Literature DB >> 17399963

A study of information seeking by cancer patients and their carers.

N James1, H Daniels, R Rahman, C McConkey, J Derry, A Young.   

Abstract

AIMS: To examine cancer patients' and carers' use of, and attitudes to, the Internet as an information source compared with other media.
MATERIALS AND METHODS: The study was carried out in two phases: in phase I, interviews were used to construct a suitable instrument. In phase II, interviews were completed with 800 recently diagnosed patients and 200 carers.
RESULTS: Relatively few patients (4.8%), but a high proportion of carers (48%), accessed the Internet directly for cancer information. However, around half of the patients used Internet information provided by someone else, generally a family member. The use of Internet information was uniformly low among ethnic minorities. Those who accessed Internet information reported high levels of satisfaction and generally rated it higher than booklets or leaflets. When asked who they would like to provide Internet information, overwhelmingly patients wanted the hospital doctor to do so. When this was done, there was very high compliance. Carers were much more proactive information seekers than patients.
CONCLUSIONS: The Internet is an effective means of information provision in those who use it. Facilitated Internet access and directed use by health professionals would be effective ways of broadening access to this medium.

Entities:  

Mesh:

Year:  2007        PMID: 17399963     DOI: 10.1016/j.clon.2007.02.005

Source DB:  PubMed          Journal:  Clin Oncol (R Coll Radiol)        ISSN: 0936-6555            Impact factor:   4.126


  47 in total

1.  Explaining and improving breast cancer information acquisition among African American women in the Deep South.

Authors:  Charkarra Anderson-Lewis; Levi Ross; Jarrett Johnson; Janice L Hastrup; B Lee Green; Connie L Kohler
Journal:  South Med J       Date:  2012-06       Impact factor: 0.954

Review 2.  The role of the Internet in supporting and informing carers of people with cancer: a literature review.

Authors:  Nicole A Kinnane; Donna J Milne
Journal:  Support Care Cancer       Date:  2010-03-25       Impact factor: 3.603

3.  Web-based cancer communication and decision making systems: connecting patients, caregivers, and clinicians for improved health outcomes.

Authors:  Lori L DuBenske; David H Gustafson; Bret R Shaw; James F Cleary
Journal:  Med Decis Making       Date:  2010-11-01       Impact factor: 2.583

4.  Shielded from the real world: perspectives on Internet cancer support groups by Asian Americans.

Authors:  Eun-Ok Im; Bokim Lee; Wonshik Chee
Journal:  Cancer Nurs       Date:  2010 May-Jun       Impact factor: 2.592

5.  How do cancer patients navigate the public information environment? Understanding patterns and motivations for movement among information sources.

Authors:  Rebekah H Nagler; Anca Romantan; Bridget J Kelly; Robin S Stevens; Stacy W Gray; Shawnika J Hull; A Susana Ramirez; Robert C Hornik
Journal:  J Cancer Educ       Date:  2010-03-05       Impact factor: 2.037

6.  Pediatric cancer and the internet: exploring the gap in doctor-parents communication.

Authors:  Martí Domínguez; Lucía Sapiña
Journal:  J Cancer Educ       Date:  2015-03       Impact factor: 2.037

7.  Evaluation of a hospital-based cancer information and support centre.

Authors:  Nicole A Kinnane
Journal:  Support Care Cancer       Date:  2011-01-13       Impact factor: 3.603

8.  Cervical cancer patient information-seeking behaviors, information needs, and information sources in South Korea.

Authors:  Hang-In Noh; Jong Min Lee; Young Ho Yun; Sang Yoon Park; Duk-Soo Bae; Joo-Hyun Nam; Chong Taik Park; Chi-Heum Cho; Su Yeon Kye; Yoon Jung Chang
Journal:  Support Care Cancer       Date:  2009-01-27       Impact factor: 3.603

9.  [Information services for melanoma patients and awareness among those affected].

Authors:  J Brütting; M Bergmann; C Weber; C Berking; W Tilgen; D Schadendorf; F Meier
Journal:  Hautarzt       Date:  2018-04       Impact factor: 0.751

10.  Information-seeking at a caregiving website: a qualitative analysis.

Authors:  Leslie P Kernisan; Rebecca L Sudore; Sara J Knight
Journal:  J Med Internet Res       Date:  2010-07-28       Impact factor: 5.428

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