OBJECTIVE: We evaluated beliefs about, attitudes toward, and stigma associated with epilepsy in four districts of central Laos. METHOD: For this study, 83 people with epilepsy, 83 family members, and 166 matched villagers in Vientiane Province were interviewed. RESULTS: From patients to families to villagers, there existed a significantly increasing gradient of misbeliefs. Dubbed locally as "mad pig disease," epilepsy was viewed as having a supernatural origin by 25-42% of respondents, a life-threatening disease by 60%, a disease transmissible by consumption of pork meat by 10-21%, and a disease transmissible by contact with patients' saliva by 14.5% of patients and 44% of villagers (P<0.01). Stigma was high. People thought that they should avoid contact or sharing meals with patients (15% of patients, 62% of family members, P<0.001), and that persons with epilepsy should not get a job, get married (29 and 42%, P<0.016), or raise children (33-42%). CONCLUSION: Wrong beliefs may lead to stigma and hamper access to or compliance with modern epilepsy treatment. In traditional countries, education is the cornerstone of epilepsy management.
OBJECTIVE: We evaluated beliefs about, attitudes toward, and stigma associated with epilepsy in four districts of central Laos. METHOD: For this study, 83 people with epilepsy, 83 family members, and 166 matched villagers in Vientiane Province were interviewed. RESULTS: From patients to families to villagers, there existed a significantly increasing gradient of misbeliefs. Dubbed locally as "mad pig disease," epilepsy was viewed as having a supernatural origin by 25-42% of respondents, a life-threatening disease by 60%, a disease transmissible by consumption of pork meat by 10-21%, and a disease transmissible by contact with patients' saliva by 14.5% of patients and 44% of villagers (P<0.01). Stigma was high. People thought that they should avoid contact or sharing meals with patients (15% of patients, 62% of family members, P<0.001), and that persons with epilepsy should not get a job, get married (29 and 42%, P<0.016), or raise children (33-42%). CONCLUSION: Wrong beliefs may lead to stigma and hamper access to or compliance with modern epilepsy treatment. In traditional countries, education is the cornerstone of epilepsy management.
Authors: Stephanie Burniston; Anna L Okello; Boualam Khamlome; Phouth Inthavong; Jeffrey Gilbert; Stuart D Blacksell; John Allen; Susan C Welburn Journal: Infect Dis Poverty Date: 2015-03-02 Impact factor: 4.520