Literature DB >> 17416699

Family photographs: expressions of parents raising children with disabilities.

Jane H Lassetter1, Barbara L Mandleco, Susanne Olsen Roper.   

Abstract

The purpose of this qualitative, descriptive study was to capture the everyday lives of parents raising a child with a disability. Fifteen parental dyads raising a child with Down syndrome, developmental disabilities, visual impairments, or speech disorders used a disposable camera to photograph images important to them. Interviews about these photographs reflected everyday life. Four themes emerged from content analysis of the photos: active activities, quiet activities, activities of daily living, and care of the child with a disability. Six themes emerged when discussing photographs participants would have liked to take but did not. These themes were acceptance, concern for the future, joys, struggles, balance of good and bad times, and normalcy. Findings support the usefulness of photography as a method of obtaining information from parents raising a child with a disability through qualitative means and provide nurses with a beginning understanding of these parents' lives.

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Year:  2007        PMID: 17416699     DOI: 10.1177/1049732306298804

Source DB:  PubMed          Journal:  Qual Health Res        ISSN: 1049-7323


  6 in total

1.  Family Sense-Making After a Down Syndrome Diagnosis.

Authors:  Lauren Clark; Heather E Canary; Kyle McDougle; Rebekah Perkins; Ruth Tadesse; Avery E Holton
Journal:  Qual Health Res       Date:  2020-07-03

2.  Experiences of parents with a child with Down syndrome in Pakistan and their views on termination of pregnancy.

Authors:  Shenaz Ahmed; Louise D Bryant; Mushtaq Ahmed; Hussain Jafri; Yasmin Raashid
Journal:  J Community Genet       Date:  2012-10-23

3.  "Concurrent Ropes and Ladders": Mapping and Conceptualizing the Emotional Loss Experience of Parents Following Pediatric Acquired Brain Injury.

Authors:  Einat Yehene; Pnina Steinberg; Maya Gerner; Amichai Brezner; Jana Landa
Journal:  Qual Health Res       Date:  2021-05-24

Review 4.  Part 1: A review of using photovoice as a disability research method: Implications for eliciting the experiences of persons with disabilities on the Community Based Rehabilitation programme in Namibia.

Authors:  Tonderai W Shumba; Indres Moodley
Journal:  Afr J Disabil       Date:  2018-11-01

5.  Part 2: The feasibility of utilising photovoice method and the World Health Organization Quality of Life instrument in evaluating the Community-Based Rehabilitation programme in Namibia: A pilot study.

Authors:  Tonderai W Shumba; Indres Moodley
Journal:  Afr J Disabil       Date:  2018-11-01

6.  Perceptions of caring for children with disabilities: Experiences from Moshi, Tanzania.

Authors:  Anna McNally; Hasheem Mannan
Journal:  Afr J Disabil       Date:  2013-01-23
  6 in total

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