Literature DB >> 17689070

Translation procedures for standardised quality of life questionnaires: The European Organisation for Research and Treatment of Cancer (EORTC) approach.

Michael Koller1, Neil K Aaronson, Jane Blazeby, Andrew Bottomley, Linda Dewolf, Peter Fayers, Colin Johnson, John Ramage, Neil Scott, Karen West.   

Abstract

BACKGROUND: The European Organisation for Research and Treatment of Cancer quality of life (EORTC QL) questionnaires are used in international trials and therefore standardised translation procedures are required. This report summarises the EORTC translation procedure, recent accomplishments and challenges.
METHODS: Translations follow a forward-backward procedure, independently carried out by two native-speakers of the target language. Discrepancies are arbitrated by a third consultant, and solutions are reached by consensus. Translated questionnaires undergo a pilot-testing. Suggestions are incorporated into the final questionnaire. Requests for translations originate from the module developers, physicians or pharmaceutical industry, and most translations are performed by professional translators. The translation procedure is managed and supervised by a Translation Coordinator within the EORTC QL Unit in Brussels.
RESULTS: To date, the EORTC QLQ-C30 has been translated and validated into more than 60 languages, with further translations in progress. Translations include all major Western, and many African and Asian languages. The following translation problems were encountered: lack of expressions for specific symptoms in various languages, the use of old-fashioned language, recent spelling reforms in several European countries and different priorities of social issues between Western and Eastern cultures. The EORTC measurement system is now registered for use in over 9000 clinical trials worldwide.
CONCLUSIONS: The EORTC provides strong infrastructure and quality control to produce robust translated questionnaires. Nevertheless, translation problems have been identified. The key to improvements may lie in the particular features and strengths of the group, consisting of researchers from 21 countries representing 25 languages and include the development of simple source versions, the use of advanced computerised tools, rigorous pilot-testing, certification procedures and insights from a unique cross-cultural database of nearly 40,000 questionnaire responses.

Entities:  

Mesh:

Year:  2007        PMID: 17689070     DOI: 10.1016/j.ejca.2007.05.029

Source DB:  PubMed          Journal:  Eur J Cancer        ISSN: 0959-8049            Impact factor:   9.162


  77 in total

Review 1.  Evaluation of cross-cultural adaptation and measurement properties of breast cancer-specific quality-of-life questionnaires: a systematic review.

Authors:  Indiara Soares Oliveira; Lucíola da Cunha Menezes Costa; Felipe Ribeiro Cabral Fagundes; Cristina Maria Nunes Cabral
Journal:  Qual Life Res       Date:  2014-11-13       Impact factor: 4.147

Review 2.  Instruments to assess patients with rotator cuff pathology: a systematic review of measurement properties.

Authors:  Umile Giuseppe Longo; Daniël Saris; Rudolf W Poolman; Alessandra Berton; Vincenzo Denaro
Journal:  Knee Surg Sports Traumatol Arthrosc       Date:  2011-12-20       Impact factor: 4.342

3.  Recognizable clinical subtypes of obstructive sleep apnea across international sleep centers: a cluster analysis.

Authors:  Brendan T Keenan; Jinyoung Kim; Bhajan Singh; Lia Bittencourt; Ning-Hung Chen; Peter A Cistulli; Ulysses J Magalang; Nigel McArdle; Jesse W Mindel; Bryndis Benediktsdottir; Erna Sif Arnardottir; Lisa Kristin Prochnow; Thomas Penzel; Bernd Sanner; Richard J Schwab; Chol Shin; Kate Sutherland; Sergio Tufik; Greg Maislin; Thorarinn Gislason; Allan I Pack
Journal:  Sleep       Date:  2018-03-01       Impact factor: 5.849

4.  Validation of EORTC IN-PATSAT32 for Chinese cancer patients.

Authors:  Lei Zhang; Zhenbo Dai; Siying Cheng; Shumin Xie; Stephanie Mu-Lian Woo; Zhiqin Luo; Jinglian Wu; Tianwen Gao; Jiahao Liu; Kai Zhang; Jing Zhang; Xinyu Jia; Adam R Miller; Changli Wang
Journal:  Support Care Cancer       Date:  2015-02-08       Impact factor: 3.603

5.  Moroccan adaptation and validation of the rhinosinusitis quality-of-life survey.

Authors:  Taoufik Adouly; Choaib Adnane; Amine Khallouk; Meriem Chenguir; Sami Rouadi; Reda Lah Abada; Mohamed Roubal; Mohamed Mahtar
Journal:  Eur Arch Otorhinolaryngol       Date:  2016-11-14       Impact factor: 2.503

6.  Xerostomia Quality of Life Scale (XeQoLS) questionnaire: validation of Italian version in head and neck cancer patients.

Authors:  Luciana Lastrucci; Silvia Bertocci; Vittorio Bini; Simona Borghesi; Roberta De Majo; Andrea Rampini; Pietro Giovanni Gennari; Paola Pernici
Journal:  Radiol Med       Date:  2017-08-31       Impact factor: 3.469

7.  A comparative study of health locus of control in patients with schizophrenia and their first degree relatives.

Authors:  Sarika Thakral; Triptish Bhatia; Elizabeth A Gettig; V L Nimgaonkar; Smita N Deshpande
Journal:  Asian J Psychiatr       Date:  2013-10-14

8.  Translation, adaptation and validation of a Portuguese version of the Moorehead-Ardelt Quality of Life Questionnaire II.

Authors:  João Maciel; Paulo Infante; Susana Ribeiro; André Ferreira; Artur C Silva; Jorge Caravana; Manuel G Carvalho
Journal:  Obes Surg       Date:  2014-11       Impact factor: 4.129

9.  How can we improve outcomes for patients and families under palliative care? Implementing clinical audit for quality improvement in resource limited settings.

Authors:  Lucy Selman; Richard Harding
Journal:  Indian J Palliat Care       Date:  2010-01

10.  The Tinnitus Research Initiative (TRI) database: a new approach for delineation of tinnitus subtypes and generation of predictors for treatment outcome.

Authors:  Michael Landgrebe; Florian Zeman; Michael Koller; Yvonne Eberl; Markus Mohr; Jean Reiter; Susanne Staudinger; Goeran Hajak; Berthold Langguth
Journal:  BMC Med Inform Decis Mak       Date:  2010-08-03       Impact factor: 2.796

View more

北京卡尤迪生物科技股份有限公司 © 2022-2023.