Literature DB >> 17377604

Navigating care after a baby dies: a systematic review of parent experiences with health providers.

K J Gold1.   

Abstract

INTRODUCTION: Health care providers are on the front lines of care when a baby dies, but there is no consensus about which behaviors are most helpful or harmful for families.
MATERIALS AND METHODS: This systematic review of more than 1100 English-language articles from 1966 to 2006 addressed fetal and early infant loss and extracted information about interactions with health providers.
RESULTS: Sixty-one studies, covering over 6000 parents, met criteria. Nurses were generally viewed as more emotionally supportive than physicians. Parents valued emotional support, attention to mother and baby and grief education. Avoidance, insensitivity and poor staff communication were the most distressing behaviors encountered. DISCUSSION: Interactions with health providers has profound effects on parents with perinatal losses. Grieving parents perceive many behaviors to be thoughtless or insensitive. Physicians and nurses may benefit from increased training in bereavement support.

Entities:  

Mesh:

Year:  2007        PMID: 17377604     DOI: 10.1038/sj.jp.7211676

Source DB:  PubMed          Journal:  J Perinatol        ISSN: 0743-8346            Impact factor:   2.521


  37 in total

1.  Parent's perceptions of health care providers actions around child ICU death: what helped, what did not.

Authors:  Dorothy Brooten; Joanne M Youngblut; Lynn Seagrave; Carmen Caicedo; Dawn Hawthorne; Ivette Hidalgo; Rosa Roche
Journal:  Am J Hosp Palliat Care       Date:  2012-04-24       Impact factor: 2.500

2.  Creation of interdisciplinary guidelines for care of women presenting to the emergency department with pregnancy loss.

Authors:  A Catlin
Journal:  J Perinatol       Date:  2017-06-15       Impact factor: 2.521

3.  Psychosocial impact of mothers with perinatal loss and its contributing factors: an insight.

Authors:  Rosnah Sutan; Rosnah Mohamad Amin; Khatija Banu Ariffin; Tang Zoun Teng; Mohd Faiz Kamal; Rusli Zaim Rusli
Journal:  J Zhejiang Univ Sci B       Date:  2010-03       Impact factor: 3.066

4.  'I should have seen her face at least once': parent's and healthcare providers' experiences and practices of care after stillbirth in Kabul province, Afghanistan.

Authors:  Aliki Christou; Ashraful Alam; Sayed Murtaza Sadat Hofiani; Adela Mubasher; Mohammad Hafiz Rasooly; Mohammad Khakerah Rashidi; Camille Raynes-Greenow
Journal:  J Perinatol       Date:  2021-01-06       Impact factor: 2.521

5.  Decision influences and aftermath: parents, stillbirth and autopsy.

Authors:  Dell Horey; Vicki Flenady; Liz Conway; Emma McLeod; Teck Yee Khong
Journal:  Health Expect       Date:  2012-06-19       Impact factor: 3.377

6.  Parental decision making around perinatal autopsy: a qualitative investigation.

Authors:  Sarah Meaney; Stephen Gallagher; Jennifer E Lutomski; Keelin O'Donoghue
Journal:  Health Expect       Date:  2014-11-06       Impact factor: 3.377

7.  Perinatal and pediatric issues in palliative and end-of-life care from the 2011 Summit on the Science of Compassion.

Authors:  Jonne M Youngblut; Dorothy Brooten
Journal:  Nurs Outlook       Date:  2012-10-01       Impact factor: 3.250

Review 8.  The parental experience of pregnancy after perinatal loss.

Authors:  Katrina J DeBackere; Pamela D Hill; Karen L Kavanaugh
Journal:  J Obstet Gynecol Neonatal Nurs       Date:  2008 Sep-Oct

9.  Hospital costs associated with stillbirth delivery.

Authors:  Katherine J Gold; Ananda Sen; Xiao Xu
Journal:  Matern Child Health J       Date:  2013-12

10.  End-of-life experiences of nurses and physicians in the newborn intensive care unit.

Authors:  E G Epstein
Journal:  J Perinatol       Date:  2008-07-03       Impact factor: 2.521

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