Literature DB >> 17786809

Will forensic use of medical biobanks decrease public trust in healthcare services? Some empirical observations.

Christin Bexelius1, Klaus Hoeyer, Niels Lynöe.   

Abstract

AIM: The authors tested the prevalent hypothesis that forensic use of medical biobanks has a negative impact on public trust in healthcare services.
METHOD: A questionnaire was sent to 1,184 inhabitant in the age group 20-80 years in Stockholm County, Sweden, in November 2005.
RESULTS: With a response rate of 68.4%, the results showed that a majority (88.1%) of the respondents thought that it would be acceptable for the police to gain access to genetic samples stored in relation to healthcare; 5.6% said no and 6.3% were uncertain. In the case of police access to medical biobanks, a minority (6.3%) indicated that this would have a negative impact on their trust, a larger proportion (37.8%) that it would influence their trust in the healthcare services positively, and 56% stated that it would not affect their trust at all.
CONCLUSION: The hypothesis tested appears to be unfounded. This should cause us to reconsider prevalent assumptions and current policies on the interface of medical and forensic genetics.

Mesh:

Year:  2007        PMID: 17786809     DOI: 10.1080/14034940701280768

Source DB:  PubMed          Journal:  Scand J Public Health        ISSN: 1403-4948            Impact factor:   3.021


  5 in total

1.  Biobanks and the phantom public.

Authors:  Herbert Gottweis; Haidan Chen; Johannes Starkbaum
Journal:  Hum Genet       Date:  2011-07-20       Impact factor: 4.132

Review 2.  Identifiability in biobanks: models, measures, and mitigation strategies.

Authors:  Bradley Malin; Grigorios Loukides; Kathleen Benitez; Ellen Wright Clayton
Journal:  Hum Genet       Date:  2011-07-08       Impact factor: 4.132

3.  Public participation in genetic databases: crossing the boundaries between biobanks and forensic DNA databases through the principle of solidarity.

Authors:  Helena Machado; Susana Silva
Journal:  J Med Ethics       Date:  2015-07-02       Impact factor: 2.903

4.  Trust and digital privacy in healthcare: a cross-sectional descriptive study of trust and attitudes towards uses of electronic health data among the general public in Sweden.

Authors:  Sara Belfrage; Gert Helgesson; Niels Lynøe
Journal:  BMC Med Ethics       Date:  2022-03-04       Impact factor: 2.652

5.  Forensic uses of research biobanks: should donors be informed?

Authors:  Vilius Dranseika; Jan Piasecki; Marcin Waligora
Journal:  Med Health Care Philos       Date:  2016-03
  5 in total

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