Literature DB >> 17467834

Our social genome?

Bartha M Knoppers1, Yann Joly.   

Abstract

Apocalyptic views on the natural order, chimeras and genetic engineering should not detract from the fact that medical research, similar to the promotion of health, is a public good. Genomics crosses all species, thereby requiring a global approach that respects human rights and public health priorities. Public trust and public participation in research demand clear stewardship as well as transparent and accountable oversight. Characterizing fundamental genomic data as a public resource might counterbalance the current overemphasis on individual rights but this will not be simple. It is only through an attachment to justice and solidarity that the dignity and well-being of persons, both as humans and as citizens, can truly be fostered.

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Year:  2007        PMID: 17467834     DOI: 10.1016/j.tibtech.2007.04.006

Source DB:  PubMed          Journal:  Trends Biotechnol        ISSN: 0167-7799            Impact factor:   19.536


  8 in total

Review 1.  The tension between data sharing and the protection of privacy in genomics research.

Authors:  Jane Kaye
Journal:  Annu Rev Genomics Hum Genet       Date:  2012-03-09       Impact factor: 8.929

Review 2.  Genomics and policymaking: from static models to complex systems?

Authors:  Bartha Maria Knoppers
Journal:  Hum Genet       Date:  2009-02-28       Impact factor: 4.132

3.  Global bioethics and communitarianism.

Authors:  Henk A M J ten Have
Journal:  Theor Med Bioeth       Date:  2011-10

4.  Sharing and Safeguarding Pediatric Data.

Authors:  Dimitri Patrinos; Bartha Maria Knoppers; David P Laplante; Noriyeh Rahbari; Ashley Wazana
Journal:  Front Genet       Date:  2022-06-20       Impact factor: 4.772

5.  Risk assessment and communication tools for genotype associations with multifactorial phenotypes: the concept of "edge effect" and cultivating an ethical bridge between omics innovations and society.

Authors:  Vural Ozdemir; Guilherme Suarez-Kurtz; Raphaëlle Stenne; Andrew A Somogyi; Toshiyuki Someya; S Oğuz Kayaalp; Eugene Kolker
Journal:  OMICS       Date:  2009-02

6.  A human rights approach to an international code of conduct for genomic and clinical data sharing.

Authors:  Bartha M Knoppers; Jennifer R Harris; Isabelle Budin-Ljøsne; Edward S Dove
Journal:  Hum Genet       Date:  2014-02-27       Impact factor: 4.132

7.  Ethical arguments concerning human-animal chimera research: a systematic review.

Authors:  Koko Kwisda; Lucie White; Dietmar Hübner
Journal:  BMC Med Ethics       Date:  2020-03-23       Impact factor: 2.652

8.  'Dirty pigs' and the xenotransplantation paradox.

Authors:  Gill Haddow
Journal:  Med Humanit       Date:  2021-10-25
  8 in total

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