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Literature DB >> 17595406

The Theory of Genetic Vulnerability: a Roy model exemplar.

Abstract

The purpose of this study was to explore the experience of adult genetic testing. Grounded theory was used to plan, guide, and analyze in-depth interviews with 29 participants. The theory of genetic vulnerability was developed and is composed of five concepts: (a) experiencing the family disease, (b) testing for a mutation, (c) fore-grounding inherited disease risk, (d) responding to knowledge of genetic vulnerability, and (e) altering or avoiding the family experience of inherited disease. Roy's model of adaptation is discussed as a valuable lens through which to test and adapt this theory.

Entities: Disease Species

Mesh：

Year: 2007 PMID： 17595406 DOI： 10.1177/0894318407303127

Source DB: PubMed Journal: Nurs Sci Q ISSN： 0894-3184 Impact factor: 0.883

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Cited

14 in total

1. Grounded theory in genetic counseling research: an interpretive perspective.

Authors: Robin E Grubs; Maria Piantanida
Journal: J Genet Couns Date: 2010-02-02 Impact factor: 2.537

Review 2. Family Communication, Risk Perception and Cancer Knowledge of Young Adults from BRCA1/2 Families: a Systematic Review.

Authors: Alison L Young; Phyllis N Butow; Janine Vetsch; Veronica F Quinn; Andrea F Patenaude; Katherine M Tucker; Claire E Wakefield
Journal: J Genet Couns Date: 2017-06-30 Impact factor: 2.537

3. Information and support needs of young women regarding breast cancer risk and genetic testing: adapting effective interventions for a novel population.

Authors: Suzanne C O'Neill; Chalanda Evans; Rebekah J Hamilton; Beth N Peshkin; Claudine Isaacs; Sue Friedman; Kenneth P Tercyak
Journal: Fam Cancer Date: 2018-07 Impact factor: 2.375

4. Relationship between individual and family characteristics and psychosocial factors in persons with familial pancreatic cancer.

Authors: Meghan Underhill; Fangxin Hong; Janette Lawrence; Traci Blonquist; Sapna Syngal
Journal: Psychooncology Date: 2018-04-19 Impact factor: 3.894

5. Explanations of risk in families without identified mutations for hereditary nonpolyposis colorectal cancer.

Authors: Anne L Ersig; Lioness Ayres; Donald W Hadley; Laura M Koehly
Journal: J Nurs Scholarsh Date: 2010-06 Impact factor: 3.176

6. "Grasping the grey": patient understanding and interpretation of an intermediate allele predictive test result for Huntington disease.

Authors: A Semaka; L G Balneaves; M R Hayden
Journal: J Genet Couns Date: 2012-08-18 Impact factor: 2.537

The Theory of Genetic Vulnerability: a Roy model exemplar.

1. Grounded theory in genetic counseling research: an interpretive perspective.

Review 2. Family Communication, Risk Perception and Cancer Knowledge of Young Adults from BRCA1/2 Families: a Systematic Review.

3. Information and support needs of young women regarding breast cancer risk and genetic testing: adapting effective interventions for a novel population.

4. Relationship between individual and family characteristics and psychosocial factors in persons with familial pancreatic cancer.

5. Explanations of risk in families without identified mutations for hereditary nonpolyposis colorectal cancer.

6. "Grasping the grey": patient understanding and interpretation of an intermediate allele predictive test result for Huntington disease.

7. Living With Genetic Vulnerability: a Life Course Perspective.

Review 8. Nursing advocacy in a postgenomic age.

9. The effect of BRCA gene testing on family relationships: A thematic analysis of qualitative interviews.

Review 10. Genetics: breast cancer as an exemplar.