Literature DB >> 17401637

The future of outcomes measurement: item banking, tailored short-forms, and computerized adaptive assessment.

David Cella1, Richard Gershon, Jin-Shei Lai, Seung Choi.   

Abstract

The use of item banks and computerized adaptive testing (CAT) begins with clear definitions of important outcomes, and references those definitions to specific questions gathered into large and well-studied pools, or "banks" of items. Items can be selected from the bank to form customized short scales, or can be administered in a sequence and length determined by a computer programmed for precision and clinical relevance. Although far from perfect, such item banks can form a common definition and understanding of human symptoms and functional problems such as fatigue, pain, depression, mobility, social function, sensory function, and many other health concepts that we can only measure by asking people directly. The support of the National Institutes of Health (NIH), as witnessed by its cooperative agreement with measurement experts through the NIH Roadmap Initiative known as PROMIS (www.nihpromis.org), is a big step in that direction. Our approach to item banking and CAT is practical; as focused on application as it is on science or theory. From a practical perspective, we frequently must decide whether to re-write and retest an item, add more items to fill gaps (often at the ceiling of the measure), re-test a bank after some modifications, or split up a bank into units that are more unidimensional, yet less clinically relevant or complete. These decisions are not easy, and yet they are rarely unforgiving. We encourage people to build practical tools that are capable of producing multiple short form measures and CAT administrations from common banks, and to further our understanding of these banks with various clinical populations and ages, so that with time the scores that emerge from these many activities begin to have not only a common metric and range, but a shared meaning and understanding across users. In this paper, we provide an overview of item banking and CAT, discuss our approach to item banking and its byproducts, describe testing options, discuss an example of CAT for fatigue, and discuss models for long term sustainability of an entity such as PROMIS. Some barriers to success include limitations in the methods themselves, controversies and disagreements across approaches, and end-user reluctance to move away from the familiar.

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Year:  2007        PMID: 17401637     DOI: 10.1007/s11136-007-9204-6

Source DB:  PubMed          Journal:  Qual Life Res        ISSN: 0962-9343            Impact factor:   4.147


  26 in total

1.  A discussion of item response theory and its applications in health status assessment.

Authors:  D Cella; C H Chang
Journal:  Med Care       Date:  2000-09       Impact factor: 2.983

2.  Practical implications of item response theory and computerized adaptive testing: a brief summary of ongoing studies of widely used headache impact scales.

Authors:  J E Ware; J B Bjorner; M Kosinski
Journal:  Med Care       Date:  2000-09       Impact factor: 2.983

3.  Equating health status measures with item response theory: illustrations with functional status items.

Authors:  C A McHorney; A S Cohen
Journal:  Med Care       Date:  2000-09       Impact factor: 2.983

4.  Computerized quality-of-life screening in a cancer pain clinic.

Authors:  L E Carlson; M Speca; N Hagen; P Taenzer
Journal:  J Palliat Care       Date:  2001       Impact factor: 2.250

5.  Health-related quality-of-life assessments and patient-physician communication: a randomized controlled trial.

Authors:  Symone B Detmar; Martin J Muller; Jan H Schornagel; Lidwina D V Wever; Neil K Aaronson
Journal:  JAMA       Date:  2002-12-18       Impact factor: 56.272

6.  Anorexia/cachexia-related quality of life for children with cancer.

Authors:  Jin-Shei Lai; David Cella; Amy Peterman; Joshua Barocas; Stewart Goldman
Journal:  Cancer       Date:  2005-10-01       Impact factor: 6.860

7.  Quality of life assessment in daily clinical oncology practice: a feasibility study.

Authors:  S B Detmar; N K Aaronson
Journal:  Eur J Cancer       Date:  1998-07       Impact factor: 9.162

8.  Item banking to improve, shorten and computerize self-reported fatigue: an illustration of steps to create a core item bank from the FACIT-Fatigue Scale.

Authors:  Jin-shei Lai; David Cella; Chih-Hung Chang; Rita K Bode; Allen W Heinemann
Journal:  Qual Life Res       Date:  2003-08       Impact factor: 4.147

9.  Measuring quality of life in routine oncology practice improves communication and patient well-being: a randomized controlled trial.

Authors:  Galina Velikova; Laura Booth; Adam B Smith; Paul M Brown; Pamela Lynch; Julia M Brown; Peter J Selby
Journal:  J Clin Oncol       Date:  2004-02-15       Impact factor: 44.544

10.  Computer-based quality of life questionnaires may contribute to doctor-patient interactions in oncology.

Authors:  G Velikova; J M Brown; A B Smith; P J Selby
Journal:  Br J Cancer       Date:  2002-01-07       Impact factor: 7.640

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  226 in total

1.  Accuracy and precision of the Pediatric Evaluation of Disability Inventory computer-adaptive tests (PEDI-CAT).

Authors:  Stephen M Haley; Wendy J Coster; Helene M Dumas; Maria A Fragala-Pinkham; Jessica Kramer; Pengsheng Ni; Feng Tian; Ying-Chia Kao; Rich Moed; Larry H Ludlow
Journal:  Dev Med Child Neurol       Date:  2011-11-11       Impact factor: 5.449

2.  Linking the activity measure for post acute care and the quality of life outcomes in neurological disorders.

Authors:  Stephen M Haley; Pengsheng Ni; Jin-Shei Lai; Feng Tian; Wendy J Coster; Alan M Jette; Donald Straub; David Cella
Journal:  Arch Phys Med Rehabil       Date:  2011-10       Impact factor: 3.966

3.  How item banks and their application can influence measurement practice in rehabilitation medicine: a PROMIS fatigue item bank example.

Authors:  Jin-Shei Lai; David Cella; Seung Choi; Doerte U Junghaenel; Christopher Christodoulou; Richard Gershon; Arthur Stone
Journal:  Arch Phys Med Rehabil       Date:  2011-10       Impact factor: 3.966

4.  Stigma, perceived blame, self-blame, and depressive symptoms in men with colorectal cancer.

Authors:  Sean M Phelan; Joan M Griffin; George L Jackson; S Yousuf Zafar; Wendy Hellerstedt; Mandy Stahre; David Nelson; Leah L Zullig; Diana J Burgess; Michelle van Ryn
Journal:  Psychooncology       Date:  2011-09-26       Impact factor: 3.894

5.  The PROMIS initiative: involvement of rehabilitation stakeholders in development and examples of applications in rehabilitation research.

Authors:  Dagmar Amtmann; Karon F Cook; Kurt L Johnson; David Cella
Journal:  Arch Phys Med Rehabil       Date:  2011-10       Impact factor: 3.966

6.  Using Qualitative Research to Inform the Development of a Comprehensive Outcomes Assessment for Asthma.

Authors:  Diane M Turner-Bowker; Renee N Saris-Baglama; Michael A Derosa; Christine A Paulsen; Christopher P Bransfield
Journal:  Patient       Date:  2009-12-01       Impact factor: 3.883

7.  New measures to capture end of life concerns in Huntington disease: Meaning and Purpose and Concern with Death and Dying from HDQLIFE (a patient-reported outcomes measurement system).

Authors:  N E Carlozzi; N R Downing; M K McCormack; S G Schilling; J S Perlmutter; E A Hahn; J S Lai; S Frank; K A Quaid; J S Paulsen; D Cella; S M Goodnight; J A Miner; M A Nance
Journal:  Qual Life Res       Date:  2016-07-08       Impact factor: 4.147

8.  Using qualitative research to inform the development of a comprehensive outcomes assessment for asthma.

Authors:  Diane M Turner-Bowker; Renee N Saris-Baglama; Michael A Derosa; Christine A Paulsen; Christopher P Bransfield
Journal:  Patient       Date:  2009-12-01       Impact factor: 3.883

9.  Understanding the need for assistance with survey completion in people with Huntington disease.

Authors:  Elizabeth A Hahn; Nancy R Downing; Julie C Stout; Jane S Paulsen; Becky Ready; Siera Goodnight; Jin-Shei Lai; Jennifer A Miner; Noelle E Carlozzi
Journal:  Qual Life Res       Date:  2017-12-06       Impact factor: 4.147

10.  A comparison of computerized adaptive testing and fixed-length short forms for the Prosthetic Limb Users Survey of Mobility (PLUS-MTM).

Authors:  Dagmar Amtmann; Alyssa M Bamer; Jiseon Kim; Fraser Bocell; Hyewon Chung; Ryoungsun Park; Rana Salem; Brian J Hafner
Journal:  Prosthet Orthot Int       Date:  2017-09-02       Impact factor: 1.895

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