PURPOSE: To identify demographic differences between patients who choose participation and patients who choose nonparticipation in genetic biobanks, and to explore reasons for nonparticipation. DESIGN: Prospective study of hospitalized cardiovascular patients approached to participate in a genetic biobank, 300 nonparticipants and 299 participants, in the southwestern US. METHODS: Reasons for nonparticipation were explored. Logistic regression was performed to determine if gender, race or ethnicity, or age predicted nonparticipation. FINDINGS: Race or ethnicity and age were significantly different between participants and nonparticipants, but gender was not. Blood-sample collection was the main reason for declining participation. CONCLUSIONS: Minority and older adults were less likely to participate. Understanding reasons for nonparticipation in this group might aid in the development of methods used to obtain a diverse population in biobanks.
PURPOSE: To identify demographic differences between patients who choose participation and patients who choose nonparticipation in genetic biobanks, and to explore reasons for nonparticipation. DESIGN: Prospective study of hospitalized cardiovascular patients approached to participate in a genetic biobank, 300 nonparticipants and 299 participants, in the southwestern US. METHODS: Reasons for nonparticipation were explored. Logistic regression was performed to determine if gender, race or ethnicity, or age predicted nonparticipation. FINDINGS: Race or ethnicity and age were significantly different between participants and nonparticipants, but gender was not. Blood-sample collection was the main reason for declining participation. CONCLUSIONS: Minority and older adults were less likely to participate. Understanding reasons for nonparticipation in this group might aid in the development of methods used to obtain a diverse population in biobanks.
Authors: Jamie L'Heureux; Jeffrey C Murray; Elizabeth Newbury; Laura Shinkunas; Christian M Simon Journal: Biopreserv Biobank Date: 2013-05-29 Impact factor: 2.300
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Authors: Deborah O Erwin; Kirsten Moysich; Marc T Kiviniemi; Frances G Saad-Harfouche; Warren Davis; Nikia Clark-Hargrave; Gregory L Ciupak; Christine B Ambrosone; Charles Walker Journal: J Cancer Educ Date: 2013-03 Impact factor: 2.037
Authors: Samantha A Streicher; Saskia C Sanderson; Ethylin Wang Jabs; Michael Diefenbach; Meg Smirnoff; Inga Peter; Carol R Horowitz; Barbara Brenner; Lynne D Richardson Journal: J Community Genet Date: 2011-06-07
Authors: Robert J Lucero; Joan Kearney; Yamnia Cortes; Adriana Arcia; Paul Appelbaum; Roberto Lewis Fernández; Jose Luchsinger Journal: AJOB Empir Bioeth Date: 2015
Authors: Karen Hye-Cheon Kim Yeary; Mondi Mason; Jerome Turner; Thomas Kieber-Emmons; Marie Chow; R Jean Hine; Ronda Henry-Tillman; Paul Greene Journal: Transl Behav Med Date: 2011-06 Impact factor: 3.046
Authors: J L Ridgeway; L C Han; J E Olson; K A Lackore; B A Koenig; T J Beebe; J Y Ziegenfuss Journal: Public Health Genomics Date: 2013-04-12 Impact factor: 2.000