Literature DB >> 17318456

Development and pilot testing of two decision aids for individuals considering genetic testing for cancer risk.

Claire E Wakefield1, Bettina Meiser, Judi Homewood, Michelle Peate, Judy Kirk, Beverley Warner, Elizabeth Lobb, Clara Gaff, Kathy Tucker.   

Abstract

Current practice in genetic counseling may not allow a full deliberation of the consequences of decisions about genetic testing for cancer risk, despite increasing demand for these services. Thus, two decision aids for individuals considering genetic testing for hereditary breast/ovarian cancer and hereditary non-polyposis colorectal cancer (HNPCC) susceptibility were developed and pilot tested with 43 individuals who had previously considered genetic testing for these cancer syndromes. A description of the decision aid development process is provided, as well as results of the pilot testing, which assessed participants' perceptions of the decision aids. All participants reported that they would recommend the decision aid to others facing the same situation, and 93% reported that the decision aid would have been relevant during their decision-making. The perceived impact of the decision aids on participants' emotions and understanding of genetic testing were assessed. Limitations of the study and future directions are discussed.

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Mesh：

Year:  2007        PMID： 17318456     DOI： 10.1007/s10897-006-9068-x

Source DB:  PubMed          Journal:  J Genet Couns        ISSN： 1059-7700            Impact factor:   2.717


  64 in total

1.  The psychological consequences of offering mutation searching in the family for those at risk of hereditary breast and ovarian cancer--a pilot study.

Authors:  M Broadstock; S Michie; J Gray; J Mackay; T M Marteau
Journal:  Psychooncology       Date:  2000 Nov-Dec       Impact factor: 3.894

2.  Communicating genetic test results to the family: a six-step, skills-building strategy.

Authors:  M B Daly; A Barsevick; S M Miller; R Buckman; J Costalas; S Montgomery; R Bingler
Journal:  Fam Community Health       Date:  2001-10

3.  Prophylactic oophorectomy versus screening: psychosocial outcomes in women at increased risk of ovarian cancer.

Authors:  A Fry; C Busby-Earle; R Rush; A Cull
Journal:  Psychooncology       Date:  2001 May-Jun       Impact factor: 3.894

4.  Predictive testing for hereditary non-polyposis colorectal cancer: motivation, illness representations and short-term psychological impact.

Authors:  Erna Claes; Lieve Denayer; Gerry Evers-Kiebooms; Andrea Boogaerts; Eric Legius
Journal:  Patient Educ Couns       Date:  2004-11

5.  The role of health education and behavior in public health genetics.

Authors:  Sharon L R Kardia; Catharine Wang
Journal:  Health Educ Behav       Date:  2005-10

6.  Diffusion of information about genetic risk within families.

Authors:  Ségolène Ayme; Geneviève Macquart-Moulin; Claire Julian-Reynier; Françoise Chabal; Francis Giraud
Journal:  Neuromuscul Disord       Date:  1993 Sep-Nov       Impact factor: 4.296

7.  Psychological impact of receiving a BRCA1/BRCA2 test result.

Authors:  L Lodder; P G Frets; R W Trijsburg; E J Meijers-Heijboer; J G Klijn; H J Duivenvoorden; A Tibben; A Wagner; C A van der Meer; A M van den Ouweland; M F Niermeijer
Journal:  Am J Med Genet       Date:  2001-01-01

8.  Prophylactic oophorectomy in carriers of BRCA1 or BRCA2 mutations.

Authors:  Timothy R Rebbeck; Henry T Lynch; Susan L Neuhausen; Steven A Narod; Laura Van't Veer; Judy E Garber; Gareth Evans; Claudine Isaacs; Mary B Daly; Ellen Matloff; Olufunmilayo I Olopade; Barbara L Weber
Journal:  N Engl J Med       Date:  2002-05-20       Impact factor: 91.245

9.  Effect of a computer-based decision aid on knowledge, perceptions, and intentions about genetic testing for breast cancer susceptibility: a randomized controlled trial.

Authors:  Michael J Green; Susan K Peterson; Maria Wagner Baker; Gregory R Harper; Lois C Friedman; Wendy S Rubinstein; David T Mauger
Journal:  JAMA       Date:  2004-07-28       Impact factor: 56.272

10.  Tailoring communication in consultations with women from high risk breast cancer families.

Authors:  E A Lobb; P N Butow; B Meiser; A Barratt; C Gaff; M A Young; J Kirk; G K Suthers; K Tucker
Journal:  Br J Cancer       Date:  2002-08-27       Impact factor: 7.640
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  10 in total

1.  Development of Breast Cancer Choices: a decision support tool for young women with breast cancer deciding whether to have genetic testing for BRCA1/2 mutations.

Authors:  Chloe Grimmett; Charlotte Brooks; Alejandra Recio-Saucedo; Anne Armstrong; Ramsey I Cutress; D Gareth Evans; Ellen Copson; Lesley Turner; Bettina Meiser; Claire E Wakefield; Diana Eccles; Claire Foster
Journal:  Support Care Cancer       Date:  2018-06-28       Impact factor: 3.603

2.  Trait anxiety, information modality, and responses to communications about prenatal genetic testing.

Authors:  Cécile Muller; Linda D Cameron
Journal:  J Behav Med       Date:  2014-01-31

3.  Family Communication and Cascade Testing for Fragile X Syndrome.

Authors:  Melissa Raspa; Anne Edwards; Anne C Wheeler; Ellen Bishop; Donald B Bailey
Journal:  J Genet Couns       Date:  2016-03-09       Impact factor: 2.537

4.  Development of E-info gene(ca): a website providing computer-tailored information and question prompt prior to breast cancer genetic counseling.

Authors:  Akke Albada; Sandra van Dulmen; Roel Otten; Jozien M Bensing; Margreet G E M Ausems
Journal:  J Genet Couns       Date:  2009-05-14       Impact factor: 2.537

5.  Development and Pilot Testing of a Decision Aid for Genomic Research Participants Notified of Clinically Actionable Research Findings for Cancer Risk.

Authors:  Amanda M Willis; Sian K Smith; Bettina Meiser; Mandy L Ballinger; David M Thomas; Martin Tattersall; Mary-Anne Young
Journal:  J Genet Couns       Date:  2018-02-17       Impact factor: 2.537

6.  A Psycho-Educational Intervention for People with a Family History of Depression: Pilot Results.

Authors:  Bettina Meiser; Michelle Peate; Charlene Levitan; Philip B Mitchell; Lyndal Trevena; Kristine Barlow-Stewart; Timothy Dobbins; Helen Christensen; Kerry A Sherman; Kate Dunlop; Peter R Schofield
Journal:  J Genet Couns       Date:  2016-09-29       Impact factor: 2.537

7.  Development and pilot testing of a leaflet informing women with breast cancer about genomic testing for polygenic risk.

Authors:  Rajneesh Kaur; Bettina Meiser; Tatiane Yanes; Mary-Anne Young; Kristine Barlow-Stewart; Tony Roscioli; Sian Smith; Paul A James
Journal:  Fam Cancer       Date:  2019-04       Impact factor: 2.375

8.  "Are you at risk for hereditary breast cancer?": development of a personal risk assessment tool for hereditary breast and ovarian cancer.

Authors:  Wendy F Cohn; Susan M Jones; Susan Miesfeldt
Journal:  J Genet Couns       Date:  2008-01-08       Impact factor: 2.537

9.  What would I do? Perspectives on the factors underlying Lynch syndrome genetic testing and results sharing decisions for high-risk colorectal cancer patients.

Authors:  Gabriella Tiernan; Victoria Freeman; April Morrow; Emily Hogden; Karen Canfell; Yoon-Jung Kang; Natalie Taylor
Journal:  Psychooncology       Date:  2021-11-08       Impact factor: 3.955

10.  Development of a communication aid for explaining hypertrophic cardiomyopathy genetic test results.

Authors:  Yana Smagarinsky; Charlotte Burns; Catherine Spinks; Christopher Semsarian; Jodie Ingles
Journal:  Pilot Feasibility Stud       Date:  2017-11-09
  10 in total

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