-month completion rates.
RESULTS: Forty percent of enrolled participants had limited literacy. Compared to the standard form, the redesigned form was rated higher for acceptability and usefulness in care planning, P</=0.03, particularly for limited literacy participants (P for interaction </=0.07). The redesigned form was preferred by 73% of participants. More participants randomized to the redesigned form completed an advance directive at six months (19% vs. 8%, P=0.03); of these, 95% completed the redesigned form.
CONCLUSIONS: The redesigned advance directive was rated more acceptable and useful for advance care planning and was preferred over a standard form. It also resulted in higher six-month completion rates. PRACTICE IMPLICATIONS: An advance directive redesigned to meet most adults' literacy needs may better enable patients to engage in advance care planning.

Entities:  

Mesh:

Year:  2007        PMID: 17942272      PMCID: PMC2257986          DOI: 10.1016/j.pec.2007.08.015

Source DB:  PubMed          Journal:  Patient Educ Couns        ISSN: 0738-3991


  37 in total

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Journal:  Pediatrics       Date:  1996-06       Impact factor: 7.124

2.  A polio immunization pamphlet with increased appeal and simplified language does not improve comprehension to an acceptable level.

Authors:  T C Davis; D D Fredrickson; C Arnold; P W Murphy; M Herbst; J A Bocchini
Journal:  Patient Educ Couns       Date:  1998-01

3.  Patient preferences for communication with physicians about end-of-life decisions. SUPPORT Investigators. Study to Understand Prognoses and Preference for Outcomes and Risks of Treatment.

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Journal:  Ann Intern Med       Date:  1997-07-01       Impact factor: 25.391

4.  Impact of advance directive videotape on patient comprehension and treatment preferences.

Authors:  E A Siegert; E C Clipp; P Mulhausen; G Kochersberger
Journal:  Arch Fam Med       Date:  1996-04

5.  Improving the readability and processability of a pediatric informed consent document: effects on parents' understanding.

Authors:  Alan R Tait; Terri Voepel-Lewis; Shobha Malviya; Sandra J Philipson
Journal:  Arch Pediatr Adolesc Med       Date:  2005-04

6.  Readability of advance directive documents.

Authors:  B B Ott; T L Hardie
Journal:  Image J Nurs Sch       Date:  1997

7.  Use of a low-literacy patient education tool to enhance pneumococcal vaccination rates. A randomized controlled trial.

Authors:  T A Jacobson; D M Thomas; F J Morton; G Offutt; J Shevlin; S Ray
Journal:  JAMA       Date:  1999-08-18       Impact factor: 56.272

8.  Beyond advance directives: importance of communication skills at the end of life.

Authors:  James A Tulsky
Journal:  JAMA       Date:  2005-07-20       Impact factor: 56.272

9.  End-of-life care in black and white: race matters for medical care of dying patients and their families.

Authors:  Lisa C Welch; Joan M Teno; Vincent Mor
Journal:  J Am Geriatr Soc       Date:  2005-07       Impact factor: 5.562

10.  Randomized trial of geragogy-based medication instruction in the emergency department.

Authors:  K S Hayes
Journal:  Nurs Res       Date:  1998 Jul-Aug       Impact factor: 2.381

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  62 in total

1.  Racial and Ethnic Differences in Advance Directive Possession: Role of Demographic Factors, Religious Affiliation, and Personal Health Values in a National Survey of Older Adults.

Authors:  Ivy A Huang; John M Neuhaus; Winston Chiong
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2.  Which literacy skills are associated with smoking?

Authors:  Laurie T Martin; Ann Haas; Matthias Schonlau; Kathryn Pitkin Derose; Lindsay Rosenfeld; Rima Rudd; Stephen L Buka
Journal:  J Epidemiol Community Health       Date:  2011-10-14       Impact factor: 3.710

3.  Examining cultural factors that influence treatment decisions: a pilot study of Latino men with cancer.

Authors:  Iraida V Carrion; Frances R Nedjat-Haiem; David X Marquez
Journal:  J Cancer Educ       Date:  2013-12       Impact factor: 2.037

4.  Health Literacy Matters More Than Experience for Advance Care Planning Knowledge Among Older Adults.

Authors:  Sarah S Nouri; Deborah E Barnes; Aiesha M Volow; Ryan D McMahan; Margot Kushel; Chengshi Jin; John Boscardin; Rebecca L Sudore
Journal:  J Am Geriatr Soc       Date:  2019-08-19       Impact factor: 5.562

Review 5.  Interventions to improve patient comprehension in informed consent for medical and surgical procedures: a systematic review.

Authors:  Yael Schenker; Alicia Fernandez; Rebecca Sudore; Dean Schillinger
Journal:  Med Decis Making       Date:  2010-03-31       Impact factor: 2.583

6.  Advance care planning: an unsuitable subject for QOF?

Authors:  Benedict Hayhoe; Amanda Howe
Journal:  Br J Gen Pract       Date:  2014-12       Impact factor: 5.386

7.  A clinical framework for improving the advance care planning process: start with patients' self-identified barriers.

Authors:  Adam D Schickedanz; Dean Schillinger; C Seth Landefeld; Sara J Knight; Brie A Williams; Rebecca L Sudore
Journal:  J Am Geriatr Soc       Date:  2009-01       Impact factor: 5.562

8.  The Influence of Race/Ethnicity and Education on Family Ratings of the Quality of Dying in the ICU.

Authors:  Janet J Lee; Ann C Long; J Randall Curtis; Ruth A Engelberg
Journal:  J Pain Symptom Manage       Date:  2015-09-16       Impact factor: 3.612

9.  Readability of state-sponsored advance directive forms in the United States: a cross sectional study.

Authors:  Luke A Mueller; Kevin I Reid; Paul S Mueller
Journal:  BMC Med Ethics       Date:  2010-04-25       Impact factor: 2.652

10.  When previously expressed wishes conflict with best interests.

Authors:  Alexander K Smith; Bernard Lo; Rebecca Sudore
Journal:  JAMA Intern Med       Date:  2013-07-08       Impact factor: 21.873

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