Literature DB >> 17714250

Cultural challenges to biotechnology: Native American genetic resources and the concept of cultural harm.

Rebecca Tsosie1.   

Abstract

This article examines the intercultural context of issues related to genetic research on Native peoples. In particular, the article probes the disconnect between Western and indigenous concepts of property, ownership, and privacy, and examines the harms to Native peoples that may arise from unauthorized uses of blood and tissue samples or the information derived from such samples. The article concludes that existing legal and ethical frameworks are inadequate to address Native peoples' rights to their genetic resources and suggests an intercultural framework for accommodation based on theories of intergroup equality and fundamental human rights.

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Year:  2007        PMID: 17714250     DOI: 10.1111/j.1748-720X.2007.00163.x

Source DB:  PubMed          Journal:  J Law Med Ethics        ISSN: 1073-1105            Impact factor:   1.718


  14 in total

1.  Secondary uses and the governance of de-identified data: lessons from the human genome diversity panel.

Authors:  Stephanie M Fullerton; Sandra S-J Lee
Journal:  BMC Med Ethics       Date:  2011-09-26       Impact factor: 2.652

2.  Native Hawaiian views on biobanking.

Authors:  Maile Tauali i; Elise Leimomi Davis; Kathryn L Braun; JoAnn Umilani Tsark; Ngiare Brown; Maui Hudson; Wylie Burke
Journal:  J Cancer Educ       Date:  2014-09       Impact factor: 2.037

3.  Creating research capacity through a tribally based institutional review board.

Authors:  Deborah J Morton; Joely Proudfit; Daniel Calac; Martina Portillo; Geneva Lofton-Fitzsimmons; Theda Molina; Raymond Flores; Barbara Lawson-Risso; Romelle Majel-McCauley
Journal:  Am J Public Health       Date:  2013-10-17       Impact factor: 9.308

4.  2010 Presidential Address: Culture: the silent language geneticists must learn--genetic research with indigenous populations.

Authors:  Roderick R McInnes
Journal:  Am J Hum Genet       Date:  2011-03-11       Impact factor: 11.025

Review 5.  Seeking consent for research with indigenous communities: a systematic review.

Authors:  Emily F M Fitzpatrick; Alexandra L C Martiniuk; Heather D'Antoine; June Oscar; Maureen Carter; Elizabeth J Elliott
Journal:  BMC Med Ethics       Date:  2016-10-22       Impact factor: 2.652

Review 6.  Responsible Research With Urban American Indians and Alaska Natives.

Authors:  Rosalina D James; Kathleen M West; Katrina G Claw; Abigail EchoHawk; Leah Dodge; Adrian Dominguez; Maile Taualii; Ralph Forquera; Kenneth Thummel; Wylie Burke
Journal:  Am J Public Health       Date:  2018-10-25       Impact factor: 9.308

7.  "We Don't Need a Swab in Our Mouth to Prove Who We Are": Identity, Resistance, and Adaptation of Genetic Ancestry Testing among Native American Communities.

Authors:  Jessica W Blanchard; Simon Outram; Gloria Tallbull; Charmaine D M Royal
Journal:  Curr Anthropol       Date:  2019-10

8.  Barriers and Strategies Related to Qualitative Research on Genetic Ancestry Testing in Indigenous Communities.

Authors:  Jessica W Blanchard; Gloria Tallbull; Chantelle Wolpert; Jill Powell; Morris W Foster; Charmaine Royal
Journal:  J Empir Res Hum Res Ethics       Date:  2017-04-23       Impact factor: 1.742

9.  Perspectives on communication and engagement with regard to collecting biospecimens and family health histories for cancer research in a rural Alaska Native community.

Authors:  Lisa G Dirks; Jennifer L Shaw; Vanessa Y Hiratsuka; Julie A Beans; Janet J Kelly; Denise A Dillard
Journal:  J Community Genet       Date:  2019-01-30

10.  Partnership with the Confederated Salish and Kootenai Tribes: Establishing an Advisory Committee for Pharmacogenetic Research.

Authors:  Chelsea T Morales; LeeAnna I Muzquiz; Kevin Howlett; Bernie Azure; Brenda Bodnar; Vernon Finley; Tony Incashola; Cheryl Mathias; Cindi Laukes; Patrick Beatty; Wylie Burke; Mark A Pershouse; Elizabeth A Putnam; Susan Brown Trinidad; Rosalina James; Erica L Woodahl
Journal:  Prog Community Health Partnersh       Date:  2016
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